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http://www.braintumor.org/

National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors. We aggressively drive strategic research, advocate for public policies that meet the critical needs of the brain tumor community, and provide patient information. Headquartered in Watertown, Massachusetts, with offices in San Francisco, California and Wilmington, Delaware, we host activities throughout the United States. Formed in 2008 by the merger of two leading organizations that had served the brain tumor community, the National Brain Tumor Foundation and the Brain Tumor Society, the National Brain Tumor Society is now the largest brain tumor nonprofit organization in the country. Both legacy organizations had been formed in the 1980s by parents and other people who were committed to increasing both research funding and access to resources specific to brain tumors. In 2010, the Kelly Heinz-Grundner Foundation, a Delaware-based organization, joined NBTS as a wholly-owned subsidiary. Founded in 2005, after the death of Kelly Heinz-Grundner to a brain tumor, the group has contributed to NBTS''s efforts to pursue research and public policies that benefit the brain tumor community. NBTS grant programs are effective for academic researchers, inclusive of industry expertise, and promising for the patient community. All funding is open to both the domestic and international research communities. The Innovation Research Grant Program supports catalytic transformative projects that will significantly move the field forward. These may include out-of-the-box projects or research that is critical to move therapies down the pipeline. Research that represents an incremental advance is not considered innovative. NBTS will accept Innovation Letters of Intent throughout the year. Researchers in academic or industry labs and at all stages of their career may be funded through this program.

Proper citation: National Brain Tumor Society (RRID:SCR_004744) Copy   

•   Source: SciCrunch Registry

http://www.ahif.org/

The Alabama Head Injury Foundation (AHIF) was founded in 1983 to increase public awareness of Traumatic Brain Injury (TBI) and to stimulate the development of supportive services. Today, AHIF is among the largest state brain injury associations in the nation with model programs and statewide services. Its mission is to improve the quality of life for people who have survived traumatic brain injuries and for their families. Whether the injury is mild or severe the life of the injured person and their family is changed forever. The impact can be both emotionally and financially devastating. AHIF provides the information to help clients and families understand the results of injury. AHIF helps access available resources and provides services and programs which meet the unique needs of individuals with traumatic brain injury (TBI) as well as spinal cord injury (SCI) in certain programs.

Proper citation: Alabama Head Injury Foundation (RRID:SCR_004580) Copy   

•   Source: SciCrunch Registry

http://www.floridabraintumor.com/homepage.htm

The mission of the Florida Brain Tumor Association (FBTA) is to provide hope, support and education to brain tumor survivors, their families and friends; to conquer brain tumors by funding research into their causes and cures; and to enrich the quality of life of those touched by brain tumors. In October, 1991, the Florida Brain Tumor Association (formerly South Florida Brain Tumor Association) began due to a desperate need from brain tumor survivors and families who were searching for support and a safe place to share their life changing experiences. Beginning in Boca Raton, Florida, as a grass roots organization and a handful of people, the first support group was conceived. Today, there are many additional FBTA support groups, from coast to coast in the state of Florida. The Florida Brain Tumor Association (FBTA) has become a major force in the brain tumor community. We host many fundraisers yearly, donating funds for research to brain tumor centers. The FBTA has hosted over 20 three day conferences, seminars and meetings, attracting thousands of survivors, families and health care professionals in the United States and Canada. Many of the most renowned physicians in the world travel from far and near to present at FBTA conferences. We are proud and grateful for their commitment and dedication to our cause. The FBTA is a not-for-profit 501(c)(3) organization that is supported by contributions from individuals, corporations, and foundations. We are the only organization of this kind, relying on the strength and dedication of our members, who are brain tumor survivors, family members and friends. Our Medical Advisory Board is also voluntary; we are very thankful to them for their generous gifts of time.

Proper citation: Florida Brain Tumor Association (RRID:SCR_004739) Copy   

•   Source: SciCrunch Registry

http://www.braintumorkids.org/

Established in 1983 in Atlanta, GA, the Brain Tumor Foundation for Children (BTFC) was the first nonprofit organization in the United States to focus on pediatric brain tumor disease. The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors; fund research projects that improve treatment options and search for a cure; and raise public awareness of the disease and advocate on behalf of children who are affected.

Proper citation: Brain Tumor Foundation For Children (RRID:SCR_004735) Copy   

•   Source: SciCrunch Registry

https://bams1.org/ontology/viewer.php

Ontology designed for neuroscience. Includes complete set of concepts that describe parts of rat nervous system, growing set of concepts that describe neuron populations identified in different brain regions, and relationships between concepts.

Proper citation: BAMS Neuroanatomical Ontology (RRID:SCR_004616) Copy   

•   Source: SciCrunch Registry

http://www.polytrauma.va.gov/

A network of specialized rehabilitation programs serving Veterans and Service Members with both combat and civilian related Traumatic Brain Injury (TBI) and polytrauma. Services available include: interdisciplinary evaluation and treatment, development of a comprehensive plan of care, case management, patient and family education and training, psychosocial support, and application of advanced rehabilitation treatments and prosthetic technologies.

Proper citation: VA Polytrauma / TBI System of Care (RRID:SCR_004697) Copy   

•   Source: SciCrunch Registry

http://psychology.wikia.com/wiki/Neuroinformatics

Psychology wiki is an up-to-date, authoritative statement of knowledge, theory, and practice in the whole field of psychology reflecting generally accepted academic standards. A topic covered in this wiki portal includes Neuroinformatics. The Neuroinformatics wiki page currently offers the following categories: overview, history, collaboration with other disciplines, research programs and groups, technologies and developments, references, external links, research centers, and more. Neuroinformatics is a research field that encompasses the development of neuroscience data, knowledge and application of computational models and analytical tools for the integration and analysis of experimental data and for improving existing theories about nervous system and brain. Neuroinformatics provides tools, databases, models, networks technologies and models for the clinical and research purposes in the neuroscience community and other fields.

Proper citation: Psychology Wiki: Neuroinformatics (RRID:SCR_004579) Copy   

•   Source: SciCrunch Registry

http://btan.org/

The Brain Tumor Action Network is a not-for-profit 501(c)(3) organization established to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends. We foster grassroots advocacy on federal and state legislative issues affecting brain tumor survivors, their families and friends by providing information on brain tumor-related public issues and effective advocacy. BTAN has the following goals: * To encourage those living with brain tumors, their families and friends to become advocates for brain tumor awareness. * To foster grassroots advocacy on federal and state legislative issues affecting brain tumor survivors, their families and friends by providing information (and training) on brain tumor related public issues and effective advocacy. * To work independently and in collaboration with other brain tumor related organizations on behalf of the brain tumor community family. * To increase brain tumor awareness nationally through the Hidden Under Our Hats, National Brain Tumor Awareness Project in Washington, DC and at various treatment centers, conferences and fund raisers. * To raise funds to support specific research projects. * To create a PILOT respite care program for brain tumor survivors and their families at Moffitt Cancer Center & Research Institute (Tampa, FL). The respite care fund would assist brain tumor patients and their family members with additional care and support from home health care workers.

Proper citation: Brain Tumor Action Network (RRID:SCR_004733) Copy   

•   Source: SciCrunch Registry

http://chis.wikidot.com/

This site, created and maintained by the Business, Science & Technology Department of the Toronto Public Library, is designed to help you find reliable, understandable health information for you and your family. It can help you access a wide range of health and medical information online, and supports people in gaining greater control over their own health through access to health information. Resources include articles, books, health guides, reading list and websites.

Proper citation: Toronto Public Library Health Information (RRID:SCR_004695) Copy   

•   Source: SciCrunch Registry

http://www.ncbi.nlm.nih.gov/biosystems/

Database that provides access to biological systems and their component genes, proteins, and small molecules, as well as literature describing those biosystems and other related data throughout Entrez. A biosystem, or biological system, is a group of molecules that interact directly or indirectly, where the grouping is relevant to the characterization of living matter. BioSystem records list and categorize components, such as the genes, proteins, and small molecules involved in a biological system. The companion FLink tool, in turn, allows you to input a list of proteins, genes, or small molecules and retrieve a ranked list of biosystems. A number of databases provide diagrams showing the components and products of biological pathways along with corresponding annotations and links to literature. This database was developed as a complementary project to (1) serve as a centralized repository of data; (2) connect the biosystem records with associated literature, molecular, and chemical data throughout the Entrez system; and (3) facilitate computation on biosystems data. The NCBI BioSystems Database currently contains records from several source databases: KEGG, BioCyc (including its Tier 1 EcoCyc and MetaCyc databases, and its Tier 2 databases), Reactome, the National Cancer Institute's Pathway Interaction Database, WikiPathways, and Gene Ontology (GO). It includes several types of records such as pathways, structural complexes, and functional sets, and is desiged to accomodate other record types, such as diseases, as data become available. Through these collaborations, the BioSystems database facilitates access to, and provides the ability to compute on, a wide range of biosystems data. If you are interested in depositing data into the BioSystems database, please contact them.

Proper citation: NCBI BioSystems Database (RRID:SCR_004690) Copy   

•   Source: SciCrunch Registry

http://www.nlmsf.org/

A volunteer, not for profit organization providing leadership in supporting research of LeioMyoSarcoma, improving treatment outcomes of those affected by this disease as well as fostering awareness in the medical community and general public. All dollars go to research and awareness. Leiomyosarcoma is a rare form of cancer, which affects about four people in every million. It spreads through the blood stream and can affect the lungs, liver, blood vessels or any other soft tissue in the body. Presently there is no cure, only remission if it can be attained, and this rare cancer can reappear anywhere and at any time. Because of its rarity, few doctors know how to treat it and it attracts little research. The National LeioMyoSarcoma Foundation hosts several Fundraising events throughout the year.

Proper citation: National LeioMyoSarcoma Foundation (RRID:SCR_004692) Copy   

•   Source: SciCrunch Registry

http://www.ganfyd.org/index.php?title=Main_Page

Simply put ganfyd is an evolving textbook of medicine: a free medical knowledge base that anyone can read and any registered medical practitioner may edit. This collaborative medical reference by medical professionals and invited non-medical experts is based around the wiki format, enabling true sharing of knowledge. Please join and help us to create a great source of information and experience! Ganfyd is the first of its type and relies on your contributions to make it a truly world-class resource. Contents: * Medical Specialties * Surgical Specialties * Primary Care * Public Health * Laboratory-based specialties * Imaging Specialties * Basic Medical Sciences * Miscellaneous * Women''s health * Survival Guides * How-tos & Practical Advice * Resources for Trainees * Computing * Medical Dictionary

Proper citation: Ganfyd - Get A Note From Your Doctor (RRID:SCR_004606) Copy   

•   Source: SciCrunch Registry

http://www.ebi.ac.uk/QuickGO/

A web-based browser for Gene Ontology terms and annotations, which is provided by the UniProtKB-GOA group at the EBI. It is able to offer a range of facilities including bulk downloads of GO annotation data which can be extensively filtered by a range of different parameters and GO slim set generation. The software for QuickGO is freely available under the Apache 2 license. QuickGO can supply GO term information and GO annotation data via REST web services.

Proper citation: QuickGO (RRID:SCR_004608) Copy   

•   Source: SciCrunch Registry

http://purl.bioontology.org/ontology/JERM

An ontology to describe the entities and relationships in the SEEK database, a Systems Biology environment for the sharing and exchange of data and models. The SysMO-SEEK database contains the work of the SysMO consortium (Systems Biology of Micro-Organisms) https://seek.sysmo-db.org/

Proper citation: SysMO JERM Ontology of Systems Biology for Micro-Organisms (RRID:SCR_004569) Copy   

•   Source: SciCrunch Registry

http://www.tbidx.net

Network evaluating consensus-based common data elements (CDE) for traumatic brain injury (TBI) and psychological health (TBI-CDE, www.commondataelements.ninds.nih.gov/TBI.aspx) while extensively phenotyping a cohort of TBI patients across the injury spectrum from concussion to coma. Institutions that participate in the TBI Network will be able to track the outcomes of patients through a 3, 6 and 12-month followup program and compare outcomes with other participating institutions. For the three acute care centers, patients were enrolled that presented to the emergency department within 24 hours of head injury and required computed tomography (CT). For the rehabilitation center, referrals from acute hospitals were enrolled. Patients were consented to participate in components: clinical profile; blood draws for measurement of proteomic and genomic markers; 3T MRI within 2 weeks; three-month Glasgow Outcome Scale-Extended (GOS-E); and six-month TBI-CDE Core outcome assessments. A web-enabled database, imaging repository, and biospecimen bank was developed using the TBI-CDE recommendations. A total of 605 patients were enrolled. Of these subjects, 88% had a GCS 13-15, 5% had a GCS 9-12, and 7% had a GCS of 8 or less. Three-month GOS-E''s were obtained for 78% of the patients. Comprehensive 6-month outcome measures, including PTSD assessment, are ongoing until September 2011. Blood specimens were collected from 450 patients. Initial CTs for 605 patients and 235 patients with 3T MRI studies were transferred to an imaging repository. The TRACK TBI Network will provide qualified institutions access to a web-based version of key forms in tracking TBI outcomes for Quality Improvement and institutional benchmarking.

Proper citation: TRACK TBI Network (RRID:SCR_004723) Copy   

•   Source: SciCrunch Registry

http://scicrunch.org

THIS RESOURCE IS NO LONGER IN SERVICE, documented May 10, 2017. A pilot effort that has developed a centralized, web-based biospecimen locator that presents biospecimens collected and stored at participating Arizona hospitals and biospecimen banks, which are available for acquisition and use by researchers. Researchers may use this site to browse, search and request biospecimens to use in qualified studies. The development of the ABL was guided by the Arizona Biospecimen Consortium (ABC), a consortium of hospitals and medical centers in the Phoenix area, and is now being piloted by this Consortium under the direction of ABRC. You may browse by type (cells, fluid, molecular, tissue) or disease. Common data elements decided by the ABC Standards Committee, based on data elements on the National Cancer Institute''s (NCI''s) Common Biorepository Model (CBM), are displayed. These describe the minimum set of data elements that the NCI determined were most important for a researcher to see about a biospecimen. The ABL currently does not display information on whether or not clinical data is available to accompany the biospecimens. However, a requester has the ability to solicit clinical data in the request. Once a request is approved, the biospecimen provider will contact the requester to discuss the request (and the requester''s questions) before finalizing the invoice and shipment. The ABL is available to the public to browse. In order to request biospecimens from the ABL, the researcher will be required to submit the requested required information. Upon submission of the information, shipment of the requested biospecimen(s) will be dependent on the scientific and institutional review approval. Account required. Registration is open to everyone.. Documented on August 26, 2019,

The National Gene Vector Biorepository offers an informational toxicology database as a resource to gene therapy investigators. The database contains information on animal studies that have been conducted to study the biodistribution of vector to different target organs and to evaluate potential toxic effects associated with the use of various vector systems. Studies within the database have been submitted to the US FDA in support of gene therapy clinical trials. The purpose of the database is to inform gene therapy investigators about the conclusions of prior toxicology studies and to facilitate the cross-referencing of relevant studies in support of new Investigational New Drug Applications (INDs) applications. The studies are generally small, randomized single dose or dose escalation studies consisting of various animal models from mouse to non-human primate. The study parameters capture the test system, vector information, dose procedures, clinical observations, macroscopic/microscopic pathology, histopathology, tissue collection for PCR analysis, clinical pathology: hematology/chemistry analysis and a summary of the relevant findings. Investigators have agreed to allow submission of their data into this database. The database is also accessible to any investigator in the gene therapy field who would like to share their data. The database is being expanded to include non-GLP studies submitted to the FDA in support of an IND. These studies are conducted under careful compliance parameters and can be critical to platform studies in the development of novel vectors.

Proper citation: NGVB Toxicology Database (RRID:SCR_004763) Copy   

•   Source: SciCrunch Registry

http://askdrwiki.com/mediawiki/index.php?title=Physician_Medical_Wiki

A medical, nonprofit, educational wiki created to support a collective online memory for physicians, nurses, and medical students. Users can publish review articles, clinical notes, pearls, and medical images on the site. Anyone with a medical background can contribute to or edit medical articles. Images include: EKG, x-ray, coronary angiograms, peripheral angiograms, structural angiograms, searchable angiograms, echocardiograms, and radiology. Tutorials include: EKG tutorials, coronary angiography tutorials, and ventriculography tutorials.

Proper citation: Ask Dr Wiki (RRID:SCR_004524) Copy   

•   Source: SciCrunch Registry

http://www.pencerbraintrust.com/

The Gerry & Nancy Pencer Brain Trust is a not-for-profit organization with a mandate to make a difference in the quality of life of people living with brain tumors. This registered charity is the primary source of funding for The Gerry & Nancy Pencer Brain Tumor Centre, and carries out annual fundraising events to support its'' ongoing research and patient care activities. The Gerry & Nancy Pencer Brain Tumor Centre is located in Toronto, Canada at the world-renowned Princess Margaret Hospital. The Centre provides multidisciplinary care, treatment, support, and education for brain tumor patients and their families, and promotes brain tumor research in the hopes of one day finding a cure for brain cancer. All of this is made possible through your very generous donations.

Proper citation: Gerry and Nancy Pencer Brain Trust (RRID:SCR_004762) Copy   

•   Source: SciCrunch Registry

http://soybase.org/ontology.php

Controlled vocabulary for soybean field growth stages (Soybean Whole Plant Growth Ontology), plant structure names (Soybean Structure Ontology), development (Soybean Development Ontology) and plant traits (Soybean Trait Ontology). These are only a suggestion. Input from the community will be necessary to update and extend the ontologies. Because of this, these ontologies should also be considered a work in progress. Where applicable, soybean specific terms have been associated with their Plant Ontology (PO) and Gramene Plant Trait Ontology (TO) synonyms to facilitate cross species comparisons. Please feel free to contact them for corrections, additions, and questions.

Proper citation: Soybean Ontologies (RRID:SCR_004514) Copy   

•   Source: SciCrunch Registry

http://www.picsl.upenn.edu/ANTS/

Software package designed to enable researchers with advanced tools for brain and image mapping. Many of the ANTS registration tools are diffeomorphic*, but deformation (elastic and BSpline) transformations are available. Unique components of ANTS include multivariate similarity metrics, landmark guidance, the ability to use label images to guide the mapping and both greedy and space-time optimal implementations of diffeomorphisms. The symmetric normalization (SyN) strategy is a part of the ANTS toolkit as is directly manipulated free form deformation (DMFFD). *Diffeomorphism: a differentiable map with differentiable inverse. In general, these maps are generated by integrating a time-dependent velocity field. ANTS Applications: * Gray matter morphometry based on the jacobian and/or cortical thickness. * Group and single-subject optimal templates. * Multivariate DT + T1 brain templates and group studies. * Longitudinal brain mapping -- special similarity metric options. * Neonatal and pediatric brain segmentation. * Pediatric brain mapping. * T1 brain mapping guided by tractography and connectivity. * Diffusion tensor registration based on scalar or connectivity data. * Brain mapping in the presence of lesions. * Lung and pulmonary tree registration. * User-guided hippocampus labeling, also of sub-fields. * Group studies and statistical analysis of cortical thickness, white matter volume, diffusion tensor-derived metrics such as fractional anisotropy and mean diffusion.

Proper citation: ANTS - Advanced Normalization ToolS (RRID:SCR_004757) Copy   

•   Source: SciCrunch Registry