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URL: http://www.childrennetwork.org/
Proper Citation: Childhood Liver Disease Research and Education Network (RRID:SCR_001497)
Description: Database of clinical information and serum and tissue samples from children across the United States and Canada with Biliary Atresia, Idiopathic Neonatal Hepatitis, Cystic Fibrosis Liver Disease, Alagille Syndrome, Alpha-1 Antitrypsin Deficiency, Bile Acid Synthesis Defects, Mitochondrial Hepatopathies, and Progressive Familial Intrahepatic Cholestasis in order to facilitate research and to perform clinical, epidemiological, and therapeutic trials in these important pediatric liver diseases. Three NIDDK-funded consortia, Biliary Atresia Research Consortium (BARC), Cholestatic Liver Disease Consortium (CLiC), and the Cystic Fibrosis Liver Disease (CFLD) Network were consolidated to form ChiLDREN. Most of the ChiLDREN studies are natural history studies aimed at acquiring information and data that will provide a better understanding of these rare conditions. Participants will be asked to allow study personnel to obtain information from medical records and an interview, and to collect blood, urine, and tissue samples when clinically indicated, in order to understand the causes of these diseases and to improve the diagnosis and treatment of children with these diseases. All of the information obtained in these studies is confidential and no names or identifying information are used in the study.
Abbreviations: ChiLDREN
Synonyms: Childhood Liver Disease Research and Education Network (ChiLDREN)
Resource Type: biomaterial supply resource, tissue bank, material resource
Keywords: child, clinical, epidemiology, therapy, pediatric, young human, rare disease, diagnostics, treatment, infant, liver, longitudinal, gall bladder, bile duct, small intestine, colon, lymph node, blood, urine, tissue, serum, plasma, dna, bile, liver tissue, gall bladder tissue, bile duct tissue, small intestine tissue, colon tissue, lymph node tissue
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