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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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SCALE - Scandinavian lymphoma etiology Resource Report Resource Website 1+ mentions |
SCALE - Scandinavian lymphoma etiology (RRID:SCR_006041) | KI Biobank - SCALE | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 22, 2016. The original aim of this study was to increase our understanding of the etiology of malignant lymphomas, especially in view of the increasing trend in incidence. Malignant lymphoma (including non-Hodgkin lymphoma, NHL, Hodgkin lymphoma, HL, and chronic lymphocytic leukemia, CLL) constitute a heterogeneous group of malignancies with regard to histology, molecular characteristics and clinical course. Etiological factors may also vary by lymphoma subtype. The incidence of NHL, the most common lymphoma group, has increased dramatically during the past decades in Sweden and in many other Western countries. The reasons for this increase as well as for the majority of all new cases is not well understood. Well established risk factors for lymphoma overall include hereditary and acquired disorders of strong immune dysfunction such as HIV/AIDS and organ transplantation, but they explain few new cases in the population. Approach: Population-based case-control study in Sweden and Denmark. The study includes in total 3740 patients and 3187 controls in both countries recruited during the period October 1999 to October 2002. Through a rapid case ascertainment system, the cases were identified shortly after diagnosis. The controls were randomly selected from national population registers and frequency-matched to the expected number of cases by sex and age group. Both cases and controls were interviewed by telephone based on a standardized questionnaire to obtain detailed information on potential risk factors for lymphoma such as medical history including infectious diseases, drug use and blood transfusions, socio-economic factors and life-style. Blood samples were also collected and stored as serum, plasma, DNA and live lymphocytes. In addition, written questionnaires about dietary habits or work exposures were sent out in Sweden. Tumor material from the cases was re-examined and uniformly classified according to the REAL classification. Status The data collection ended in 2002 and data analysis has been ongoing since then. We have primarily analyzed a range of environmental factors in relation risk of malignant lymphoma subgroups including sun exposure, body mass index, family history of hematopoietic cancer, allergy, autoimmune disorders and mononucleosis. We have also assessed specific genetic determinants in a subgroups of patients with follicular lymphoma and controls. Study results have so far been presented in 14 publications in peer-reviewed journals. In addition to new analyses on other environmental factors, we now also work to understand genetic susceptibility and gene-environmental interaction and risk of lymphoma. Also, prognostic studies have been initiated in collaboration with other research groups with regard to in CLL, HL and T-cell lymphoma. | malignant lymphoma, non-hodgkin lymphoma, hodgkin lymphoma, chronic lymphocytic leukemia, etiology, questionnaire, interview, risk factor, medical history, infectious disease, drug use, blood transfusion, socio-economic factor, life-style, environmental factor, sun exposure, body mass index, family history, hematopoietic cancer, allergy, autoimmune disorder, mononucleosis, follicular lymphoma, control, gene, lymphoma, t-cell lymphoma, genetic, tumor, environment |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Malignant lymphoma, Normal control, Lymphoma | Cancerforeningen ; Swedish Cancer Society ; Danish Cancer Society ; Plan Denmark ; NCI |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151438 | SCR_006041 | Scandinavian lymphoma etiology, SCALE (Scandinavian lymphoma etiology) study | 2026-08-07 09:26:16 | 1 | |||||
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Parkinson's Progression Markers Initiative Resource Report Resource Website 500+ mentions |
Parkinson's Progression Markers Initiative (RRID:SCR_006431) | PPMI | biomaterial supply resource, material resource | An observational longitudinal clinical study partnership to identify and validate biomarkers of Parkinson disease (PD) progression and provide easy and open web-based access to the comprehensive set of correlated clinical data and biospecimens, information, and biosamples acquired from PD and age and gender matched healthy control subjects to the research community. The data and specimens have been collected in a standardized manner under strict protocols and includes clinical (demographic, motor and non-motor, cognitive and neurobehavioral), imaging (raw and processed MRI, SPECT and DAT), and blood chemistry and hematology subject assessments and biospecimen inventories (serum, plasma, whole blood, CSF, DNA, RNA and urine). All data are de-identified to protect patient privacy. PPMI will be carried out over five years at 21 clinical sites in the United States and Europe and requires the participation of 400 Parkinson's patients and 200 control participants. The PPMI database provides researchers with access to correlated clinical and imaging data, along with annotated biospecimens, all available within an open access system that encourages data sharing (http://www.ppmi-info.org/access-data-specimens/). The website hosts an Ongoing Analysis section to keep the scientific community apprised of analyses being completed, in hopes of stimulating collaborations between researchers who are using PPMI data and specimens. | analyze, atlas data, clinical neuroinformatics, computational neuroscience, dicom, imaging genomics, loni pipeline, minc, magnetic resonance, pet, spect, dat, image collection, clinical, biological, imaging data, biomarker, imaging, demographic, motor, cognitive, neurobehavioral, hematology, consortium, biosample, sleep, longitudinal, FASEB list |
is used by: Biomarkers Across Neurodegenerative Diseases is listed by: Consortia-pedia is listed by: One Mind Biospecimen Bank Listing is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is listed by: NIH Data Sharing Repositories is related to: NIH Data Sharing Repositories has parent organization: Laboratory of Neuro Imaging has parent organization: Michael J. Fox Foundation for Parkinsons Research |
Parkinson's disease, Control | Michael J. Fox Foundation for Parkinsons Research ; consortium of industry partners ; non-profit organizations ; private individuals |
Open unspecified license, Application required | nlx_33115 | http://www.nitrc.org/projects/ppmi | SCR_006431 | Parkinson's Progression Markers Initiative | 2026-08-07 09:26:20 | 992 | ||||
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KI Biobank - HARMONY Resource Report Resource Website 1+ mentions |
KI Biobank - HARMONY (RRID:SCR_008884) | HARMONY | biomaterial supply resource, material resource | A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) | interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry is related to: KI Biobank - SATSA has parent organization: Karolisnka Biobank |
Dementia, Alzheimer''''s disease, Discordant twin, Aging | NIH | nlx_151298 | http://ki.se/en/meb/dementia-in-swedish-twins-harmony | SCR_008884 | Dementia in Swedish Twins (HARMONY) | 2026-08-07 09:26:50 | 2 | |||||
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Swedish Twin Registry Resource Report Resource Website 1+ mentions |
Swedish Twin Registry (RRID:SCR_008883) | STR | patient registry, people resource | The Swedish Registry was established in the 1960s to study how smoking affects our health. Then little was known about the dangers of smoking. There is, at present, information on approximately 85 000 twin pairs, both monozygotic and dizygotic. As described by Lichtenstein et al., 2002, Pedersen et al., 2002 and Lichtenstein et al., 2006, the Swedish Twin Registry (STR) is the largest and most comprehensive twin registry in the world. Founded in 1961, the registry covers all like-sexed twin births since 1886, and all twin births (like- and unlike-sexed) since 1906. There are currently 89,000 pairs of twins registered, of which both members of 65,000 pairs are alive, with regular updates concerning vital status, addresses, hospital discharges, tumors, and causes of death, through subscriptions to national registries. Furthermore, there is extensive epidemiological data (exposures, symptoms and disease through questionnaires or interviews) on all pairs born 1986 or earlier, for most individuals involving 30 year baseline to follow-up information. Furthermore, data from the cohort of twins born since 1991 have been or will be contacted with a telephone interview with the parents of twins as they turn 9 (CATSS). Because the STR is an (inter)national resource, we are receptive to collaboration academic and industry-based researchers. Regardless of the type of research all potential collaborations or data access agreements must be first reviewed Steering Committee of the STR. | zygosity, age, sex, education, monozygotic, dizygotic, child, adolescent, adult, tobacco, nicotine, gene, environment |
is used by: KI Biobank - STAR is used by: KI Biobank - SATSA is related to: KI Biobank is related to: KI Biobank - KOL is related to: KI Biobank STAGE-ADHD is related to: KI Biobank - EuroClot is related to: KI Biobank - Economical Behavior is related to: CATSS - Child and Adolescent Twin Study in Sweden is related to: DOGSS is related to: KI Biobank - SALTY is related to: KI Biobank - STAGE is related to: KI Biobank - Parkinson is related to: KI Biobank - HARMONY is related to: Twin Study of Child and Adolescent Development - TCHAD is related to: KI Biobank - TwinGene has parent organization: Karolinska Institute; Stockholm; Sweden |
Twin, Smoking, Aging | Collaboration: Receptive to collaboration academic and industry-based researchers. Regardless of the type of research all potential collaborations or data access agreements must be first reviewed Steering Committee of the STR. | nlx_151292 | http://ki.se/ki/jsp/polopoly.jsp?d=9610&l=en | SCR_008883 | 2026-08-07 09:26:51 | 6 | ||||||
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NUgene Project Resource Report Resource Website 1+ mentions |
NUgene Project (RRID:SCR_007426) | NUgene | biomaterial supply resource, material resource | Collects and stores genetic (DNA) samples along with associated healthcare information from patients of Northwestern-affiliated hospitals and clinics. This resource is available to scientists to conduct groundbreaking genetic research. The information and blood samples provided will be used by researchers to examine the role genes play in the development and treatment of common diseases. The NUgene Project seeks to increase the understanding of genetic mechanisms underlying common diseases, assist in the development of DNA-based technology for diagnosis and treatment of disease, and aid physicians and other healthcare providers in the application of genetics to the practice of medicine. NUgene participants are recruited throughout the Northwestern-affiliated healthcare community in order to create an ethnically and medically diverse population for research. Participants must be 18 years of age or older and receive their medical care from a Northwestern-affiliated provider, regardless of health status. Consenting individuals complete all aspects of enrollment in a single meeting with a research coordinator. The enrollment process includes the donation of a single sample of blood and the completion of a self-administered questionnaire. Participants also sign a consent form during this encounter. The NUgene Project is an interdisciplinary project that relies on the expertise of individuals working in a variety of fields, including science, medicine, clinical research, statistics, epidemiology, and computational biology. NUgene''s multidisciplinary approach has spurred collaborations within Northwestern-affiliated institutions and with other outside institutions. This collaboration of ideas is the future of genetics and genomic research., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | human, clinical, gene, gene bank, genetic, genomic, translational, medicine, genetic assessment, dna, genomic research, blood, self-administered questionnaire, questionnaire |
is listed by: One Mind Biospecimen Bank Listing is related to: DOAF is related to: Human Disease Ontology has parent organization: Northwestern University; Illinois; USA |
THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00537 | SCR_007426 | 2026-08-07 09:26:38 | 6 | ||||||||
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KI Biobank - EXT Resource Report Resource Website |
KI Biobank - EXT (RRID:SCR_008875) | KI Biobank - EXT | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. The aim of EXT (extinction) is to investigate the relation between specific genetic variations and cognitive control process in fear. Blood samples will be collected from about 300 healthy, young individuals (age 18-35). | genetic variation, cognitive control, fear, healthy, early adult, gene |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Healthy, Aging | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_149601 | SCR_008875 | KI Biobank - Extinction | 2026-08-07 09:26:50 | 0 | ||||||
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CHARTER - CNS HIV Antiretroviral Therapy Effects Research Resource Report Resource Website 1+ mentions |
CHARTER - CNS HIV Antiretroviral Therapy Effects Research (RRID:SCR_008070) | CHARTER | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented April 14, 2017. Clinical trial designed to determine how central and peripheral nervous system complications of HIV are affected by different histories and regimens of antiretroviral therapy (ART). CHARTER is able to provide fluid specimens, pilot data, and analysis and interpretation expertise for qualified investigators. | bodily fluid, human immunodeficiency virus, human immunodeficiency virus seropositive, antiretroviral, antiviral therapy, proton spectroscopy, viral genetic analyses, neuroimaging, mr spectroscopy |
is listed by: One Mind Biospecimen Bank Listing is related to: National NeuroAIDS Tissue Consortium has parent organization: University of California at San Diego; California; USA |
Human immunodeficiency virus, Human immunodeficiency virus seropositive | NIMH/NINDS award HHS-N-271-2010-00036C; NIMH/NINDS award HHSN271201000030C |
THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-10520 | https://charternntc.org | https://www.charterresource.ucsd.edu/ | SCR_008070 | CNS HIV Anti-Retroviral Therapy Effects Research | 2026-08-07 09:26:39 | 1 | |||
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SHEEP - Stockholm Heart Epidemiology Program Resource Report Resource Website 1+ mentions |
SHEEP - Stockholm Heart Epidemiology Program (RRID:SCR_008905) | KI Biobank - SHEEP | biomaterial supply resource, material resource | DNA from a population-based case-control study designed to investigate causes of myocardial infarction. The study population comprised all Swedish citizens living in the county of Stockholm who were 45 to 70 years of age and free of previously clinically diagnosed MI. Sample types: * DNA Number of sample donors: 2831 (sample collection completed) | heart, epidemiology, cardiac disease, middle adult human, late adult human, aging |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Myocardial infarction, Normal, Aging | nlx_151444 | http://ki.se/ki/jsp/polopoly.jsp?d=29346&a=31574&l=en | SCR_008905 | Stockholm Heart Epidemiology Program | 2026-08-07 09:26:50 | 2 | ||||||
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National Long Term Care Survey Resource Report Resource Website |
National Long Term Care Survey (RRID:SCR_008943) | NLTCS | biomaterial supply resource, material resource | A data set of a longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). It also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for caregiving. The survey began in 1982, and follow-up surveys were conducted in 1984, 1989, 1994, 1999, and 2004. The surveys are of the entire Medicare-enrolled aged population with a particular emphasis on the functionally impaired. As sample persons are followed through the Medicare record system, virtually 100% of cases can be longitudinally tracked so that declines, as well as increases, in disability may be identified as well as exact dates of death. NLTCS sample persons are followed until death and are permanently and continuously linked to the Medicare record system from which they are drawn. Linkage to the Medicare Part A and B service use records extends from 1982 to 2004, so that detailed Medicare expenditures and types of service use may be studied. Through the careful application of methods to reduce non-sampling error, the surveys provide nationally representative data on: * The prevalence and patterns of functional limitations, both physical and cognitive; * Longitudinal and cohort patterns of change in functional limitation and mortality over 22 years; * Medical conditions and recent medical problems; * Health care services used; * The kind and amount of formal and informal services received by impaired individuals and how it is paid for; * Demographic and economic characteristics like age, race, sex, marital status, education, and income and assets; * Out-of-pocket expenditures for health care services and other sources of payment; * Housing and neighborhood characteristics. In each of the six surveys, large samples (N~20,000) of the oldest-old population (i.e., those 85 and over) are obtained. The survey data (i.e., detailed community and institutional interviews. The linkage to Medicare enrollment files between 1982 and 2004 was 100%, i.e., there was complete follow-up of all cases (including survey non-respondents) for Medicare eligibility (and for most years, detailed Part A and B use), mortality, and date of death. Medicare mortality records (and dates of death) are available for 1982 to 2005. The number of deaths (i.e., about 32,000 from 1982 to 2005) is large enough that detailed mortality analyses can be done. Over the 22 years spanned by the six surveys, a total of 49,242 distinct individuals were followed from and linked to Medicare records. Data Availability: The data are available through ICPSR as Study No. 9681. The data are available only on CD-ROM and only upon completion of a signed Data Use Agreement. Continuously linked Medicare data (1982 through 2004) for the National Long Term Care Surveys are only available from CMS. * Dates of Study: 1982-2004 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1982: 20,485 ** 1984: 25,401 ** 1989: 17,565 ** 1994: 19,171 ** 1999: 19,907 ** 2004: 20,474 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09681 | longitudinal, survey, late adult human, interview, medicare, questionnaire, disabled, non-disabled, community, institution, disability, medical condition, education, income, blood, buccal wash, activity, caregiver, diet, family relations, health care service, health services utilization, health status, life satisfaction, live expectancy, living arrangement, marriage, perception, quality of life, apoe, sod2, physical, cognitive, functional limitation, mortality, demographic, economic, race, marital status, asset, payment, housing, neighborhood |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Duke University; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, Functionally impaired, Late adult human, Non-disabled | NIA N2 U01 AG0007198 | Public, Data use agreement required. | nlx_151860 | http://dx.doi.org/10.3886/ICPSR09681.v5 | SCR_008943 | NLTCS: National Long-Term Care Survey, National Long Term Care Survey (NLTCS), National Long-Term Care Survey | 2026-08-07 09:26:53 | 0 | ||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | biomaterial supply resource, material resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-08-07 09:26:48 | 0 | |||||
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Iowa 65+ Rural Health Study Resource Report Resource Website 1+ mentions |
Iowa 65+ Rural Health Study (RRID:SCR_008937) | Iowa 65+ Rural Health Study | biomaterial supply resource, material resource | A data set and sister study to the Established Populations for Epidemiologic Study of the Elderly (EPESE). It complements the findings of the three other EPESE sites (East Boston, MA; New Haven, CT; and north-central North Carolina) and has common items and methods in many domains. The target population was all persons 65 years and older in two rural counties in east central Iowa: Iowa and Washington counties. In 1981 a census of older persons in the target area was conducted by the investigators, creating an ascertainment list having 99% of the persons identified in the previous year by the US Decennial Census. The baseline survey was conducted between December 1991 and August 1992. Overall, 3,673 persons, or 80% of the target population were interviewed: 65-69 (N = 986), 70-74 (N = 988), 75-79 (N = 815), 80-84 (N = 523), and 85+ (N = 361). The population is virtually entirely Caucasian. Subsequently, personal follow-up surveys were conducted 3, 6, and 10 years after the baseline survey. Telephone surveys were conducted 1, 2, 4, 5, and 7 years after the baseline survey. Data collected from respondents included information about demographics, major health conditions, health care utilization, hearing and vision, weight and height, elements of nutrition, sleep problems, depressive and anxiety symptoms, alcohol and tobacco use, cognitive performance and dementia screening, incontinence measures, life satisfaction index, social networks and support, worries, medication use, activities of daily living, dental problems, satisfaction with medical care, life events, brief economic status, automobile driving habits, multiple measures of physical and disability status, and blood pressure. At follow-up #6, there were a series of physical function performance tests, the so-called NIA-MacArthur Battery, and blood was drawn for biochemical tests and potentially other determinations. In addition, some datasets were linked to the EPESE dataset under appropriate restrictions, including Iowa state driving records and clinical diagnoses and medical care utilization from the Centers for Medicare and Medicaid Services. Data Availability: The dataset has been shared with several investigative teams under special arrangement with the Principal Investigator. Early surveys are available from ICPSR. A small storage of blood is available for exploratory analyses. * Dates of Study: 1991-2001 * Study Features: Longitudinal, Anthropometric Measures, Biomarkers * Sample Size: 1991-2: 3,673 (baseline) Link: EPESE 1981-93 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09915 | blood, mortality, hospitalization, chronic disease, late adult human, longitudinal, anthropometry, biomarker, survey, caucasian, demographics, health, health care, hearing, vision, weight, height, nutrition, sleep, depression, anxiety, alcohol use, tobacco use, cognition, dementia, incontinence, social, medication use, activity, dental, satisfaction, medical care, economic status, driving, physical, disability, blood pressure, interview |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Established Populations for Epidemiologic Studies of the Elderly |
Aging | NIA | Public | nlx_151838 | SCR_008937 | Iowa 65 and over Rural Health Study, Iowa 65 Plus Rural Health Study | 2026-08-07 09:26:50 | 3 | |||||
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Vietnam Era Twin Registry Biospecimen Repository Resource Report Resource Website |
Vietnam Era Twin Registry Biospecimen Repository (RRID:SCR_008808) | VET Registry Biospecimen Repository | biomaterial supply resource, material resource | The Vietnam Era Twin (VET) Registry maintains a repository of biological specimens obtained from Registry members. The VET Registry Biospecimen Repository includes DNA, plasma, and serum samples obtained from selected VET Registry members. As the VET Registry is a national resource for studies investigating genetic and non-genetic influences on health and disease in middle age men, this enhances the value of the information collected from VET Registry members to the research community. The VET Registry has developed a general system of protocols for the collection and storage of biological specimens that assures confidentiality for all participants. The biological specimens currently in use are stored at the R&D Core Laboratory at the VA Puget Sound Health Care System (VAPSHCS) in Seattle, WA. The R&D Core Laboratory performs DNA extraction procedures and separates out DNA, plasma, and serum for testing and storage. It is important to note that Core Laboratory staff has absolutely no phenotypic (non-genetic) information about VET Registry members, as the lab is completely blinded to the identity, disease characteristics, and any other research data collected from VET Registry members. The Massachusetts Veterans Epidemiology Research and Information Center (MAVERIC) Core Laboratory is located at the VA Boston Health Care System in Boston, MA, and serves as the long-term storage site for the VET Registry Biospecimen Repository. Before a VET Registry member decides whether to participate in the Biospecimen Repository, the procedures, confidentiality safeguards, and potential risks are explained in great detail. To be able to accommodate the wishes of members, a so-called layered consent process is used which allows members to choose from several options with regard to how their biological specimen will be used in current or future research studies. Such options may include: 1) not having their samples used for any testing beyond the immediate goals of the study; 2) allowing for future testing of their samples restricted to the study for which they provided the sample; or 3) allowing unrestricted future research use of their samples. Members are informed that any future use of their samples would have to be approved by the VET Registry, in addition to an independent ethics committee that protects the rights and welfare of research subjects, this board is more commonly known as an Institutional Review Board or IRB. Confidentiality safeguards include assigning code numbers, as opposed to name or other personal information, on all biological specimens. Zygosity Testing The accuracy of DNA testing makes it the best method for determining zygosity, identical (monozygotic) versus fraternal (non-identical or dizygotic), in VET Registry twin members. The use of DNA for zygosity testing is only performed when both members of a twin pair agree to the testing. Other Genetic Testing for specific genes will not necessarily involve providing the participants with test results. | twin, male, adult, dna, plasma, serum, gene, genetic, health, disease, vietnam veteran |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Vietnam Era Twin Registry |
Vietnam Era Twin Registry member (Vietnam War and Twin), Aging | Collaborators (members of the cohort)?: As the VET Registry is a national resource for studies investigating genetic and non-genetic influences on health and disease in middle age men, This enhances the value of the information collected from VET Registry members to the research community. | nlx_144390 | SCR_008808 | 2026-08-07 09:26:48 | 0 | |||||||
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Framingham Heart Study Resource Report Resource Website 100+ mentions |
Framingham Heart Study (RRID:SCR_008963) | FHS | biomaterial supply resource, material resource | A longitudinal, epidemiologic study to identify the common risk factors or characteristics that contribute to cardiovascular disease by following its development over a long period of time in a large group of participants who had not yet developed overt symptoms or suffered a heart attack or stroke. Since that time the FHS has studied three generations of participants resulting in biological specimens and data from nearly 15,000 participants. Since 1994, two groups from minority populations, including related individuals have been added to the FHS. FHS welcomes proposals from outside investigators for data and biospecimens. The researchers recruited 5,209 men and women between the ages of 30 and 62 from the town of Framingham, Massachusetts, and began the first round of extensive physical examinations and lifestyle interviews that they would later analyze for common patterns related to CVD development. Since 1948, the subjects have continued to return to the study every two years for a detailed medical history, physical examination, and laboratory tests, and in 1971, the Study enrolled a second generation - 5,124 of the original participants'''' adult children and their spouses - to participate in similar examinations. In 1994, the need to establish a new study reflecting a more diverse community of Framingham was recognized, and the first Omni cohort of the Framingham Heart Study was enrolled. In April 2002 the Study entered a new phase, the enrollment of a third generation of participants, the grandchildren of the Original Cohort. In 2003, a second group of Omni participants was enrolled. Over the years, careful monitoring of the Framingham Study population has led to the identification of major CVD risk factors, as well as valuable information on the effects of these factors such as blood pressure, blood triglyceride and cholesterol levels, age, gender, and psychosocial issues. Risk factors for other physiological conditions such as dementia have been and continue to be investigated. In addition, the relationships between physical traits and genetic patterns are being studied. FHS clinical and research data is stored in the dbGaP and NHLBI Repository repositories and may be accessed by application. Please check the following repositories before applying for data through FHS. Investigators seeking data that is not available through dbGaP or BioLINCC or seeking biological specimens may submit a proposal through the FHS web-based research application. The FHS data repository may be accessed through this FHS website, under the For Researchers link, then Description of Data, in order to determine if and how the desired data is stored. Proposals may involve the use of existing data, the collection of new data, either directly from participants or from previously collected samples, images, or other materials (e.g., medical records). The FHS Repository also has biological specimens available for genetic and non-genetic research proposals. Specimens include urine, blood and blood products, as well as DNA. | clinical study, longitudinal study, heart, cardiac, adult human, male, female, risk factor, blood pressure, blood triglyceride, cholesterol level, age, gender, psychosocial, dementia, physical trait, genetic trait, minority, clinical, genotype, phenotype, urine, blood, blood product, dna, FASEB list |
is listed by: One Mind Biospecimen Bank Listing is related to: NCBI database of Genotypes and Phenotypes (dbGap) is related to: Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC) has parent organization: Boston University; Massachusetts; USA |
Cardiovascular disease, Normal, Aging | NHLBI Division of Prevention and Population Sciences | Public / Collaboration preferred: FHS welcomes proposals from outside investigators. Collaboration with FHS investigators is encouraged as it helps to maximize the scientific potential of the unique data. | nlx_151991 | SCR_008963 | 2026-08-07 09:26:53 | 164 | ||||||
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Bioserve Global BioRepository Resource Report Resource Website 1+ mentions |
Bioserve Global BioRepository (RRID:SCR_008713) | biomaterial supply resource, material resource | A biomaterial supply resource containing over 600,000 samples of human tissue, serum, DNA, and RNA. Samples are handled consistently according to validated protocols and each tissue sample comes with detailed demographic information, gold standard clinical diagnostic information, complete drug history, full pathology reports, and complete phenotypic data. | biomaterial supply resource, human tissue, human serum, human DNA, human RNA |
is listed by: One Mind Biospecimen Bank Listing is listed by: Multiple Sclerosis Discovery Forum |
Available for purchase, Available for the research and education community, Available for commercial use | nlx_12720 | SCR_008713 | BioServe, BioServe Human Samples | 2026-08-07 09:26:48 | 8 | ||||||||
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National Social Life Health and Aging Project (NSHAP) Resource Report Resource Website 1+ mentions |
National Social Life Health and Aging Project (NSHAP) (RRID:SCR_008950) | NSHAP | biomaterial supply resource, material resource | A longitudinal, population-based study of health and social factors, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health and illness, medication use, cognitive function, emotional health, sensory function, health behaviors, social connectedness, sexuality, and relationship quality. NSHAP provides policy makers, health providers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The study contributes to finding new ways to improve health as people age. In 2005 and 2006, NORC and Principal Investigators at the University of Chicago conducted the first wave of NSHAP, completing more than 3,000 interviews with a nationally representative sample of adults aged 57 to 85. In 2010 and 2011, nearly 3,400 interviews were completed for Wave 2 with these Wave 1 Respondents, Wave 1 Non-Interviewed Respondents, and their spouses or cohabiting romantic partners. The second wave of NSHAP is essential to understanding how social and biological characteristics change. NSHAP, by eliciting a variety of information from respondents over time, provides data that will allow researchers in a number of fields to examine how specific factors may or may not affect each other across the life course. For both waves, data collection included three measurements: in-home interviews, biomeasures, and leave-behind respondent-administered questionnaires. The face-to-face interviews and biomeasure collection took place in respondents'''' homes. NSHAP uses a national area probability sample of community residing adults born between 1920 and 1947 (aged 57 to 85 at the time of the Wave 1 interview), which includes an oversampling of African-Americans and Hispanics. The NSHAP sample is built on the foundation of the national household screening carried out by the Health and Retirement Study (HRS) in 2004. Through a collaborative agreement, HRS identified households for the NSHAP eligible population. A sample of 4,400 people was selected from the screened households. NSHAP made one selection per household. Ninety-two percent of the persons selected for the NSHAP interview were eligible. For Wave 2 in 2010 and 2011, NSHAP returned to Wave 1 Respondents and eligible non-interviewed respondents from Wave 1 (Wave 1 Non-Interviewed Respondents). NSHAP also extended the Wave 2 sample to include the cohabiting spouses and romantic partners of Wave 1 Respondents and Wave 1 Non-Interviewed Respondents. Partners were considered to be eligible to participate in NSHAP if they resided in the household with the Wave 1 Respondent/Wave 1 Non-Interviewed Respondent at the time of the Wave 2 interview and were at least 18 years of age. Wave I biomeasures: height; weight; waist circumference; blood pressure; smell; taste; vision; touch; respondent-administered vaginal swabs; oral mucosal transudate (OMT) for HIV-1 antibody screening; saliva; ����??get up and go����??; and blood spots. Technological advances in biomeasure collection methods have decreased respondent burden and increased ease of collection, storage, and yield of various biomeasures for the second wave of NSHAP. Wave II biomeasures: anthropometrics, including height, hip and waist circumference, and weight; cardiovascular function, including blood pressure, heart rate variability, and pulse; 2 of the 3 components of the short physical performance battery (SPPB) including chair stands and a timed walk; sensory function including smell; and actigraphy. In addition, we collect dried blood spots, microtainer blood, passive drool and salivettes, urine, and respondent-administered vaginal swabs, each of which are analyzed using multiple assays for a variety of measures and rationales. Furthermore, we assess respondents����?? cognition using the Montreal Cognitive Assessment (MoCA). Data Availability: NSHAP data made available to the public does not contain any identifiable respondent information and uses code numbers instead of names for all data. De-identified data from the 2005 and 2006 interviews are available to researchers through the National Archive of Computerized Data on Aging, located within Inter-University Consortium for Political and Social Research (ICPSR). Data from the Wave 2 interviews in 2010 and 2011 will be available in the summer of 2012. * Dates of Study: 2005-2006, 2010-2011 * Study Features: Biospecimens, Anthropometric Measures * Sample Size: ** Wave 1: 3,005 ** Wave 2: 3,377 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/20541 | social life, health, man, woman, late adult human, middle adult human, longitudinal, social support, personal relationship, social, physical health, illness, cognitive function, emotional health, sensory function, social connectedness, sexuality, relationship quality, intimate relationship, biospecimen, anthropometric measure, interview, biomeasure, questionnaire, african-american, hispanic, minority, marriage, anxiety, attitude, body height, body weight, doctor visit, drug, ethnicity, family size, health attitude, health problem, health services utilization, health status, intimate partner, life satisfaction, medical evaluation, medical procedure, medication, menopause, mental health, morbidity, nutrition, quality of life, sexual activity, cohabitation, social network, demographic, prevention, cognition, well-being, survey, sleep, actigraphy, healthy aging, vaginal swab, blood spot, saliva, blood, urine |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Biomarker Network has parent organization: University of Chicago; Illinois; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging | Office of Research on Women's Health ; Office of AIDS Research ; National Opinion Research Center ; NIA R01-AG021487; NIA R37-AG030481; NIA R01-AG033903 |
PMID:19837963 | Public: Users must request and complete the NSHAP Restricted Data Use Agreement form. | nlx_151867 | http://gero.usc.edu/CBPH/network/resources/studies/nshap.shtml | SCR_008950 | National Social Life Health and Aging Project | 2026-08-07 09:26:51 | 6 | |||
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Penn Hippocampus Atlas Resource Report Resource Website 1+ mentions |
Penn Hippocampus Atlas (RRID:SCR_000421) | Penn Hippocampus Atlas | atlas, data or information resource | Atlas of segmented and normalized high-resolution postmortem MRI of the human hippocampus. Additional data (raw images) is available through the SCM link. It requires knowing how to use CVS. | magnetic resonance, nifti, hippocampus, mri, postmortem |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: University of Pennsylvania; Philadelphia; USA |
NIA AG027785; NINDS NS061111; NINDS NS058386; NINDS NS045839 |
PMID:18840532 | Free, Available for download, Freely available | nlx_155920 | SCR_000421 | 2026-08-07 09:25:00 | 2 | ||||||
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CCLG Tissue Bank Resource Report Resource Website |
CCLG Tissue Bank (RRID:SCR_000524) | CCLG Tissue Bank | biomaterial supply resource, material resource, tissue bank | Tissue bank that provides access to tissue samples and an anonymized version of the tissue bank database.Bank has large collection of tumour, DNA and other tissue samples from childhood cancer patients. | cancer, tissue, tumor, database, sample, dna, biomaterial supply resource |
is listed by: One Mind Biospecimen Bank Listing has parent organization: CCLG has parent organization: University of Leicester; Leicester; United Kingdom |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_51003 | http://www.cclg.org.uk/index.php, http://www.cclg.org.uk/treatmentandresearch/content.php?2id=18 | SCR_000524 | Children's Cancer and Leukemia Group Tissue Bank, Children's Cancer and Leukaemia Group Tissue Bank | 2026-08-07 09:25:01 | 0 | ||||||
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Emory ADRC Tissue and Biospecimen Banking Facility Resource Report Resource Website |
Emory ADRC Tissue and Biospecimen Banking Facility (RRID:SCR_000551) | biomaterial supply resource, material resource, tissue bank | The Alzheimer's Disease Research Center at Emery University maintains an active brain bank to facilitate the acquisition, storage, handling and distribution of well-characterized autopsy brain tissue and other materials to investigators. It contains frozen tissue and brain specimens, formalin fixed tissue, paraformaldehyde fixed tissue, and cryopreserved tissue. The ADRC also has access to tissues and samples related to other neurodegenerative diseases. It contains plasma samples, serum samples, lymphoblast cell lines, and cerebrospinal fluid. | brain bank, biomaterial supply resource, brain tissue, plasma, cerebral spinal fluid, serum, lymphoblast cell line, buffy coat isolate, buffy coat, frozen, paraffin block, paraformaldehyde-fixed, cryopreserved, alzheimer's disease, parkinson's disease, neurodegenerative disease, tauopathy, huntington's disease, normal control |
is listed by: One Mind Biospecimen Bank Listing is affiliated with: Emory Alzheimer's Disease Research Center is related to: Emory Neurology Database has parent organization: Emory University School of Medicine; Atlanta; Georgia; USA |
Alzheimer's disease, Parkinson's disease, Neurodegenerative disease, Tauopathy, Huntington's disease, Creutzfeldt-Jakob Syndrome, Dementia, Movement disorder, Sleep disorder, Stroke, Neuromuscular disease, Nervous system disease, Amyotrophic Lateral Sclerosis, Restless Leg Syndrome | NINDS P30 NS055077 | Public, Investigators must notify the ADRC of data use, Investigators must send a final copy of any accepted manuscript that used data or recruited research participations from the ADRC, Grant acknowledgement required, Institution acknowledgement required | nlx_144036 | SCR_000551 | Emory Tissue and Biospecimen Banking Facilities, Emory Tissue & Biospecimen Banking Facility, Emory ADRC Tissue & Biospecimen Banking Facility | 2026-08-07 09:25:02 | 0 | ||||||
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Kymata Atlas Resource Report Resource Website 1+ mentions |
Kymata Atlas (RRID:SCR_000269) | atlas, data or information resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 31,2025. An online atlas of neural function, maintained by Cambridge University and the MRC Cognition and Brain Sciences Unit (CBSU). | data visualization software, database, adult human, brain, function, computational model, sensory information, post-synaptic dendritic current |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: University of Cambridge; Cambridge; United Kingdom has parent organization: MRC Cognition and Brain Sciences Unit |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_158115 | http://www.nitrc.org/projects/kymata_atlas | SCR_000269 | 2026-08-07 09:24:58 | 1 | ||||||||
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AxoGen Resource Report Resource Website |
AxoGen (RRID:SCR_000326) | biomaterial supply resource, material resource, tissue bank | A medical technology company whose research and products revolve around peripheral nerve repair. | commercial, peripheral nerve repair, nerve repair, nerve repair technology, nerve injury, nerve, regenerative medicine, porcine submucosa extracellular matrix | Commercial | nlx_47454 | SCR_000326 | 2026-08-07 09:24:59 | 0 |
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