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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | ||||||||||||||
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Second Malaysian Family Life Survey Resource Report Resource Website |
Second Malaysian Family Life Survey (RRID:SCR_008892) | MFLS-2 | data or information resource, data set | A follow-up of the 1976-1977 MFLS-1 dataset covering the respondents'' and spouses'' marriage, fertility, employment, education and migration histories as well as extensive information on the household economy. The MFLS-2 contains a supplementary sample of persons age 50 or older. The data permit analysis of intergenerational transfers to the elderly and their covariates; the living arrangements of the elderly; the health of the elderly; labor supply, occupation and retirement status of the elderly; and their migration patterns. This supplement fills the gap left by many standard sources of demographic and economic information about Third World populations, such as fertility surveys and labor force surveys, which effectively exclude the elderly. Field work for MFLS-2 began in Aug. 1988 and was completed in Jan. 1989. The survey was fielded in four samples: * The Panel Sample Women who were the primary respondents to the MFLS-1, who at that time (1976) were ever-married women aged 50 or younger. There are 926 panel households in MFLS-2, a follow-up rate of 72%. * The Children Sample Children aged 18 or older in 1988 of the women interviewed as primary respondents for MFLS-1; i.e. adult children of the women eligible for the MFLS-2 Panel sample. There were interviews with one child, selected at random, inside the Panel household and two children, selected at random, living elsewhere in Peninsular Malaysia. There are 1,136 respondents in the Children sample. * The New Sample A sample of households with a woman aged 18-49 (regardless of her marital status) or an ever-married woman under age 18. There are 2,184 respondents in MFLS-2 New Sample. * The Senior Sample Selected households with a person age 50 or over. There are 1,357 respondents in the Senior Sample. Data Availability: The MFLS-2 (and MFLS-1) data files and documentation are available on-line or from NACDA at ICPSR as Study No. 9805. * Dates of Study: 1988-1989 * Study Features: International * Sample Size: Seniors (aged 50+): 1,357 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09805 | late adult human, middle adult human, fertility, nuptiality, migration, mortality, social, economic, family, household, behavior, interview, community, employment, health, income, marriage, mortality rate, reproductive history, social change, social network, male, female, adult, malaysia, survey, living arrangement, labor supply, occupation, retirement, early adult human, married, woman, senior, adolescent |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, Etc | NIA ; NICHD |
Public | nlx_151852 | SCR_008892 | SciCrunch Registry | Second Malaysian Family Life Survey (MFLS-2) | 2026-11-07 12:04:46 | 0 | |||||
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National Longitudinal Survey of Older Men Resource Report Resource Website 1+ mentions |
National Longitudinal Survey of Older Men (RRID:SCR_008947) | NLS Older Men, | data or information resource, data set | A dataset that permits examination of health, economic, work, and retirement trajectories for a representative national sample of men from middle to old age. The original sample of 5,020 men, first interviewed in 1966, was re-interviewed periodically until 1983 under a contract with the US Department of Labor. The study provided a detailed longitudinal record of their labor market activity, health, financial status, family structure, and attitudes toward and experience in retirement. The NIA grant made possible a re-interview in 1990 with the surviving men and the widows (or other next-of-kin) of the decedents. The merging of the 1990 data includes death certificate information for the decedents, Blacks were over-represented in the original sample in a ratio of about three or four to one, resulting in about 500 surviving black men in the sample. Information on labor market activity, income, and assets also is available for a sample of about 1,350 widows, 90 percent of whom are between 60 and 89 years of age. This information can be linked to earlier data on the women''s health and work activity that was reported by their late husbands. Due to the original sample selection, other NLS cohorts contain wives and daughters of the older men. These other surveys also hold a wealth of detailed information on aging and retirement issues, especially on income transfers. * Dates of Study: 1966-1990 * Study Features: Longitudinal, Minority Oversamples * Sample Size: ** 1966: 5,020 men (baseline) ** 1990: 2,092 surviving men, 1,341 widows, 865 other next-of-kin Links: * BLS Website on NLS: http://www.bls.gov/nls/ * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04675 | middle adult human, late adult human, labor, longitudinal, minority, retirement, compensation, education, educational program, employment, employment discrimination, earned degree, finance, asset, health, health care, health problem, higher education, health insurance, industry, job description, job tenure, job training, leisure, military service, occupation, pension, psychological well-being, retirement planning, unemployment, union membership, vocational education, volunteer, work attitude, working hour, male, man, interview, questionnaire, financial status, family structure, death certificate, african-american, death, widow, daughter, female, income transfer, survey, labor market, discrimination, training, alcohol use, cigarette use, demographic, family |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Ohio State University; Ohio; USA |
Aging | NIA ; U.S. Department of Labor |
Publicly available to the research community | nlx_151863 | SCR_008947 | SciCrunch Registry | National Longitudinal Survey: 1990 Resurvey of Older Males, National Longitudinal Survey: 1990 Resurvey of Older Males (NLS-Older Males), NLS-Older Males, National Longitudinal Surveys of Older Men | 2026-11-07 12:04:19 | 5 | |||||
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NKI/Rockland Sample Resource Report Resource Website 10+ mentions |
NKI/Rockland Sample (RRID:SCR_009435) | data or information resource, data set | A phenotypically rich neuroimaging sample, consisting of data obtained from individuals between the ages of 4 and 85 years-old. All individuals included in the sample undergo semi-structured diagnostic psychiatric interviews, and complete a battery of psychiatric, cognitive and behavioral assessments in order to provide comprehensive phenotypic information for the purpose of exploring brain / behavior relationships. | image collection, young human, late adult human, neuroimaging, phenotype, fmri, dti, mprage, t2, psychiatric assessment, cognitive assessment, behavioral assessment, resting state fmri, dicom, nifti |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: Rockland Download Link Script is related to: NKI-RS Multiband Imaging Test-Retest Pilot Dataset is related to: NKI-RS Enhanced Sample has parent organization: 1000 Functional Connectomes Project |
Aging | New York State Office of Mental Health and Research Foundation for Mental Hygiene ; NKI Center for Advanced Brain Imaging CABI ; the Brain Research Foundation Chicago ; the Stavros Niarchos Foundation ; NIMH P50 MH086385-S1 |
Creative Commons Attribution-NonCommercial License | nlx_155538 | http://www.nitrc.org/projects/dl_dataset | SCR_009435 | SciCrunch Registry | Nathan Kline Institute / Rockland Sample, NKI Rockland Sample, Nathan Kline Institute (NKI) / Rockland Sample | 2026-11-07 12:04:32 | 17 | |||||
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Panel Study of Income Dynamics Resource Report Resource Website 10+ mentions |
Panel Study of Income Dynamics (RRID:SCR_008976) | PSID | data or information resource, data set | Long-term longitudinal dataset with information on generational links and socioeconomic and health conditions of individuals over time. The central foci of the data are economic and demographic, with substantial detail on income sources and amounts, wealth, savings, employment, pensions, family composition changes, childbirth and marriage histories, and residential location. Over the life of the PSID, the NIA has funded supplements on wealth, health, parental health and long term care, housing, and the financial impact of illness, thus also making it possible to model retirement and residential mobility. Starting in 1999, much greater detail on specific health conditions and health care expenses is included for respondent and spouse. Other enhancements have included a question series about emotional distress (2001); the two stem questions from the Composite International Diagnostic Interview to assess symptoms of major depression (2003); a supplement on philanthropic giving and volunteering (2001-03); a question series on Internet and computer use (2003); linkage to the National Death Index with cause of death information for more than 4,000 individuals through the 1997 wave, updated for each subsequent wave; social and family history variables and GIS-linked environmental data; basic data on pension plans; event history calendar methodology to facilitate recall of employment spells (2001). The reporting unit is the family: single person living alone or sharing a household with other non-relatives; group of people related by blood, marriage, or adoption; unmarried couple living together in what appears to be a fairly permanent arrangement. Interviews were conducted annually from 1968 through 1997; biennial interviewing began in 1999. There is an oversample of Blacks (30%). Waves 1990 through 1995 included a 20% Hispanic oversample; within the Hispanic oversample, Cubans and Puerto Ricans were oversampled relative to Mexicans. All data from 1994 through 2001 are available as public release files; prior waves can be obtained in archive versions. The special files with weights for families are also available. Restricted files include the Geocode Match File with information for 1968 through 2001, the 1968-2001 Death File, and the 1991 Medicare Claims File. * Dates of Study: 1968-2003 * Study Features: Longitudinal, Minority Oversampling * Sample Size: 65,000+ Links * ICPSR Series: http://www.icpsr.umich.edu/icpsrweb/ICPSR/series/00131 * ICPSR 1968-1999: Annual Core Data: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/07439 * ICPSR 1968-1999: Supplemental Files: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03202 * ICPSR 1989-1990: Latino Sample: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03203 | longitudinal, minority, employment, income, wealth, expenditure, health, marriage, childbearing, child development, philanthropy, education, family income, attitude, economic behavior, economic change, economic condition, employment history, family, family history, fertility, food aid, household expenditure, household income, housing, population trend, poverty, social change, social indicator, socioeconomic status, african-american, survey, interview, questionnaire, census data, latino, economic status, demographic, intergeneration, individual, health condition, economic, income source, income amount, pension, family composition, childbirth, marriage history, residential location, emotional distress, hispanic, cuban, puerto rican, mexican |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Michigan; Ann Arbor; USA |
Aging | NIA ; U.S. Department of Health and Human Services ; APSE ; United States Department of Agriculture ; NICHD ; NSF |
Public, Acknowledgement requested | nlx_152067 | SCR_008976 | SciCrunch Registry | Panel Study of Income Dynamics - PSID, PSID - A national survey of socioeconomics and health over lifetimes and across generations, Panel Study of Income Dynamics (PSID) | 2026-11-07 12:04:19 | 21 | |||||
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New Immigrant Survey Resource Report Resource Website 1+ mentions |
New Immigrant Survey (RRID:SCR_008973) | NIS | data or information resource, data set | Public use data set on new legal immigrants to the U.S. that can address scientific and policy questions about migration behavior and the impacts of migration. A survey pilot project, the NIS-P, was carried out in 1996 to inform the fielding and design of the full NIS. Baseline interviews were ultimately conducted with 1,127 adult immigrants. Sample members were interviewed at baseline, 6 months, and 12 months, with half of the sample also interviewed at three months. The first full cohort, NIS-2003, is based on a nationally representative sample of the electronic administrative records compiled for new immigrants by the US government. NIS-2003 sampled immigrants in the period May-November 2003. The geographic sampling design takes advantage of the natural clustering of immigrants. It includes all top 85 Metropolitan Statistical Areas (MSAs) and all top 38 counties, plus a random sample of other MSAs and counties. Interviews were conducted in respondents'' preferred languages. The baseline was multi-modal: 60% of adult interviews were administered by telephone; 40% were in-person. The baseline round was in the field from June 2003 to June 2004, and includes in the Adult Sample 8,573 respondents, 4,336 spouses, and 1,072 children aged 8-12. A follow-up was planned for 2007. Several modules of the NIS were designed to replicate sections of the continuing surveys of the US population that provide a natural comparison group. Questionnaire topics include Health (self-reports of conditions, symptoms, functional status, smoking and drinking history) and use/source/costs of health care services, depression, pain; background; (2) Background: Childhood history and living conditions, education, migration history, marital history, military history, fertility history, language skills, employment history in the US and foreign countries, social networks, religion; Family: Rosters of all children; for each, demographic attributes, education, current work status, migration, marital status and children; for some, summary indicators of childhood and current health, language ability; Economic: Sources and amounts of income, including wages, pensions, and government subsidies; type, value of assets and debts, financial assistance given/received to/from respondent from/to relatives, friends, employer, type of housing and ownership of consumable durables. * Dates of Study: 2003-2007 * Study Features: Longitudinal * Sample Size: 13,981 | longitudinal, immigrant, migration, behavior, adult human, spouse, child, questionnaire, health, family, economic, self-report, smoking, drinking, health care service, depression, pain, background, childhood history, living condition, education, migration history, marital history, military history, fertility history, language skill, employment history, social network, religion, education, work status, income, wage, pension, government subsidy, asset, debt, financial assistance, interview | has parent organization: Princeton University; New Jersey; USA | Aging | NIA ; NICHD ; Office of Behavioral and Social Sciences Research ; NSF ; US Citizenship and Immigration Services ; ASPE ; Pew Charitable Trusts |
Public: Users must complete a short registration process the first time they access the data. | nlx_152061 | SCR_008973 | SciCrunch Registry | 2026-11-07 12:04:46 | 3 | ||||||
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National Survey of Midlife Development in the United States Resource Report Resource Website 10+ mentions |
National Survey of Midlife Development in the United States (RRID:SCR_008972) | MIDUS | data or information resource, data set | Data set from a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were drawn from a nationally representative random-digit-dial sample of non-institutionalized, English-speaking adults, aged 25-74, selected from working telephone banks in the coterminous United States. Those queried participated in an initial telephone interview and responded to a mail questionnaire. MIDUS 2 carried forward MIDUS 1 and enlisted a new sample of African Americans. MIDUS2 also expanded the focus by incorporating detailed neurophysiological assessments on a large subsample in three geographic regions. Data collection largely repeats T1 assessments (45 minute phone interview, 100 page self-administered questionnaire) plus additions in select areas (e.g., cognitive functioning, optimism and coping, life events, caregiving). In addition, MIDUS 2 is using diary techniques to assess daily stressors in a subsample of respondents; conducting cognitive testing through telephone interviews; collecting biological data on a subsample of respondents, including baseline biomarkers as well as laboratory challenge studies, with assessments of salivary cortisol, blood pressure, and heart rate variability; and collecting EEG measures to focus on the central circuitry of emotion, related to affect and depression. Siblings and Twins: Similar data were collected from a survey of 951 siblings of a respondent in the main survey. MIDUS also contains twins data, from a separate national survey unrelated to the main MIDUS survey. From this separate national survey, a total of 1,996 twins agreed to participate. The Twins respondents were given the same assessments as the Main and Siblings samples. Additionally, the Twins sample was asked a series of questions about their birth, shared physical characteristics, childhood and adult relationships with their twin, whether they were dressed alike as children, and whether others experienced difficulty identifying them correctly. Data and comprehensive documentation for MIDUS 1 and 2 are available via ICPSR. * Dates of Study: 1995-2008 * Study Features: Longitudinal, Minority Oversampling, Anthropometric Measures * Sample Size: ** 1995-6: 4,242 (MIDUS 1) ** 2004-6: 7,108 (MIDUS 2) Links: * ICPSR ����?? MIDUS 1: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/02760 * ICPSR ����?? MIDUS 2: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04652 | adult, middle adult human, longitudinal, minority, anthropometric measure, midlife development, physical health, psychological well-being, social responsibility, sibling, twin, family relationship, family, health status, life satisfaction, lifestyle, mental health, midlife, social indicator, work attitude, behavior, psychology, social, late adult human, interview, cognitive functioning, optimism, coping, stressful life event, caregiving, questionnaire, african american, relationship, psychological factor, personality trait, positive affect, negative affect, sense of control, goal commitment, neurophysiological assessment |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: Harvard Medical School; Massachusetts; USA has parent organization: University of Wisconsin-Madison; Wisconsin; USA |
Aging | MacArthur Foundation ; NIA |
Public | nlx_152055 | http://midmac.med.harvard.edu/ | SCR_008972 | SciCrunch Registry | Midlife Development in the U.S. | 2026-11-07 12:04:16 | 30 | ||||
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National Survey of the Japanese Elderly Resource Report Resource Website |
National Survey of the Japanese Elderly (RRID:SCR_008971) | NSJE | data or information resource, data set | A panel data set for use in cross-cultural analyses of aging, health, and well-being between the U.S. and Japan. The questionnaires were designed to be partially comparable to many surveys of the aged, including Americans'' Changing Lives; 1984 National Health Interview Survey Supplement on Aging; Health and Retirement Study (HRS), and Well-Being Among the Aged: Personal Control and Self-Esteem (WBA). NSJE questionnaire topics include: * Demographics (age, sex, marital status, education, employment) * Social Integration (interpersonal contacts, social supports) * Health Limitations on daily life and activities * Health Conditions * Health Status (ratings of present health) * Level of physical activity * Subjective Well-Being and Mental Health Status (life satisfaction, morale), * Psychological Indicators (life events, locus of control, self-esteem) * Financial situation (financial status) * Memory (measures of cognitive functioning) * Interviewer observations (assessments of respondents) The NSJE was based on a national sample of 2,200 noninstitutionalized elderly aged 60+ in Japan. This cohort has been interviewed once every 3 years since 1987. To ensure that the data are representative of the 60+ population, the samples in 1990 and 1996 were refreshed to add individuals aged 60-62. In 1999, a new cohort of Japanese adults aged 70+ was added to the surviving members of previous cohorts to form a database of 3,990 respondents 63+, of which some 3,000 were 70+. Currently a 6-wave longitudinal database (1987, 1990, 1993, 1996, 1999, & 2002) is in place; wave 7 began in 2006. Data Availability: Data from the first three waves of the National Survey of the Japanese Elderly are currently in the public domain and can be obtained from ICPSR. Additional data are being prepared for future public release. * Dates of Study: 1987-2006 * Study Features: Longitudinal, International * Sample Size: ** 1987: 2,200 ** 1990: 2,780 ** 1993: 2,780 ** 1996: ** 1999: 3,990 ** 2002: ** 2006: Links: * 1987 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06842 * 1990 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03407 * 1993 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04145 * 1996 (ICPSR): http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/26621 | longitudinal, international, japan, demographic, health status, mental health, late adult human, psychological wellbeing, social integration, survey, age, sex, marital status, education, employment, interpersonal contact, social support, health, physical activity, life satisfaction, morale, financial status, memory, cognitive functioning, interview, questionnaire |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: National Archive of Computerized Data on Aging (NACDA) has parent organization: University of Michigan; Ann Arbor; USA |
Aging, Noninstitutionalized, Late adult human | Japanese Ministry of Health Labor and Welfare ; Longevity Foundation ; NIA AG06643-08 |
Public | nlx_152040 | SCR_008971 | SciCrunch Registry | 2026-11-07 12:04:19 | 0 | ||||||
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Layton Alzheimers Disease Center Biomarkers and Genetics Core Lab Resource Report Resource Website |
Layton Alzheimers Disease Center Biomarkers and Genetics Core Lab (RRID:SCR_009911) | access service resource, core facility, service resource | In cooperation with the Data and Clinical Cores at the Layton Center, the Biomarkers and Genetics Core generates and maintains biomarker data for select biomarkers which have established roles in the characterization of subjects with or at risk of dementia. Biological markers of brain aging, dementia risk, and neurodegeneration have the potential to accelerate the identification of disease mechanisms and treatment strategies. Biomarkers may include genes, proteins, or other metabolites, and may be identified in DNA, cerebrospinal fluid (CSF), or plasma. Apolipoprotein E (APOE) genotype is generated for all research subjects. Sub-groups of subjects have other types of biomarker data. Many subjects have had genome-wide SNP data generated. In order to foster collaborative research as well as expand resources and expertise, samples (DNA, CSF, and plasma) and data are distributed to qualified investigators worldwide. Most of these researchers are pursuing the causes and modifiers of dementia. Data and samples are collected from well characterized research subjects including the healthy elderly and dementia patients. |
is listed by: Eagle I has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging | NCRR 5U24RR029825-02 | nlx_156376 | SCR_009911 | SciCrunch Registry | Layton Alzheimer''s Disease Center Biomarkers & Genetics Core Lab | 2026-11-07 12:04:27 | 0 | ||||||||
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Layton Alzheimers Disease Center Clinical Core Resource Report Resource Website |
Layton Alzheimers Disease Center Clinical Core (RRID:SCR_009912) | access service resource, core facility, service resource | THIS RESOURCE IS NO LONGER IN SERVICE.Documented on December 6th,2022. The Oregon Alzheimer?s Disease Center?s (OADC) Clinical Core program, directed by Dr. Jeffrey Kaye, performs longitudinal studies of the natural history of brain aging and Alzheimer''s disease in patients and healthy control volunteers. These studies which are performed through standardized neurological, neuro-psychological, and brain-imaging assessments are carried out in the Alzheimer''s Disease and Memory Assessment Clinics as well as through community-based assessments conducted in the homes of study volunteers. The Layton Center Neuroimaging Lab conducts brain-imaging MRI brain scans to assist in diagnosis of brain disease. Typically, MRI images are taken from three different planes. These planes are known as the coronal plane, sagittal plane and the axial plane. Each series of MRI images is named after the plane from which they were obtained. The Clinical Core?s research is focused on preclinical and early Alzheimer?s disease (AD) yet is also poised to participate in other relevant new research as it arises. The OADC Clinical Core recruits, assesses and follows individuals from population groups at high risk for dementia such as: the healthy ?oldest old?, subjects with family history of AD, and subjects with Mild Cognitive Impairment (MCI). Research with underserved populations The Oregon Alzheimer?s Disease Center also maintains two Satellite programs to enhance understanding of underserved populations: The Klamath Exceptional Aging Project (KEAP) is a community-based study of brain aging being conducted in Klamath Falls. The African American Dementia and Aging Project (AADAPt) s a Portland-based cohort of 100 African American seniors. |
is listed by: Eagle I has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging | NCRR 5U24RR029825-02 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_156377 | SCR_009912 | SciCrunch Registry | Layton Alzheimer''s Disease Center Clinical Core | 2026-11-07 12:04:20 | 0 | |||||||
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Layton Aging and Alzheimers Disease Center Education Core Resource Report Resource Website |
Layton Aging and Alzheimers Disease Center Education Core (RRID:SCR_009909) | access service resource, core facility, service resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on December 5th,2022. The Education and Information Core of the Layton Aging & Alzheimer?s Disease Center develops and carries out a wide range of educational programs to: * Increase public awareness and understanding of Alzheimer''s Disease research, * Aid in the recruitment of subjects for research studies, and * Improve care and quality of life for persons with dementia and support their family caregivers. Our educational activities include: * Training for health care professionals which include seminars and lectures and we also provide ?hands-on? experiences for medical students, * Community education on Alzheimer''s disease and related dementia disorders, * Workshops on doctor ? patient communication for families and caregivers, * Collaboration with community organizations and groups to promote awareness of the disease and publicize research activities, a particular focus is underserved populations including rural communities and minority groups, * Collaboration with other organizations that serve patients and families, e.g., the Alzheimer?s Association and other state and local agencies that serve the elderly and the loved ones who care for them, and * Distribution of printed material that provides topical information on a variety of subjects related to Alzheimer?s disease and dementia and how best to provide quality of life to those with the disease. * A newsletter, Aging & Alzheimer''s Update, which is published twice per year. The Education Core administers the Oregon Income Tax Check-off Alzheimer''s Research Fund in collaboration with The Oregon Partnership for Alzheimer''s Research, a community advisory committee. |
is listed by: Eagle I has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_156375 | SCR_009909 | SciCrunch Registry | Layton Aging & Alzheimer''s Disease Center Education Core | 2026-11-07 12:04:41 | 0 | ||||||||
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NKI-RS Multiband Imaging Test-Retest Pilot Dataset Resource Report Resource Website 1+ mentions |
NKI-RS Multiband Imaging Test-Retest Pilot Dataset (RRID:SCR_010460) | NKI-RS Multiband Test-Retest Pilot Dataset | data or information resource, data set | A test-retest dataset to assess the reliability of multiband resting state fMRI (R-fMRI) and diffusion tensor imaging (DTI) scans prior to launch of the Enhanced Nathan Kline Institute - Rockland Sample (NKI-RS). The dataset is primarily composed of individuals from the initial NKI-RS - for these individuals psychiatric assessment information is available and included (participants were not excluded due to history of illness. In addition to R-fMRI and DTI, they included: 1) simple visual checkerboard stimulation fMRI scans to allow for assessment of traditional fMRI data quality metrics (e.g., contrast-to-noise ratio), 2) breath holding data to enable assessment of regional differences in vascular responsiveness, and 3) eye movement calibration scans to enable the assessment of eye-movement related artifacts which may be particularly troublesome for multiband sequences since several slices are acquired simultaneously. | demographic, multiband imaging, resting state fmri, diffusion tensor imaging, breath hold scan, eye movement calibration scan, visual stimulation scan, brain development, maturation, young human, late adult human, child, adolescent, adult human, image collection, pediatric, geriatric, behavior, cognitive, phentoyping, neuroimaging, dicom, nifti, multiband echo planar imaging, multiband resting state fmri, multiband diffusion tensor imaging, psychiatric assessment |
is related to: NKI/Rockland Sample is related to: NKI-RS Enhanced Sample has parent organization: 1000 Functional Connectomes Project has parent organization: Nathan S. Kline Institute for Psychiatric Research; New York; USA |
Aging | New York State Office of Mental Health and Research Foundation for Mental Hygiene ; Child Mind Institute 1FDN2012-1; NIMH R01MH094639-01; NIMH R01MH081218; NIMH R01MH083246; NIMH R21MH084126 |
Creative Commons Attribution-NonCommercial License | nlx_157648 | SCR_010460 | SciCrunch Registry | Enhanced Nathan Kline Institute-Rockland Sample Multiband Imaging Test-Retest Pilot Dataset, Enhanced Nathan Kline Institute-Rockland Sample (NKI-RS) Multiband Imaging Test-Retest Pilot Dataset | 2026-11-07 12:05:11 | 5 | |||||
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NKI-RS Enhanced Sample Resource Report Resource Website 50+ mentions |
NKI-RS Enhanced Sample (RRID:SCR_010461) | Enhanced NKI-RS | data or information resource, data set | Dataset of 1000 characterized community-ascertained participants using state-of-the-art multiband imaging-based resting state fMRI (R-fMRI) and diffusion tensor imaging (DTI), genetics, and a deep phenotyping protocol from a large cross-sectional sample of brain development, maturation and aging (ages 6 - 85 yrs). The Center for Magnetic Resonance Research (CMRR), University of Minnesota, provided the NKI-RS effort with the latest version of the Multiband EPI sequence (Xu et al. 2012) and associated image reconstruction algorithms, enabling the acquisition of state-of-the-art imaging datasets for this large-scale imaging effort. The enhanced NKI-RS expands upon the phenotypic protocol of the original NKI-RS and captures a broad range of behavioral and cognitive phenomenology relevant to psychiatric health and illness. The validity and value of assessments were evaluated by consulting leaders in the field of psychiatric phenotyping. | demographic, multiband imaging, resting state fmri, diffusion tensor imaging, breath hold scan, eye movement calibration scan, visual stimulation scan, brain development, maturation, young human, late adult human, child, adolescent, adult human, image collection, pediatric, geriatric, behavior, cognitive, phentoyping, neuroimaging, dicom, nifti, multiband echo planar imaging, multiband resting state fmri, multiband diffusion tensor imaging, lifespan, physiological assessment, psychological assessment, genetic |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: NKI/Rockland Sample is related to: NKI-RS Multiband Imaging Test-Retest Pilot Dataset is related to: Mind Research Network - COINS is related to: NIMH Repository and Genomics Resources has parent organization: Nathan S. Kline Institute for Psychiatric Research; New York; USA |
Aging | New York State Office of Mental Health and Research Foundation for Mental Hygiene ; Child Mind Institute 1FDN2012-1; NIMH R01MH094639-01; NIMH R01MH081218; NIMH R01MH083246; NIMH R21MH084126 |
Public, Data Usage Agreement | nlx_157649 | SCR_010461 | SciCrunch Registry | Enhanced Nathan Kline Institute - Rockland Sample | 2026-11-07 12:04:53 | 97 | |||||
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Retinal wave repository Resource Report Resource Website |
Retinal wave repository (RRID:SCR_010462) | Retinal wave repository | data or information resource, data set | A subset of the CARMEN repository, a curated set of data and code of multielectrode array recordings of spontaneous activity in developing mouse and ferret retina. The data have been annotated with minimal metadata and converted into HDF5 (Hierarchical data format, version 5) including the essential features of the recordings, such as developmental age, and genotype. All code and tools used in the analyses are also fully available for reuse, giving the ability to regenerate each figure and table and know exactly how the results were calculated, adding confidence in the research output and allowing others to easily build upon previous work. The addition of published data to the repository is encouraged. | hdf5, development, neural circuit, retina, eye, multielectrode, array recording, spontaneous activity, reproducible research, retinal wave, electrophysiology, multielectrode array, developmental age, genotype |
has parent organization: GigaScience has parent organization: Code Analysis Repository and Modelling for e-Neuroscience has parent organization: University of Cambridge; Cambridge; United Kingdom |
Developing retina, Aging | EPSRC EP/E002331/1; BBSRC BB/H023577/1; BBSRC BB/I000984/1; Wellcome Trust 083205/B/07/Z |
PMID:24666584 | Registration required, (CARMEN), Acknowledgement required, The community can contribute to this resource | nlx_157664 | http://www.damtp.cam.ac.uk/user/eglen/waverepo/ | SCR_010462 | SciCrunch Registry | A data repository and analysis framework for spontaneous neural activity recordings in developing retina | 2026-11-07 12:04:36 | 0 | |||
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Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) Resource Report Resource Website |
Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) (RRID:SCR_004327) | RD-HUB | biomaterial supply resource, material resource | A database of biospecimens collected, stored, and distributed by biorepositories in the United States and around the globe. Its goals are: To help and assist interested parties and investigators search, locate, and identify desired biospecimens needed for their research; to facilitate collaboration and sharing of material and data among investigators across the globe; to accelerate research to facilitate the discovery of new treatments, therapeutics and eventually cures for rare diseases as well as common diseases; to identify, locate and increase the awareness of existing biorepositories across the globe; and to link the RD-HUB with the Global Rare Diseases Patient Registry and Data Repository (GRDR). | rare disease, disease, public |
lists: NIDDK Central Repository lists: National Disease Research Interchange is listed by: NIH Data Sharing Repositories is listed by: One Mind Biospecimen Bank Listing is listed by: Accelerated Cure Project MS Repository is listed by: Cooperative Human Tissue Network Western Division at Vanderbilt University Medical Center is listed by: NIDDK Information Network (dkNET) is related to: GRDR has parent organization: Office of Rare Diseases Research |
Rare disease, Aging | NIH | PMID:20609392 | Public, The community can contribute to this resource | nlx_143682 | http://biospecimens.ordr.info.nih.gov/ | SCR_004327 | SciCrunch Registry | Biospecimens / Biorepositories: Rare Disease-HUB, Biospecimens/Biorepositories: Rare Disease-HUB, Rare Disease-HUB | 2026-11-07 12:03:09 | 0 | |||
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KI Biobank - SATSA Resource Report Resource Website 1+ mentions |
KI Biobank - SATSA (RRID:SCR_005966) | KI Biobank - SATSA | biomaterial supply resource, material resource | Longitudinal twin study to understand individual differences in aging with corresponding data and biological samples. The twin design and the inclusion of twins reared apart makes it possible to study the importance of genetic and environmental factors that may underlie differing aging outcomes. Further, the broad spectrum of biological, psychological, and social domains assessed across the life span makes it possible to study patterns of change within and across domains and how these predict health and diseases of aging. The study is comprised of several longitudinal components including, a comprehensive questionnaire that was sent to all twins in the Swedish Twin Registry who were separated at an early age and reared apart and a control sample of twins reared together. The questionnaires include items concerning rearing, family, adult, and working environment, health status, health related behaviors (e.g. alcohol, tobacco, and dietary habits) as well as relationships, and personality measures. The questionnaires were sent again at 3 year intervals in 1987, 1990, 1993 and after a break again in 2004, 2007, and 2010. Thus far more than 2,000 twins have responded to at least one of the seven questionnaire assessments conducted between 1984 and 2010. Additionally there is information about midlife life style factors from the Swedish Twin Registry that were collected about twenty years before SATSA started. In the second component a subsample of 861 individuals have participated in at least one wave of in-person testing (IPT). The first IPT started in 1986 and since then eight IPTs have been collected and the last wave will be collected during 2012-2013. The IPT includes a health examination, structured interviews, tests of functional capacity, and memory and thinking abilities. To date, over 76% of the sample has participated in 3 or more measurement waves. At IPT9 a third component was added to SATSA, a measure of day-to-day fluctuations in memory and thinking abilities, and emotions. Information about social interactions is also collected. After the visit by the research nurses the twins fill out the day-to-day booklet during the next five days. This procedure will be repeated in IPT10. This will add information about small and short-term changes and more changes are supposed to indicate the beginning of poor health. Data from SATSA can be used to study various aspects of aging. For example, the relative importance of genetic and environmental factors for individual differences in aging especially in cognitive and physical domains has been studied. A further main focus is to study changes within and across domains and which genetic and life style factors predict these changes. Given the wide spectrum of data from measured genes to social relationships collected over more than two decades they dare to say that SATSA is a unique study, with the possibility to answer many questions within gerontology and geriatrics. Types of samples * Serum * DNA Number of sample donors: 674 (June 2010) | gene, environment, health, disease, longitudinal, questionnaire, life style, interview, functional capacity, memory, thinking, emotion, social interaction, cognitive, physical, behavior, relationship, personality, health |
uses: Swedish Twin Registry is listed by: One Mind Biospecimen Bank Listing is related to: KI Biobank - HARMONY has parent organization: Karolisnka Biobank |
Aging, Twin, Control, (reared apart vs. reared together) | MacArthur Foundation Research Network on Successful Aging ; NIA AG04563; NIA AG10175; NIA AG08724; Swedish Research Council 825-2007-7460; Swedish Research Council 825-2009-6141; Swedish Research Council 825-3011-6182; Swedish Council for Working Life and Social Research 97:0147:1B 2009-0795 |
nlx_151325 | http://ki.se/forskning/ki-biobank, http://ki.se/ki/jsp/polopoly.jsp?d=29354&a=24035&l=en | SCR_005966 | SciCrunch Registry | Swedish Adoption / Twin Study of Aging, KI Biobank - Swedish Adoption/Twin Study of Aging, SATSA - The Swedish Adoption/Twin Study of Aging, Swedish Adoption/Twin Study of Aging | 2026-11-07 12:03:13 | 1 | |||||
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KI Biobank - HARMONY Resource Report Resource Website 1+ mentions |
KI Biobank - HARMONY (RRID:SCR_008884) | HARMONY | biomaterial supply resource, material resource | A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) | interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry is related to: KI Biobank - SATSA has parent organization: Karolisnka Biobank |
Dementia, Alzheimer''''s disease, Discordant twin, Aging | NIH | nlx_151298 | http://ki.se/en/meb/dementia-in-swedish-twins-harmony | SCR_008884 | SciCrunch Registry | Dementia in Swedish Twins (HARMONY) | 2026-11-07 12:03:19 | 2 | |||||
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Swedish Twin Registry Resource Report Resource Website 1+ mentions |
Swedish Twin Registry (RRID:SCR_008883) | STR | patient registry, people resource | The Swedish Registry was established in the 1960s to study how smoking affects our health. Then little was known about the dangers of smoking. There is, at present, information on approximately 85 000 twin pairs, both monozygotic and dizygotic. As described by Lichtenstein et al., 2002, Pedersen et al., 2002 and Lichtenstein et al., 2006, the Swedish Twin Registry (STR) is the largest and most comprehensive twin registry in the world. Founded in 1961, the registry covers all like-sexed twin births since 1886, and all twin births (like- and unlike-sexed) since 1906. There are currently 89,000 pairs of twins registered, of which both members of 65,000 pairs are alive, with regular updates concerning vital status, addresses, hospital discharges, tumors, and causes of death, through subscriptions to national registries. Furthermore, there is extensive epidemiological data (exposures, symptoms and disease through questionnaires or interviews) on all pairs born 1986 or earlier, for most individuals involving 30 year baseline to follow-up information. Furthermore, data from the cohort of twins born since 1991 have been or will be contacted with a telephone interview with the parents of twins as they turn 9 (CATSS). Because the STR is an (inter)national resource, we are receptive to collaboration academic and industry-based researchers. Regardless of the type of research all potential collaborations or data access agreements must be first reviewed Steering Committee of the STR. | zygosity, age, sex, education, monozygotic, dizygotic, child, adolescent, adult, tobacco, nicotine, gene, environment |
is used by: KI Biobank - STAR is used by: KI Biobank - SATSA is related to: KI Biobank is related to: KI Biobank - KOL is related to: KI Biobank STAGE-ADHD is related to: KI Biobank - EuroClot is related to: KI Biobank - Economical Behavior is related to: CATSS - Child and Adolescent Twin Study in Sweden is related to: DOGSS is related to: KI Biobank - SALTY is related to: KI Biobank - STAGE is related to: KI Biobank - Parkinson is related to: KI Biobank - HARMONY is related to: Twin Study of Child and Adolescent Development - TCHAD is related to: KI Biobank - TwinGene has parent organization: Karolinska Institute; Stockholm; Sweden |
Twin, Smoking, Aging | Collaboration: Receptive to collaboration academic and industry-based researchers. Regardless of the type of research all potential collaborations or data access agreements must be first reviewed Steering Committee of the STR. | nlx_151292 | http://ki.se/ki/jsp/polopoly.jsp?d=9610&l=en | SCR_008883 | SciCrunch Registry | 2026-11-07 12:03:40 | 6 | ||||||
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KI Biobank - EXT Resource Report Resource Website |
KI Biobank - EXT (RRID:SCR_008875) | KI Biobank - EXT | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. The aim of EXT (extinction) is to investigate the relation between specific genetic variations and cognitive control process in fear. Blood samples will be collected from about 300 healthy, young individuals (age 18-35). | genetic variation, cognitive control, fear, healthy, early adult, gene |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Healthy, Aging | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_149601 | SCR_008875 | SciCrunch Registry | KI Biobank - Extinction | 2026-11-07 12:03:19 | 0 | ||||||
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SHEEP - Stockholm Heart Epidemiology Program Resource Report Resource Website 1+ mentions |
SHEEP - Stockholm Heart Epidemiology Program (RRID:SCR_008905) | KI Biobank - SHEEP | biomaterial supply resource, material resource | DNA from a population-based case-control study designed to investigate causes of myocardial infarction. The study population comprised all Swedish citizens living in the county of Stockholm who were 45 to 70 years of age and free of previously clinically diagnosed MI. Sample types: * DNA Number of sample donors: 2831 (sample collection completed) | heart, epidemiology, cardiac disease, middle adult human, late adult human, aging |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Myocardial infarction, Normal, Aging | nlx_151444 | http://ki.se/ki/jsp/polopoly.jsp?d=29346&a=31574&l=en | SCR_008905 | SciCrunch Registry | Stockholm Heart Epidemiology Program | 2026-11-07 12:03:39 | 2 | ||||||
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National Long Term Care Survey Resource Report Resource Website |
National Long Term Care Survey (RRID:SCR_008943) | NLTCS | biomaterial supply resource, material resource | A data set of a longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). It also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for caregiving. The survey began in 1982, and follow-up surveys were conducted in 1984, 1989, 1994, 1999, and 2004. The surveys are of the entire Medicare-enrolled aged population with a particular emphasis on the functionally impaired. As sample persons are followed through the Medicare record system, virtually 100% of cases can be longitudinally tracked so that declines, as well as increases, in disability may be identified as well as exact dates of death. NLTCS sample persons are followed until death and are permanently and continuously linked to the Medicare record system from which they are drawn. Linkage to the Medicare Part A and B service use records extends from 1982 to 2004, so that detailed Medicare expenditures and types of service use may be studied. Through the careful application of methods to reduce non-sampling error, the surveys provide nationally representative data on: * The prevalence and patterns of functional limitations, both physical and cognitive; * Longitudinal and cohort patterns of change in functional limitation and mortality over 22 years; * Medical conditions and recent medical problems; * Health care services used; * The kind and amount of formal and informal services received by impaired individuals and how it is paid for; * Demographic and economic characteristics like age, race, sex, marital status, education, and income and assets; * Out-of-pocket expenditures for health care services and other sources of payment; * Housing and neighborhood characteristics. In each of the six surveys, large samples (N~20,000) of the oldest-old population (i.e., those 85 and over) are obtained. The survey data (i.e., detailed community and institutional interviews. The linkage to Medicare enrollment files between 1982 and 2004 was 100%, i.e., there was complete follow-up of all cases (including survey non-respondents) for Medicare eligibility (and for most years, detailed Part A and B use), mortality, and date of death. Medicare mortality records (and dates of death) are available for 1982 to 2005. The number of deaths (i.e., about 32,000 from 1982 to 2005) is large enough that detailed mortality analyses can be done. Over the 22 years spanned by the six surveys, a total of 49,242 distinct individuals were followed from and linked to Medicare records. Data Availability: The data are available through ICPSR as Study No. 9681. The data are available only on CD-ROM and only upon completion of a signed Data Use Agreement. Continuously linked Medicare data (1982 through 2004) for the National Long Term Care Surveys are only available from CMS. * Dates of Study: 1982-2004 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1982: 20,485 ** 1984: 25,401 ** 1989: 17,565 ** 1994: 19,171 ** 1999: 19,907 ** 2004: 20,474 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09681 | longitudinal, survey, late adult human, interview, medicare, questionnaire, disabled, non-disabled, community, institution, disability, medical condition, education, income, blood, buccal wash, activity, caregiver, diet, family relations, health care service, health services utilization, health status, life satisfaction, live expectancy, living arrangement, marriage, perception, quality of life, apoe, sod2, physical, cognitive, functional limitation, mortality, demographic, economic, race, marital status, asset, payment, housing, neighborhood |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Duke University; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, Functionally impaired, Late adult human, Non-disabled | NIA N2 U01 AG0007198 | Public, Data use agreement required. | nlx_151860 | http://dx.doi.org/10.3886/ICPSR09681.v5 | SCR_008943 | SciCrunch Registry | NLTCS: National Long-Term Care Survey, National Long Term Care Survey (NLTCS), National Long-Term Care Survey | 2026-11-07 12:03:40 | 0 |
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