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http://www.unos.org/

United Network for Organ Sharing (UNOS) is the private, non-profit organization that manages the nation''s organ transplant system under contract with the federal government. UNOS is involved in many aspects of the organ transplant and donation process: * Managing the national transplant waiting list, matching donors to recipients 24 hours a day, 365 days a year. * Maintaining the database that contains all organ transplant data for every transplant event that occurs in the U.S. * Bring together members to develop policies that make the best use of the limited supply of organs and give all patients a fair chance at receiving the organ they need, regardless of age, sex, ethnicity, religion, lifestyle or financial/social status. * Monitoring every organ match to ensure organ allocation policies are followed. * Provides assistance to patients, family members and friends. * Educates transplant professionals about their important role in the donation and transplant processes. * Educating the public about the importance of organ donation. UNOS was first awarded the national Organ Procurement and Transplantation Network (OPTN) contract in 1986 by the U.S. Department of Health and Human Services. UNOS continues as the only organization ever to operate the OPTN. As part of the OPTN contract, UNOS has: * established an organ sharing system that maximizes the efficient use of deceased organs through equitable and timely allocation * established a system to collect, store, analyze and publish data pertaining to the patient waiting list, organ matching, and transplants * informed, consulted and guided persons and organizations concerned with human organ transplantation in order to increase the number of organs available for transplantation

Proper citation: UNOS - United Network for Organ Sharing (RRID:SCR_004976) Copy   

•   Source: SciCrunch Registry

https://research.kssg.ch/Projekte/nach-Projekttyp/48182/L-en

St. Gallen Lung Biopsy Biobank is a tissue and blood sample collation (biobank) of all patients willing to give informed consent, who are undergoing bronchoscopy and/or surgical lung resection in their diagnostic pathway for any pulmonary disease. The special feature of the proposed biobank is the collection of endobronchial biopsies, blood, and molecularly defined cell populations from tumor tissue in a quality suitable for mRNA and other protein expression techniques, which is not possible by standard biobanks.

Proper citation: St. Gallen Lung Biopsy Biobank (RRID:SCR_004971) Copy   

•   Source: SciCrunch Registry

http://nif-apps1.crbs.ucsd.edu/smabiomarkers/

THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A publicly available tool that contains data from the BforSMA clinical study ( ClinicalTrials.gov, NCT00756821 ), a pilot study to identify candidate biomarkers in blood or urine from a wide range of Spinal Muscular Atrophy (SMA) patients that associate with disease severity. It is hoped that the identification of candidate biomarkers will lead to clinical efficacy and longitudinal natural history studies to verify these markers and enable their use as validated pharmacodynamic markers, longitudinal progression markers, or surrogate endpoint measures in clinical trials.

Proper citation: BioMarkers for SMA Data Portal (RRID:SCR_004920) Copy   

•   Source: SciCrunch Registry

http://www.lifebanc.org/

Lifebanc is the nonprofit organ and tissue recovery organization for Northeast Ohio. As one of the original seven independent organ procurement organizations in the United States, Lifebanc serves nearly four million people and works with 80 hospitals in 20 counties. We are a member of the Organ Procurement and Transplantation Network (OPTN), which has been managed by the United Network for Organ Sharing (UNOS) since 1986. We also work closely with local partners, as well as the other Organ Procurement Organizations in the state of Ohio to educate the public and healthcare professionals about the benefits of and need for organ, tissue and eye donations. These organizations include Lifeline of Ohio; LifeCenter and Life Connection of Ohio. Along with serving the public, professional community and donor hospitals, Lifebanc provides life-saving organs to two transplant centers: The Cleveland Clinic and University Hospital Case Medical Center. Recovered tissue is transplanted countless times in hospitals throughout the region. Last year, Lifebanc helped to heal and save more than 25,000 lives. Additionally, it was instrumental in helping to perform the nation''s first near-total face transplant and establishing the world-record for lungs transplanted in a year.

Proper citation: LifeBanc (RRID:SCR_004918) Copy   

•   Source: SciCrunch Registry

http://www.psychologytoday.com/blog/the-compass-pleasure

A blog written by David J. Linden, Ph.D., professor of Neuroscience at the Johns Hopkins University School of Medicine, focusing on the brain''s pleasure circuits. Topics covered include exercise, pleasure and the brain; and understanding the biology of runners high. The Compass of Pleasure: How Our Brains Make Fatty Foods, Orgasm, Exercise, Marijuana, Generosity, Vodka, Learning, and Gambling Feel So Good is also a book and available for purchase. David J. Linden, Ph.D., is a professor in the Department of Neuroscience at the Johns Hopkins University School of Medicine. His laboratory has worked for many years on the cellular substrates of memory storage in the brain and a few other topics. He has a longstanding interest in scientific communication and serves as the Chief Editor of the Journal of Neurophysiology. He has written two books for a general audience about the biological basis of mental function: The Compass of Pleasure (Viking Press, 2011) and The Accidental Mind (Harvard/Belknap, 2007).

Proper citation: Compass of Pleasure (RRID:SCR_004756) Copy   

•   Source: SciCrunch Registry

http://www.iopo.org

Indiana Organ Procurement Organization (IOPO) is the non-profit health service dedicated to advancing organ, tissue, and eye donation throughout Indiana. Its mission is to save and enhance the quality of life through organ, tissue and eye donation. IOPO''s vision is to create the most effective and influential donation and transplantation delivery model in health care. IOPO, as a health services organization, is regulated by several agencies of the US government and maintains accreditations and compliance with regulatory requirements by strict adherence to quality.

Proper citation: Indiana Organ Procurement Organization - IOPO (RRID:SCR_004912) Copy   

•   Source: SciCrunch Registry

http://www.kyorgandonor.org

Kentucky Organ Donor Affiliates (KODA) is dedicated to saving lives through organ and tissue donation and transplantation. An independent, non-profit organ and tissue procurement agency, KODA was formed to establish a statewide educational and procurement network. Its services include evaluation of organ/tissue donor suitability; coordination of organ recovery; organ placement; tissue recovery; family support and aftercare; hospital staff education; public education. Like all OPOs, KODA is federally designated by the U.S. Department of Health and Human Services (HHS). As a licensed tissue bank, KODA Tissue Operations is regulated by the Food & Drug Administration (FDA). KODA is a member of the United Network of Organ Sharing (UNOS), a government-chartered nationwide network operating the Organ Procurement and Transplantation Network (OPTN) under federal contract with the U.S. Department of Health and Human Services (HHS). Founded in 1987 (Originated as a combination of existing organ and tissue procurement programs at the University of Kentucky and the University of Louisville), it now serves 114 counties in Kentucky, 4 counties in southern Indianan and 2 counties in western West Virginia. (Six northern Kentucky counties are served by LifeCenter in Cincinnati). Its major clients are 112 hospitals, 3 transplant centers and a multicultural population of 4 million people.

Proper citation: Kentucky Organ Donor Affiliates (KODA) (RRID:SCR_004990) Copy   

•   Source: SciCrunch Registry

http://www.donatelifetn.org

Tennessee Donor Services (TDS) is a nonprofit, independent organization authorized by the Federal Government to accept anatomical gifts for transplantation and research. Its mission is to support families in our communities who have sustained the loss of a loved one by providing an opportunity for organ, eye and tissue donation and by facilitating the recovery and transplantation of these gifts to help others in need. In our area (TN & VA), over 4,600 people now wait for an organ transplant, (heart, liver, lungs, kidneys, intestine or pancreas). Annually, our service area has approximately 300 people who donate one or more organs upon death and over 900 who donate corneas and/or tissues annually. The need for transplants far exceeds the number of donations in the area covered by TDS, and across the nation. Currently, in the United States, more than 108,000 people wait for an organ transplant. One third of them will die waiting for a transplant. TDS'' designated service area includes 84 counties in Tennessee, 10 counties in Virginia, 3 counties in Georgia and 1 county in Kentucky.

Proper citation: Tennessee Donor Services (RRID:SCR_004992) Copy   

•   Source: SciCrunch Registry

http://www.cdha.nshealth.ca/regional-tissue-bank

The Regional Tissue Bank (RTB), in Halifax Nova Scotia, is a non-profit service dedicated to providing Canadian health care teams with safe high quality allograft tissue and tissue products in support of optimal patient outcomes. It is accredited with the American Association of Tissue Bank (AATB) for all aspects of screening, procurement, processing, storage and distribution for cardiovascular, bone and skin tissues. The RTB is also in compliance with the Eye Bank Association of America (EBAA) and the draft Canadian Standards for Tissue Donation and Transplantation. It also supports autologous tissue transplantation, the bone marrow transplantation program and provides perfusion and preservation service to the Multi-Organ Transplant Program kidney and liver procurement teams. The mission of the Regional Tissue Bank is to ensure all Nova Scotians are offered the option of tissue donation and to provide safe high quality tissue products to Nova Scotian surgical programs and patients. It has expanded its activities with New Brunswick, in collaboration with Health Care Regions, to support tissue donation and transplantation in New Brunswick. The RTB also provides tissue to centers throughout Canada when requested; under the condition that meeting these requests would not disadvantage Atlantic Canadians.

Proper citation: Regional Tissue Bank (RRID:SCR_004872) Copy   

•   Source: SciCrunch Registry

http://www.utmb.edu/scccb/htbc/htbc.htm

THIS RESOURCE IS NO LONGER IN SERVCE, documented September 2, 2016.

Proper citation: University of Texas Tumor Bank (RRID:SCR_005048) Copy   

•   Source: SciCrunch Registry

http://www.tbionline.org/

TBI/Tissue Banks International is a non-profit network of medical eye and tissue banks dedicated to the relief of human suffering through transplantation. More than 100,000 patients are treated with TBI tissue annually. TBI is a recognized innovator in the field of eye and tissue banking and has led advancements in recovery, processing, and distribution of allograft tissue. Each person who chooses to become an eye and tissue donor can help more than a dozen people through their gift. Sight can be restored with a cornea, mobility enabled with a ligament, pain eased with a spinal implant made of bone, burns treated with skin, and lives saved with heart valves. The largest provider of ocular tissue in the world, TBI started as a single eye bank in 1962, and has grown to a network that covers the United States and reaches around the globe. Each year, more than 130,000 TBI tissues are used in transplant surgery, with thousands more utilized in research and medical education.

Proper citation: Tissue Banks International - TBI (RRID:SCR_005041) Copy   

•   Source: SciCrunch Registry

http://www.oumedicine.com/oklahoma-clinical-and-translational-science-institute/research-resources/ndri/ndri-dorsal-root-ganglia-program

NDRI actively recovers a diverse range of normal and diseased human tissues for biomedical researchers. We have recently implemented a new program to make human dorsal root ganglia (DRG) available for your research studies. The dorsal root ganglia contain cell bodies of afferent (inbound) neurons, and transmit pain and temperature sensations from the body. DRGs from C5 through L5 regions will be available. DRGs will be recovered under operating room conditions with a low post mortem interval to preservation and can be shipped at 4 degrees C, snap-frozen or fixed. Detailed medical-social history information is provided for each donor. If you are interested in obtaining these specimens, please contact me at your earliest convenience. Current NDRI researchers can immediately request these samples. Non-NDRI researchers need to submit a researcher application. * The program provides a reliable source of human DRG neurons that can be utilized for: Electrophysiology analysis, Live cell imaging studies * Low PMI yields high quality samples that are suitable for rigorous molecular applications: Deep sequencing analysis, In situ hybridization, Micro-array analysis * DRGs from C5 through L5 regions will be available. * The tissue fee for this program is 500 dollars per DRG * Customizable-- the researcher determines the DRG location and quantity that is needed for their research.

Proper citation: NDRI Dorsal Root Ganglia Program (RRID:SCR_005043) Copy   

•   Source: SciCrunch Registry

http://www.lcnw.org

LifeCenter Northwest is one of 58 federally designated nonprofit organ procurement organizations (OPO) in the United States. LifeCenter Northwest works together with families, medical professionals, and communities in Alaska, Montana, North Idaho, and Washington to save lives through organ and tissue donation. LifeCenter Northwest provides the following services: * Hospital Development ** support of donor families throughout and after the donation process ** development of strong relationships between hospitals and LifeCenter Northwest ** helping hospitals stay compliant with federal and state regulations ** ongoing education of hospital staff on donation laws and programs * Organ Recovery Services ** on-site referral response to hospitals ** evaluation of patient medical suitability for donation ** management of patient care through the allocation and recovery of organs ** placement of organs, working with the United Network for Organ Sharing (UNOS) ** coordination of transplant team transportation and arrival at donor hospitals ** surgical recovery and transportation of organs * Tissue Recovery Services ** telephone referral response to hospitals ** evaluation of patient medical suitability for donation ** surgical recovery and transportation of tissues

Proper citation: LifeCenter Northwest (RRID:SCR_004868) Copy   

•   Source: SciCrunch Registry

http://www.catransplant.org/

California Transplant Services (CTS) is a full service eye and tissue bank headquartered in Carlsbad, California. CTS is a California non-profit public benefit corporation qualified by the IRS as a section 501(c)3 public charity, licensed by the California Department of Public Health as a Tissue Bank and registered and inspected by the United States Food and Drug Administration. We were also inspected by the American Association of Tissue Banks in September of 2003 and awarded Accreditation in December 2003. California Transplant Services is a Member of the Eye Bank Association of America. We are registered in California with the Office of Charitable Trusts. Most of CTS California Transplant''s fulltime staff are Certified Tissue Bank Specialists (CTBS) by the AATB or Certified Eye Bank Technicians (CEBT) by the Eye Bank Association of America. CTS staffing includes fulltime and part time tissue procurement specialists. CTS helps tissue banks by providing 24 hour tissue placement services from it''s west coast USA distribution center. CTS has provided cornea and bone tissue placement services nationwide since 1994.

Proper citation: California Transplant Services (RRID:SCR_004788) Copy   

•   Source: SciCrunch Registry

http://www.rtix.com/about/donor-services/

RTI Donor Services is a not-for-profit, American Association of Tissue Banks (AATB) accredited organization, working with organ and tissue agencies to provide responsible stewardship of the gift of donation. By working with RTI Donor Services, you will receive the benefit of the science, safety and innovation of RTI Biologics, Inc. (RTI). While RTI Biologics and RTI Donor Services are separate but affiliated organizations, our missions are symbiotic ����?? both are aimed at improving the lives of others with a focus on maximizing the gift of tissue donation, providing safe tissue implants for recipients, and providing education and support programs to donor families and the donation community. Please visit http://www.rtidonorservices.org/about_rti_donor_services for more information.

Proper citation: RTI Donor Services (RRID:SCR_004895) Copy   

•   Source: SciCrunch Registry

http://www.barthsyndrome.org/english/View.asp?x=1513

The Barth Syndrome Registry and Repository (BRR) at the University of Florida and Children''s Hospital Boston was created to provide additional information about this rare disorder. By collecting information directly from families and abstracting medical information from patient records, we hope to build a large anonymized database that is useful for answering scientific research questions and that is a source of medical information. Additionally, we are collecting blood samples for DNA isolation and storage and for the development of special cell lines. These tools will allow researchers to better understand the cellular and genetic nature of this disease and how these abnormalities may impact the clinical variability of Barth syndrome patients. Currently available data from the Barth Syndrome Registry and Repository includes self-reported data. This includes basic demographics, age at diagnosis of Barth Syndrome, reason for diagnosis, family history; symptoms, presence or absence of a history of cardiomyopathy, history regarding hospitalizations, cardiac transplant or listing for transplant, presence or absence of a history of neutropenia; history of infections, medical therapy and basic developmental history. We are in the process of abstracting medical data to build a more complete medical database and may be able to provide additional data with a specific request. Currently the DNA bank has data from 65 patients, genomic DNA from 50 patients, lymphoblast lines from 41 patients, fibroblast lines from 3 patients, and myocardium/autopsy from 3 patients. However, this is increasing as new patients enroll in the Registry. Please contact us with questions and specific requests about data or specimens.

Proper citation: Barth Syndrome Biorepository (RRID:SCR_004775) Copy   

•   Source: SciCrunch Registry

http://www.broadinstitute.org/cancer/cga/oncotator

A tool for annotating human genomic point mutations and indels with data relevant to cancer researchers. Genomic Annotations, Protein Annotations, and Cancer Annotations are aggregated from many resources. A standalone version of Oncotator is being developed.

Proper citation: Oncotator (RRID:SCR_005183) Copy   

•   Source: SciCrunch Registry

http://lomalindahealth.org/medical-center/our-services/cancer-center/cancer-resource-center/biospecimen-laboratory.html

The Loma Linda University Cancer Center Biospecimen Laboratory provides specimens for researchers as they search for the causes of cancer, and look for new means of prevention and treatment. The specimens include tissues, blood products (blood cell, plasma and serum) and bone marrow cells. Researchers interested in gaining access to the Biospecimen Laboratory''s samples should email Dr. Saied Mirshahidi, requesting access. The number and types of samples we have available for research can be viewed, http://www.llu.edu/catissuesummary/. Use the Biospecimen Laboratory Tissue Request Form to request specimens for research studies.

Proper citation: Loma Linda University Cancer Center Biospecimen Laboratory (RRID:SCR_004767) Copy   

•   Source: SciCrunch Registry

http://autosome.ru/HOCOMOCO/

A comprehensive collection of human transcription factor binding sites models. DNA sequences of TF binding regions obtained by both pregenomic and high-throughput methods were collected from existing databases and other public data. The ChIPMunk software was used to construct positional weight matrices. Four motif discovery strategies were tested based on different motif shape priors including flat and periodic priors associated with DNA helix pitch. A quality rating was manually assigned to each model based on known binding preferences. An appropriate TFBS model was selected for each TF, with similar models selected for related TFs. In any case only one model per TF was selected unless there was additional evidence for two distinct binding models or different stable modes of dimerization. All TFBS models and initial binding segments data used for motif discovery were mapped to UniPROT IDs.

Proper citation: HOCOMOCO (RRID:SCR_005409) Copy   

•   Source: SciCrunch Registry

http://wiringthebrain.blogspot.com/

This blog highlights and comments on current research and hypotheses relating to how the brain wires itself up during development, how the end result can vary in different people and what happens when it goes wrong. It includes discussions of the genetic and neurodevelopmental bases of traits such as intelligence and personality characteristics, as well as of conditions such as schizophrenia, autism, dyslexia, epilepsy, synaesthesia and others.

Proper citation: Wiring the Brain (RRID:SCR_005528) Copy   

•   Source: SciCrunch Registry