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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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ISRCTN Registry Resource Report Resource Website 500+ mentions |
ISRCTN Registry (RRID:SCR_006087) | standard specification, database, narrative resource, international standard specification, data or information resource | A primary clinical trial registry which houses proposed, ongoing, and completed clinical research studies. An ISRCTN is a simple numeric system for the unique identification of randomized controlled trials worldwide. The registry provides content validation and curation and the unique identification number necessary for publication. Submitted studies range from cancer to urological diseases. | clinical trial, unique identifier, observational trial, interventional trial, health, registry, clinical, trial, FASEB list |
is used by: Current Controlled Trials is related to: Current Controlled Trials has parent organization: Current Controlled Trials |
Department of Health UK ; Medical Research Council ; Wellcome Trust ; Canadian Institutes of Health Research |
Public | nlx_151501, r3d100013307 | http://www.isrctn.org, https://doi.org/10.17616/R31NJMRF | SCR_006087 | International Standard Randomised Controlled Trial Number Registry, International Standard Randomized Controlled Trial Number Register | 2026-08-03 09:33:00 | 744 | ||||||
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Review of Clinical and Functional Neuroscience Resource Report Resource Website |
Review of Clinical and Functional Neuroscience (RRID:SCR_005964) | Review of Clinical and Functional Neuroscience | narrative resource, data or information resource, book | On line textbook of basic clinical and functional neuroscience, developed by Rand S. Swenson, D.C., M.D., Ph.D., Dartmouth Medical School Chapter Index * Introduction * Cellular organization * Peripheral nervous system * Development * Spinal cord * Brain stem organization * Sensory systems * Motor systems * Limbic system * Thalamic organization * Cerebral cortical organization * Nutrition of the brain * Conclusions | textbook, neuroscience, clinical, functional |
is related to: Atlas of the Brain is related to: Atlas of the Brain has parent organization: Dartmouth Medical School; New Hampshire; USA |
Free, Subject to copyright 2006 | nlx_151322 | SCR_005964 | Review of Clinical Functional Neuroscience, Review of Clinical and Functional Neuroscience - Swenson | 2026-08-03 09:32:58 | 0 | |||||||
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Human Phenotype Ontology Resource Report Resource Website 50+ mentions |
Human Phenotype Ontology (RRID:SCR_006016) | HPO, HP | controlled vocabulary, data or information resource, ontology | Provides standardized vocabulary of phenotypic abnormalities encountered in human disease. Structured and controlled vocabulary for phenotypic features encountered in human hereditary and other disease. HPO is being developed in collaboration with members of OBO Foundry (Open Biological and Biomedical Ontologies), and logical definitions for HPO terms are being developed using PATO and a number of other ontologies including FMA, GO, ChEBI, and MPATH. | phenotype, genetics, disease, phenomizer, obo, clinical, phenome, pathological, organismal, FASEB list |
uses: OMIM uses: Phenexplorer is used by: DisGeNET is used by: HmtPhenome is used by: MONARCH Initiative is used by: NIF Data Federation is listed by: BioPortal is listed by: OBO is related to: Phenexplorer is related to: Phenomizer is related to: PhenoTips is related to: Neurocarta is related to: GWASdb is related to: Phenomizer has parent organization: Charite - Universitatsmedizin Berlin; Berlin; Germany works with: Human Mouse Disease Connection |
Monogenic disease, Hereditary disease | PMID:20412080 | Free, Freely available | SCR_006219, nlx_151406, nlx_151835 | http://purl.bioontology.org/ontology/HP, http://compbio.charite.de/svn/hpo/trunk/src/ontology/human-phenotype-ontology.obo | SCR_006016 | Human Phenotype Ontology (HPO), Human Phenotype Ontology | 2026-08-03 09:32:58 | 73 | ||||
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AREDS2: The Age-Related Eye Disease Study 2 Resource Report Resource Website |
AREDS2: The Age-Related Eye Disease Study 2 (RRID:SCR_006306) | AREDS2 | portal, disease-related portal, clinical trial, topical portal, research forum portal, data or information resource | Study designed to assess the effects of oral supplementation of high doses of macular xanthophylls (lutein and zeaxanthin) and/or omega -3 LCPUFAs (DHA and EPA) for the treatment of AMD and cataract. | oral, supplement, xanthophyll, omega-3 fatty acid, macular, degeneration, eye, disease, clinical, trial, age, related, cataract | Age-Related Macular Degeneration, Cataract, Aging | U.S. Department of Health and Human Services HHSN260200500007C; NEI N01 EY50007 |
PMID:22840421 | nif-0000-00522 | SCR_006306 | AREDS2, Age-Related Eye Disease Study 2 | 2026-08-03 09:32:58 | 0 | ||||||
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ResearchMatch Resource Report Resource Website 100+ mentions |
ResearchMatch (RRID:SCR_006387) | ResearchMatch | portal, patient registry, community building portal, people resource, data or information resource | Free and secure registry to bring together two groups of people who are looking for one another: (1) people who are trying to find research studies, and (2) researchers who are looking for people to participate in their studies. It has been developed by major academic institutions across the country who want to involve you in the mission of helping today''''s studies make a real difference for everyone''''s health in the future. Anyone can join ResearchMatch. Many studies are looking for healthy people of all ages, while some are looking for people with specific health conditions. ResearchMatch can help ''''match'''' you with any type of research study, ranging from surveys to clinical trials, always giving you the choice to decide what studies may interest you. | recruit, volunteer, clinical research, clinical, recruitment registry, registry, patient, clinical study, clinical trial, survey |
is related to: Clinical and Translational Science Awards Consortium has parent organization: Vanderbilt University; Tennessee; USA |
Healthy, Specific health condition | NIH ; NCATS UL1TR000445; NCRR 1U54RR032646-01 |
PMID:22104055 | nlx_152168 | SCR_006387 | Research Match | 2026-08-03 09:33:00 | 180 | |||||
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PROGENY Resource Report Resource Website 100+ mentions |
PROGENY (RRID:SCR_006647) | Progeny | data management software, software resource, software application, commercial organization | Fully customizable, comprehensive genetic pedigree and clinical data management software including a multi-user relational database with an integrated pedigree drawing component to manage genetic and pedigree data in one database. Manage Pedigrees, Individuals, SNPs, STRs, Samples, Plates, Genotypes and exports to multiple analysis platforms. (entry from Genetic Analysis Software) * LIMS software, providing advanced sample tracking and management (including functionality to generate and record barcodes) and configurable workflows for your specific environment. * Full genotype management gives users the ability to track not only family-based studies, but Whole Genome Association studies containing 1000''s of samples with large arrays. | gene, genetic, genomic, c++, active x control, ms-windows, pedigree, clinical, genotype, data management, drawing, family history, questionnaire, sample, lab management, FASEB list |
is listed by: OMICtools is listed by: Genetic Analysis Software |
nlx_154553, OMICS_00216 | SCR_006647 | Progeny Software LLC, Progeny Software | 2026-08-03 09:33:06 | 407 | ||||||||
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Louisiana State University School of Medicine, Health Sciences Center: Epilepsy Center Resource Report Resource Website |
Louisiana State University School of Medicine, Health Sciences Center: Epilepsy Center (RRID:SCR_006519) | LSU Epilepsy Center | portal, disease-related portal, degree granting program, medical school program resource, topical portal, data or information resource, training resource | The LSU Epilepsy Center of Excellence is dedicated to providing state-of-the-art, comprehensive epilepsy treatment, enhancing access to epilepsy education for patients and physicians, and promoting multidisciplinary epilepsy research in pharmacology, neuroelectrophysiology, neuroimaging, neurosurgery, neuropsychology, biomedical engineering and public health. The center''s team of professionals offers diagnostic and presurgical monitoring, the strategic use of antiepileptic medications, specialized epilepsy neuroimaging, vagus nerve stimulator implantation, ketogenic diet management, neuropsychological testing, psychiatric support and epilepsy surgery for adults and children. The Center also hosts several clinical research trials each year for investigational medications and devices. The following are the treatment methods currently available at this center: - Epilepsy Brain Implants - Responsive Neurostimulator (RNS) - Medications - Medication blood level monitoring - Vagus Nerve Stimulators (VNS) - Epilepsy Surgery - Ketogenic Diet - Psychiatric Services - Radiosurgery Epilepsy Center Sections: *Electrophysiology *Neuroimaging *Neuropsychology *Neuroscience *Neurosurgery *Pharmacology *Psychiatry *Research | education, engineering, epilepsy, adult, antiepileptic, biomedical, blood, brain, child, clinical, diagnostic, health, implantation, ketogenic, medication, neuroelectrophysiology, neuropsychological, neuropsychology, neurosurgery, patient, pharmacology, physician, presurgical, psychiatric, public, radiosurgery, surgery, treatment, vagus nerve, neuroimaging | has parent organization: Louisiana State University School of Medicine; Louisiana; USA | nif-0000-10284 | SCR_006519 | LSU Epilepsy Center of Excellence, LSUHSC School of Medicine at New Orleans; Epilepsy Center, LSUHSC School of Medicine; Epilepsy Center, LSU Health Sciences Center School of Medicine at New Orleans; Epilepsy Center | 2026-08-03 09:33:06 | 0 | ||||||||
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Endocrine Society Resource Report Resource Website 1+ mentions |
Endocrine Society (RRID:SCR_006449) | Endocrine Society | portal, community building portal, narrative resource, topical portal, meeting resource, data or information resource, training resource | Founded in 1916, The Endocrine Society is the world''s oldest, largest, and most active organization devoted to research on hormones and the clinical practice of endocrinology. The Society works to foster a greater understanding of endocrinology amongst the general public and practitioners of complementary medical disciplines and to promote the interests of all endocrinologists at the national scientific research and health policy levels of government. The Endocrine Society publishes four world-renowned journals and a monthly news magazine, holds scientific conferences, provides educational programs for physicians, issues clinical practice guidelines, promotes careers in endocrinology, and advocates for appropriate funding of scientific research in endocrinology and public policies that support the practice of clinical endocrinology. The Hormone Health Network, the Society''s public education affiliate, is a leading source of hormone-related health information for the public, physicians, allied health professionals and the media. The Endocrine Society is an international body with more than 15,000 members from over 100 countries. The Society''s diverse membership represents medicine, molecular and cellular biology, biochemistry, physiology, genetics, immunology, education, industry and allied health fields. Members of The Endocrine Society represent the full range of disciplines associated with endocrinologists: clinicians, researchers, educators, fellows and students, industry professionals and health professionals who are involved in the field of endocrinology. These professionals are dedicated to the research and treatment of the full range of endocrine disorders: diabetes, reproduction, infertility, osteoporosis, thyroid disease, obesity/lipids, growth hormone, pituitary tumors, and adrenal insufficiency. | hormone, endocrinology, clinical, endocrinologist | is affiliated with: Hormone Health Network | Endocrine disorder, Reproduction, Infertility, Osteoporosis, Thyroid disease, Obesity, Lipids, Growth hormone, Pituitary tumor, Adrenal insufficiency, Diabetes | nlx_149400 | SCR_006449 | 2026-08-03 09:33:07 | 2 | ||||||||
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Nex-StoCT Resource Report Resource Website |
Nex-StoCT (RRID:SCR_006777) | Nex-StoCT | narrative resource, data or information resource, knowledge environment, standard specification | National workgroup to define platform-independent approaches for establishing technical process elements of a quality management system (QMS) to assure the analytical validity and compliance of next-generation sequencing (NGS) tests with existing regulatory and professional quality standards. The workgroup identified and addressed gaps in quality practices that could compromise the quality of both clinical laboratory services and translational efforts needed to advance the implementation and utility of NGS in clinical settings. The workgroup was composed of experts with knowledge of and experience with NGS and included clinical laboratory directors, clinicians, platform and software developers and informaticians, as well as individuals actively engaged in NGS guideline development from accreditation bodies and professional organizations. Representatives from US government agencies also participated. These guidelines address four topics that are components of quality management in a clinical environment: (i) test validation, (ii) quality control (QC) procedures to assure and maintain accurate test results, (iii) the independent assessment of test performance through proficiency testing (PT) or alternative approaches and (iv) reference materials (RMs). Discussions were limited to the analytic and informatics processes required for accurate variant calling. The workgroup did not address how variants are prioritized, interpreted or reported. | next-generation sequencing, clinical, testing, test result |
is listed by: OMICtools has parent organization: Centers for Disease Control and Prevention |
PMID:23138292 | OMICS_01787 | SCR_006777 | Next Generation Sequencing: Standardization of Clinical Testing, Nex-StoCT Working Groups, Next Generation Sequencing: Standardization of Clinical Testing Working Groups, Next Generation Sequencing - Standardization of Clinical Testing | 2026-08-03 09:33:10 | 0 | |||||||
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BTRIS: NIH Biomedical Translational Research Information System Resource Report Resource Website 1+ mentions |
BTRIS: NIH Biomedical Translational Research Information System (RRID:SCR_006838) | BTRIS | data repository, clinical database, data management software, software application, storage service resource, service resource, software resource | Provides NIH clinical investigators with access to identifiable data for the subjects on their own active protocols, while providing all NIH investigators with access to de-identified data across all protocols. BTRIS provides users with advanced search, filtering, and aggregation methods to create data sets to support ongoing studies and stimulate ideas for new research. BTRIS is two distinct but interrelated applications, BTRIS Data Access and BTRIS Preferences. * BTRIS Data Access is the data repository where principal investigators or their designee create reports on their active protocols with identified subject data. Reports include the IRB Inclusion Enrollment Report, demographics, patient lists, laboratory and microbiology results, vital signs, medication orders and administration, diagnoses, and radiology reports (with links to images in the CC PACS system). * BTRIS Preferences is a Web based application that allows principal investigators or their designees to verify subject enrollment in their protocol(s). This ensures that reports created in BTRIS Data Access include all subjects. It also allows the principal investigator to designate an alternate investigator from the protocol to manage subject enrollment and create reports in BTRIS Data Access. BTRIS contains subject data from CRIS/MIS (the Clinical Center Medical Information Systems) and research data from NIAID (Crimson), NIAAA, and NCI. Data are available from 1976 to the present. | data management, clinical, data sharing | has parent organization: National Institutes of Health | nif-0000-00577 | SCR_006838 | Biomedical Translational Research Information System | 2026-08-03 09:33:11 | 1 | ||||||||
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TalkBank Resource Report Resource Website 10+ mentions |
TalkBank (RRID:SCR_003242) | narrative resource, data or information resource, database, training material | Databases of transcript and media data collected from conversations with adults and older children to foster fundamental research in the study of human and animal communication. Conversations with children are available from CHILDES. All of the data is transcribed in CHAT and CA/CHAT formats. Databases of the following types are included in the collection: Aphasia patient speech, Child speech, Study of Phonological Development, Conversation Analysis, and Bilingualism and Second Language Acquisition. TalkBank will use these databases to advance the development of standards and tools for creating, sharing, searching, and commenting upon primary materials via networked computers. | aphasia, aphasiabank, bilingbank, cabank, phonbank, psychology, speech, communication, clinical, transcript, audio track, video, talk, voice, language, conversation, discourse, adult human, child, second language, audiology, media, animal communication, conversation analysis, discourse analysis, gesture, code switching, bilingualism, linguistic, phonological development, danish |
is listed by: re3data.org is related to: PhonBank has parent organization: Carnegie Mellon University; Pennsylvania; USA has parent organization: University of Pennsylvania; Philadelphia; USA works with: Child Language Data Exchange System (CHILDES) |
Aphasia, Dementia, Bilingualism | NIDCD R01 DC008524; NICHD R01 HD23998; NICHD R01 HD051698 |
Free, Freely available | nif-0000-00626, r3d100010551 | https://doi.org/10.17616/R3XW38 | SCR_003242 | 2026-08-03 09:32:13 | 31 | ||||||
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i2b2 Cross-Institutional Clinical Translational Research project Resource Report Resource Website |
i2b2 Cross-Institutional Clinical Translational Research project (RRID:SCR_003367) | i2b2CICTR, i2b2-CICTR | topical portal, data or information resource, portal | THIS RESOURCE IS NO LONGER IN SERVICE, documented on February 08, 2013. A two year Clinical and Translational Science Award (CTSA) supplement that set up a SHRINE (Shared Health Research Informatics NEtwork) network to create an information exchange environment that successfully shared 4.2M deidentified patient records. The network successfully linked i2b2 sites at UW, UCSF, UC Davis and Harvard Catalyst. Recombinant Data Corporation was actively involved in this implementation. This is a collaborative information exchange pilot project to adapt and extend data discovery tools and processes to enhance research design and retrospective data study capabilities for clinical translational investigators. The novel approach of this project will be to incrementally build a common technical, semantic and appropriately secure and governed distributed system in close partnership with active researchers at three large and geographically distributed academic medical centers. This collaboration will extend the Informatics for Integrating Biology and the Bedside (i2b2) software architecture developed by the Harvard based National Center for Biomedical Computing (NCBC) to support multi-institution data query capabilities. The anticipated outcome of this two-year project is to make high-level anonymized descriptive characteristics of population-level data discoverable for research design, hypothesis generation and retrospective data studies. | exchange, biomedical, clinical, medical, pilot, retrospective, translational, integration, interoperability, information exchange environment, software network, data sharing, network, federation |
is listed by: Biositemaps is related to: SHRINE has parent organization: Informatics for Integrating Biology and the Bedside has parent organization: University of Washington; Seattle; USA |
NCRR Contract HHSN268200700031C | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-33108 | SCR_003367 | 2026-08-03 09:32:14 | 0 | |||||||
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Experimental Conditions Ontology Resource Report Resource Website 1+ mentions |
Experimental Conditions Ontology (RRID:SCR_003306) | XCO | controlled vocabulary, data or information resource, ontology | An ontology designed to represent the conditions under which physiological and morphological measurements are made both in the clinic and in studies involving humans or model organisms. | obo, clinical, physiology, morphology, measurement |
is listed by: BioPortal is listed by: OBO has parent organization: Medical College of Wisconsin; Wisconsin; USA |
PMID:22654893 | Free, Available for download, Freely available | nlx_157401 | ftp://rgd.mcw.edu/pub/ontology/experimental_condition/experimental_condition.obo, http://sourceforge.net/projects/phenoonto/ | SCR_003306 | Experimental condition ontology | 2026-08-03 09:32:03 | 1 | |||||
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Human Variome Project Resource Report Resource Website 10+ mentions |
Human Variome Project (RRID:SCR_003492) | HVP | knowledge environment, standard specification, narrative resource, international standard specification, data or information resource | Project facilitating the establishment and maintenance of standards systems and infrastructure for the worldwide collection and sharing of all genetic variations effecting human disease. The Human Variome Project produces two categories of recommendations: HVP Standards and HVP Guidelines. HVP Standards are those systems, procedures and technologies that the Human Variome Project Consortium has determined should be used by the community. These carry more weight than the less prescriptive HVP Guidelines, which cover those systems, procedures and technologies that the Human Variome Project Consortium has determined would be beneficial for the community to adopt. HVP Standards and Guidelines are central to supporting the work of the Human Variome Project Consortium and cover a wide range of fields and disciplines, from ethics to nomenclature, data transfer protocols to collection protocols from clinics. They can be thought of as both technical manuals and scientific documents, and while the impact of HVP Standards and Guidelines differ, they are both generated in a similar fashion. A document has been generated both as a guide for those collecting and distributing data and for those developing policy. Items should include those generated by HGVS/HVP collaborators as well as those generated by groups of individual Societies and Standards bodies in all relevant fields worldwide. | genetics, genomics, clinical, diagnosis, disease, human, genetic variation, variome, data sharing | is listed by: OMICtools | Genetic disease | Genomic Disorders Research Center ; Howard Florey Institute ; Human Genome Variation Society ; University of Melbourne; Victoria; Australia ; Victorian State Government ; CASS Foundation ; Gandel Foundation ; Pierce Armstrong Foundation ; Helen MacPherson Trust ; UNESCO |
nif-0000-36300, OMICS_00282 | SCR_003492 | The Human Variome Project | 2026-08-03 09:32:25 | 29 | ||||||
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NIH MRI Study of Normal Brain Development Resource Report Resource Website 1+ mentions |
NIH MRI Study of Normal Brain Development (RRID:SCR_003394) | Pediatric MRI Study | narrative resource, data or information resource, experimental protocol, data set | Data sets of clinical / behavioral and image data are available for download by qualified researchers from a seven year, multi-site, longitudinal study using magnetic resonance technologies to study brain maturation in healthy, typically-developing infants, children, and adolescents and to correlate brain development with cognitive and behavioral development. The information obtained in this study is expected to provide essential data for understanding the course of normal brain development as a basis for understanding atypical brain development associated with a variety of developmental, neurological, and neuropsychiatric disorders affecting children and adults. This study enrolled over 500 children, ranging from infancy to young adulthood. The goal was to study each participant at least three times over the course of the project at one of six Pediatric Centers across the United States. Brain MR and clinical/behavioral data have been compiled and analyzed at a Data Coordinating Center and Clinical Coordinating Center. Additionally, MR spectroscopy and DTI data are being analyzed. The study was organized around two objectives corresponding to two age ranges at the time of enrollment, each with its own protocols. * Objective 1 enrolled children ages 4 years, 6 months through 18 years (total N = 433). This sample was recruited across the six Pediatric Study Centers using community based sampling to reflect the demographics of the United States in terms of income, race, and ethnicity. The subjects were studied with both imaging and clinical/behavioral measures at two year intervals for three time points. * Objective 2 enrolled newborns, infants, toddlers, and preschoolers from birth through 4 years, 5 months, who were studied three or more times at two Pediatric Study Centers at intervals ranging from three months for the youngest subjects to one year as the children approach the Objective 1 age range. Both imaging and clinical/behavioral measures were collected at each time point. Participant recruitment used community based sampling that included hospital venues (e.g., maternity wards and nurseries, satellite physician offices, and well-child clinics), community organizations (e.g., day-care centers, schools, and churches), and siblings of children participating in other research at the Pediatric Study Centers. At timepoint 1, of those enrolled, 114 children had T1 scans that passed quality control checks. Staged data release plan: The first data release included structural MR images and clinical/behavioral data from the first assessments, Visit 1, for Objective 1. A second data release included structural MRI and clinical/behavioral data from the second visit for Objective 1. A third data release included structural MRI data for both Objective 1 and 2 and all time points, as well as preliminary spectroscopy data. A fourth data release added cortical thickness, gyrification and cortical surface data. Yet to be released are longitudinally registered anatomic MRI data and diffusion tensor data. A collaborative effort among the participating centers and NIH resulted in age-appropriate MR protocols and clinical/behavioral batteries of instruments. A summary of this protocol is available as a Protocol release document. Details of the project, such as study design, rationale, recruitment, instrument battery, MRI acquisition details, and quality controls can be found in the study protocol. Also available are the MRI procedure manual and Clinical/Behavioral procedure manuals for Objective 1 and Objective 2. | young human, child, pediatric, experimental protocol, brain, brain development, development, mri, minc, clinical, behavior, anatomical mri, diffusion tensor imaging, mr spectroscopy, adolescent, clinical data, behavioral data, data visualization software, clinical measure, behavioral measure, physical neurological examination, behavioral rating, neuropsychological testing, structured psychiatric interview, hormonal measure, image collection, neonate, clinical neuroinformatics, dicom, minc2, magnetic resonance, nifti |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is listed by: Biositemaps is listed by: NIH Data Sharing Repositories is related to: NIH Data Sharing Repositories has parent organization: National Institutes of Health |
Healthy, Normal | NICHD ; NIDA ; NIMH ; NINDS ; NIH Blueprint for Neuroscience Research |
THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00201 | http://www.bic.mni.mcgill.ca/nihpd/info/, https://nihpd.crbs.ucsd.edu/nihpd/info/index.html | SCR_003394 | NIH Pediatric MRI Data Repository, Pediatric MRI Data Repository | 2026-08-03 09:32:06 | 6 | ||||
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eyeMoviePedia Resource Report Resource Website |
eyeMoviePedia (RRID:SCR_003541) | eyeMoviePedia | data repository, data or information resource, database, storage service resource, service resource | Archive and access films from the field of Ophthalmology for free on highly secure servers for permanent access and citeability. A citeable identification number (specific addressing using DOI), allows for citation of individual films in journal publications. Films may be commented by the author either in speech, or in text. Key wording provided by the authors at the time of submission, make each film recognizable to internet search machines. | ophthalmology, database, data sharing, eye, clinical, doi, publish, video resource, medicine | is listed by: re3data.org | Creative Commons Attribution-NoDerivs License, v3 Germany, The community can contribute to this resource | nlx_157655, r3d100012558 | https://doi.org/10.17616/R3DF7N | SCR_003541 | 2026-08-03 09:32:26 | 0 | |||||||
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Sage Bionetworks Resource Report Resource Website 100+ mentions |
Sage Bionetworks (RRID:SCR_003384) | nonprofit organization | Non-profit biomedical research organization developing predictors of disease and accelerating health research through creation of open systems, incentives, and standards. Formed to coordinate and link academic and commercial biomedical researchers through Commons that represents new paradigm for genomics intellectual property, researcher cooperation, and contributor evolved resources. | bionetwork, medical, research, human, treatment, disease, biological, biomedical, genomic, development, diagnostic, therapeutic, molecular, meta-data, model, clinical, bioinformatics, drug, consortium, data sharing, software |
is listed by: Consortia-pedia is parent organization of: CommonMind Consortium is parent organization of: Sage Bionetworks Podcasts is parent organization of: Key Driver Analysis is parent organization of: Synapse |
Free, Freely available | Wikidata: Q891621, nif-0000-32903, grid.430406.5, SCR_004425, ISNI: 0000 0004 6023 5303, nlx_42820 | https://ror.org/049ncjx51 | http://sagebase.org/commons/repository.php | SCR_003384 | 2026-08-03 09:32:21 | 119 | |||||||
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Stanford Translational Research Integrated Database Environment and Clinical Data Warehouse Resource Report Resource Website |
Stanford Translational Research Integrated Database Environment and Clinical Data Warehouse (RRID:SCR_003453) | STRIDE and the CDW, STRIDE | narrative resource, data or information resource, software resource, standard specification | Research and development project at Stanford University to create a standards-based informatics platform supporting clinical and translational research. STRIDE consists of three integrated components: a clinical data warehouse, based on the HL7 Reference Information Model (RIM), containing clinical information on over 1.6 million pediatric and adult patients cared for at Stanford University Medical Center since 1995; an application development framework for building research data management applications on the STRIDE platform and a biospecimen data management system. STRIDE's semantic model uses standardized terminologies, such as SNOMED, RxNorm, ICD and CPT, to represent important biomedical concepts and their relationships. STRIDE receives clinical data for research use via HL7 feeds from both SUMC hospitals: Lucile Packard Children's Hospital and Stanford Hospital and Clinics. This clinical data is used to support a wide variety of translational research services including: * Anonymized Patient Research Cohort Discovery * Electronic Chart Review for Research * IRB-Approved Clinical Data Extraction * Biospecimen Data Management * Multimedia Research * Data Management and Research Registries STRIDE is a highly secure environment utilizing encryption, fine-grained access control, robust auditing and detailed data segregation. Additionally, STRIDE has a robust access control framework with well-defined access granting authorities and access control groups. Consequently STRIDE meets or exceeds the requirements of the HIPAA Privacy and Security regulations. Privacy protection is further enhanced by requiring IRB approval for all research projects using STRIDE clinical data. From a technology and standards perspective, STRIDE is hosted on the Oracle 11g database platform. STRIDE application software provides access to the web services of a three-tier infrastructures using SSL encryption with strong authentication. These programs are cross-platform, self-updating thick-client applications that provides a rich user interface for data entry, retrieval and review as well as image manipulation and annotation. STRIDE makes extensive use of XML technologies for representation of structured meta data, distributed systems technologies using JSON for secure remote communication between client and server, and Swing graphical interface components providing a rich widget-set as well as advanced imaging and graphing capabilities. Users of the STRIDE Research Desktop Client can perform rapid data entry into structured fields, compose complex queries, and interact securely with clinical, research and imaging data. | clinical, hospital, research, translational, informatics, platform, database, pediatric, adult, data management, biospecimen, ctsa, clinical data, oracle, image, imaging data |
is listed by: Biositemaps has parent organization: Stanford University; Stanford; California is parent organization of: STRIDE Virtual Biospecimen Bank |
PMID:20351886 | Free, Freely available | nif-0000-33359 | https://med.stanford.edu/irt/researchtech.html | SCR_003453 | STRIDE and the Clinical Data Warehouse, STRIDE Clinical Data Warehouse | 2026-08-03 09:32:08 | 0 | |||||
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Accelerating Medicines Partnership - Alzheimers Resource Report Resource Website |
Accelerating Medicines Partnership - Alzheimers (RRID:SCR_003742) | AMP Alzheimer's, AMP Alzheimer's Disease | consortium, organization portal, data or information resource, portal | The Alzheimer's disease arm of the Accelerating Medicines Partnership (AMP) that will identify biomarkers that can predict clinical outcomes, conduct a large scale analysis of human AD patient brain tissue samples to validate biological targets, and to increase the understanding of molecular pathways involved in the disease to identify new potential therapeutic targets. The initiative will deposit all data in a repository that will be accessible for use by the biomedical community. The five year endeavor, beginning in 2014, will result in several sets of project outcomes. For the biomarkers project, tau imaging and EEG data will be released in year two, as baseline data becomes available. Completed data from the randomized, blinded trials will be added after the end of the five year studies. This will include both imaging data and data from blood and spinal fluid biomarker studies. For the network analysis project, each project will general several network models of late onset AD (LOAD) and identify key drivers of disease pathogensis by the end of year three. Years four and five will be dedicated to validating the novel targets and refining the network models of LOAD, including screening novel compounds or drugs already in use for other conditions that may have the ability to modulate the likely targets. | drug, drug development, biomarker, data sharing, consortium, disease target, drug design, brain tissue, brain, tissue, clinical, neuroimaging, tau, blood, cerebral spinal fluid, eeg, clinical trial, amyloid beta, neurofibrillary tangle |
is listed by: Consortia-pedia is related to: Accelerating Medicines Partnership Autoimmune Diseases of Rheumatoid Arthritis and Lupus is related to: Accelerating Medicines Partnership Type 2 Diabetes Knowledge Portal (AMP-T2D) is related to: Accelerating Medicines Partnership Type 2 Diabetes Knowledge Portal (AMP-T2D) is related to: Accelerating Medicines Partnership Autoimmune Diseases of Rheumatoid Arthritis and Lupus has parent organization: Foundation for the National Institutes of Health has parent organization: Accelerating Medicines Partnership |
NIH ; Industry partners |
nlx_157974 | SCR_003742 | Accelerating Medicines Partnership - Alzheimer's Disease, Accelerating Medicines Partnership - Alzheimer's, Accelerating Medicines Partnership Alzheimer's Disease | 2026-08-03 09:32:18 | 0 | |||||||
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ONE Study Resource Report Resource Website 10+ mentions |
ONE Study (RRID:SCR_003886) | ONE Study | consortium, organization portal, data or information resource, portal | Consortium aiming to produce regulatory T cells that are compatible with a kidney transplant patient''''s immune system, as a measure to suppress the body''''s natural immune response against a transplanted organ. If successful, this approach will reduce a transplantation patient''''s life-long dependency on immune suppressing drugs, many of which are often associated with undesirable side effects and can limit the patient''''s daily routine. The consortium goals are to develop and conduct clinical trials of various immunoregulatory T-cell-based products in organ transplantation recipients, allowing a direct comparison of the safety, clinical practicality and therapeutic efficacy of each cell type. The central focus of the project is to: # Production and manufacture of distinct populations of hematopoietic immunoregulatory T cells # Comparatively study the tolerogenic characteristics of these regulatory cell types # Test these cell therapy products side by side in a clinical trial living donor renal transplant recipients The first workstream will work with different T regulatory cell, tolerogenic DC and suppressive macrophage cell products that are currently in development. In addition to these therapeutics, another goal of this workstream is to develop a cell tracking technology that assesses pharmacodynamics and pharmacokinetics of these cell-based therapies. The second workstream is focused on designing and conducting a cell therapy based clinical trial in renal transplantation, taking into consideration ethics, concurrent immunosuppressive drug use, state-of-the-art immune monitoring, innovative all-in-one data capturing systems, and pharmacovigilance. The goal is to have a comparative evaluation of hematopoietic cell therapy safety in renal transplantation. The third workstream aims to learn more about the specific comparative characteristics of suppressive cell types and to use this knowledge to improve later trial designs and foster novel ideas for new or improved suppressive / tolerogenic cell population. | immune response, organ transplant, kidney, clinical trial, cell therapy, clinical, immune system, tool development, basic research, healthcare, drug development, transplant surgery, immunosuppression, hematopoietic immunoregulatory cell |
is listed by: Consortia-pedia is related to: University of Regensburg; Bavaria; Germany is related to: King's College London; London; United Kingdom is related to: University of Oxford; Oxford; United Kingdom is related to: Charite - Universitatsmedizin Berlin; Berlin; Germany is related to: Fondazione Centro San Raffaele; Milan; Italy is related to: Loughborough University; Loughborough; United Kingdom is related to: University of Wisconsin-Madison; Wisconsin; USA is related to: University of California at San Francisco; California; USA is related to: Miltenyi Biotec is related to: Electro Scientific Industries is related to: Beckman Coulter is related to: KOEHLER eClinical is related to: Pharmatching is related to: ALTA |
European Union FP7 | nlx_158215 | SCR_003886 | A Unified Approach to Evaluating Cellular Immunotherapy in Solid Organ Transplantation, The ONE Study - A Unified Approach to Evaluating Cellular Immunotherapy in Solid Organ Transplantation, The ONE Study | 2026-08-03 09:32:20 | 21 |
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