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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Creatinine Standardization Program Resource Report Resource Website 1+ mentions |
Creatinine Standardization Program (RRID:SCR_006441) | Creatinine Standardization Program | standard specification, experimental protocol, narrative resource, resource, international standard specification, data or information resource | Standard specification to reduce inter-laboratory variation in creatinine assay calibration and therefore enable more accurate estimates of glomerular filtration rate (eGFR). Created by NKDEP''''s Laboratory Working Group in collaboration with the International Federation of Clinical Chemistry and Laboratory Medicine (IFCC) and the European Communities Confederation of Clinical Chemistry (now called the European Federation of Clinical Chemistry and Laboratory Medicine), the effort is part of a larger NKDEP initiative to help health care providers better identify and treat chronic kidney disease in order to prevent or delay kidney failure and improve patient outcomes. Recommendations are intended for the USA and other countries or regions that have largely completed standardization of creatinine calibration to be traceable to an isotope dilution mass spectrometry (IDMS) reference measurement procedure. The program''''s focus is to facilitate the sharing of information to assist in vitro diagnostic manufacturers, clinical laboratories, and others in the laboratory community with calibrating their serum creatinine measurement procedures to be traceable to isotope dilution mass spectrometry (IDMS). The program also supports manufacturers'''' efforts to encourage their customers in the laboratory to coordinate use of standardized creatinine methods with implementation of a revised GFR estimating equation appropriate for use with standardized creatinine methods. Communication resources and other information for various segments of the laboratory community are available in the Creatinine Standardization Recommendations section of the website. Also available is a protocol for calibrating creatinine measurements using whole blood devices. The National Institute for Standards and Technology (NIST) released a standard reference material (SRM 967 Creatinine in Frozen Human Serum) for use in establishing calibrations for routine creatinine measurement procedures. SRM 967 was validated to be commutable with native serum samples for many routine creatinine procedures and is useful to establish or verify traceability to an IDMS reference measurement procedure. Establishing calibrations for serum creatinine methods using SRM 967 not only provides a mechanism for ensuring more accurate measurement of serum creatinine, but also enables more accurate estimates of GFR. For clinical laboratories interested in independently checking the calibration supplied by their creatinine reagent suppliers/manufacturers, periodic measurement of NIST SRM 967 should be considered for inclusion in the lab''''s internal quality assurance program. To learn more about SRM 967, including how to purchase it, visit the NIST website, https://www-s.nist.gov/srmors/quickSearch.cfm | creatinine, estimate, glomerular filtration rate, kidney, isotope dilution mass spectrometry, whole blood, calibration, serum, serum creatinine, clinical |
is related to: Glomerular Filtration Rate Calculators is related to: NIDDK Information Network (dkNET) is related to: NIST - National Institute of Standards and Technology has parent organization: National Kidney Disease Education Program |
Chronic kidney disease | NIDDK | nlx_152736 | SCR_006441 | 2026-08-03 09:33:07 | 2 | |||||||
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Ribosomal Database Project Resource Report Resource Website 1000+ mentions |
Ribosomal Database Project (RRID:SCR_006633) | RDP | resource, data or information resource, database | A database which provides ribosome related data services to the scientific community, including online data analysis, rRNA derived phylogenetic trees, and aligned and annotated rRNA sequences. It specifically contains information on quality-controlled, aligned and annotated bacterial and archaean 16S rRNA sequences, fungal 28S rRNA sequences, and a suite of analysis tools for the scientific community. Most of the RDP tools are now available as open source packages for users to incorporate in their local workflow. | microbiome, database, rrna gene sequence, rrna, ribosome, genome browser, high-throughput sequencing, bacteria, archaea, fungi, FASEB list |
is listed by: OMICtools is listed by: Human Microbiome Project has parent organization: Michigan State University; Michigan; USA is parent organization of: RDPipeline |
DOE DE-FG02-99ER62848; DOE DE-SC0004601; DOE DE-FC02-07ER64494; NIEHS P42 ES004911; NSF DBI-0328255; USDA 2008-35107-04542; NHLBI U01HL098961; NIDDK UH3 DK083993 |
PMID:24288368 PMID:17586664 |
Open source | r3d100012372, nif-0000-03404, OMICS_01513 | https://doi.org/10.17616/R3C087 | SCR_006633 | Ribosomal Database Project | 2026-08-03 09:33:11 | 1441 | ||||
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Ligand Expo Resource Report Resource Website |
Ligand Expo (RRID:SCR_006636) | resource, data or information resource, database | An integrated data resource for finding chemical and structural information about small molecules bound to proteins and nucleic acids within the structure entries of the Protein Data Bank. Tools are provided to search the PDB dictionary for chemical components, to identify structure entries containing particular small molecules, and to download the 3D structures of the small molecule components in the PDB entry. A sketch tool is also provided for building new chemical definitions from reported PDB chemical components. | element, fingerprint, formula, amino acid, aromatic ring, atom, bound, carbon, chemical, component, depot, ligand, molecular, molecule, nitrogen, nucleic acid, nucleotide, pharmaceutical, protein, small molecule, structure, macromolecule, model |
uses: Research Collaboratory for Structural Bioinformatics Protein Data Bank (RCSB PDB) uses: Worldwide Protein Data Bank (wwPDB) has parent organization: Rutgers University; New Jersey; USA has parent organization: Research Collaboratory for Structural Bioinformatics Protein Data Bank (RCSB PDB) |
NSF ; NIGMS ; DOE ; NLM ; NCI ; NCRR ; NIBIB ; NINDS ; NIDDK |
PMID:15059838 | nif-0000-21237, OMICS_02751 | http://ligand-depot.rutgers.edu/ | SCR_006636 | Ligand Depot | 2026-08-03 09:33:06 | 0 | ||||||
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Autoimmunity Centers of Excellence Resource Report Resource Website |
Autoimmunity Centers of Excellence (RRID:SCR_006510) | ACE | portal, disease-related portal, resource, topical portal, research forum portal, data or information resource | Nine centers that conduct clinical trials and basic research on new immune-based therapies for autoimmune diseases. This program enhances interactions between scientists and clinicians in order to accelerate the translation of research findings into medical applications. By promoting better coordination and communication, and enabling limited resources to be pooled, ACEs is one of NIAID''''s primary vehicles for both expanding our knowledge and improving our ability to effectively prevent and treat autoimmune diseases. This coordinated approach incorporates key recommendations of the NIH Autoimmune Diseases Research Plan and will ensure progress in identifying new and highly effective therapies for autoimmune diseases. ACEs is advancing the search for effective treatments through: * Diverse Autoimmunity Expertise Medical researchers at ACEs include rheumatologists, neurologists, gastroenterologists, and endocrinologists who are among the elite in their respective fields. * Strong Mechanistic Foundation ACEs augment each clinical trial with extensive basic studies designed to enhance understanding of the mechanisms responsible for tolerance initiation, maintenance, or loss, including the role of cytokines, regulatory T cells, and accessory cells, to name a few. * Streamlined Patient Recruitment The cooperative nature of ACEs helps scientists recruit patients from distinct geographical areas. The rigorous clinical and basic science approach of ACEs helps maintain a high level of treatment and analysis, enabling informative comparisons between patient groups. | immune system, infection, clinical trial, clinical, basic research |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources |
Type 1 diabetes, Diabetes, Autoimmune disease, Systematic lupus erythematosus, Rheumatoid arthritis, Sjogren's syndrome, Multiple sclerosis, Chronic inflammatory bowel disease, Pemphigus vulgaris, Scleroderma | NIAID ; NIDDK ; NIH Office of Research on Womens Health |
nlx_152751 | SCR_006510 | 2026-08-03 09:33:09 | 0 | |||||||
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NIDDK Central Repository Resource Report Resource Website 50+ mentions |
NIDDK Central Repository (RRID:SCR_006542) | CDR, NIDDKCDR | data repository, data or information resource, database, biospecimen repository, material storage repository, storage service resource, service resource | NIDDK Central Repositories are two separate contract funded components that work together to store data and samples from significant, NIDDK funded studies. First component is Biorepository that gathers, stores, and distributes biological samples from studies. Biorepository works with investigators in new and ongoing studies as realtime storage facility for archival samples.Second component is Data Repository that gathers, stores and distributes incremental or finished datasets from NIDDK funded studies Data Repository helps active data coordinating centers prepare databases and incremental datasets for archiving and for carrying out restricted queries of stored databases. Data Repository serves as Data Coordinating Center and website manager for NIDDK Central Repositories website. | clinical supply resource, data, clinical, sample sharing, genotyping, genotype, phenotype, genetic analysis, data sharing, genetics, serum, plasma, stool, urine, dna, red blood cell, buffy coat, tissue, immortalized cell line, cell line, data set, digestive organ, kidney, diabetes, kidney disease, digestive disease, genome-wide association study, sequencing, FASEB list |
uses: DataCite is used by: NIDDK Information Network (dkNET) is used by: NIF Data Federation is used by: NIH Heal Project is recommended by: National Library of Medicine is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases lists: HEALTHY study lists: Nonalcoholic Steatohepatitis Clinical Research Network lists: HALT-C Trial lists: Type 1 Diabetes Genetics Consortium lists: TEDDY lists: Type 1 Diabetes TrialNet lists: Rare and Atypical Diabetes Network lists: Diabetes Prevention Program lists: Diabetes Prevention Program Outcomes Study lists: Restoring Insulin Secretion Consortium (RISE) lists: Epidemiology of Diabetes Interventions and Complications lists: Diabetes Control and Complications Trial lists: Treatment Options for type 2 Diabetes in Adolescents and Youth is listed by: One Mind Biospecimen Bank Listing is listed by: re3data.org is listed by: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) is listed by: NIDDK Information Network (dkNET) is related to: NCBI database of Genotypes and Phenotypes (dbGap) is related to: Peginterferon and Ribavirin for Pediatric Patients with Chronic Hepatitis C is related to: Chronic Renal Insufficiency Cohort Study has parent organization: RTI International |
NIDDK | PMID:23396299 PMID:21959867 PMID:16595012 |
Restricted | nlx_152673, r3d100010377 | https://doi.org/10.17616/R3WP48 | https://www.niddkrepository.org, | SCR_006542 | NIDDK Central Repository, National Institute of Diabetes and Digestive and Kidney Diseases Central Repository, NIDDKCentral Repositories | 2026-08-03 09:33:06 | 85 | |||
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Glomerular Filtration Rate Calculators Resource Report Resource Website |
Glomerular Filtration Rate Calculators (RRID:SCR_006443) | GFR Calculators | production service resource, data analysis service, resource, analysis service resource, service resource | Glomerular Filtration Rate (GFR) calculators to estimate kidney function for adults (MDRD GFR Calculator) and children (Schwartz GFR Calculator). In adults, the recommended equation for estimating glomerular filtration rate (GFR) from serum creatinine is the Modification of Diet in Renal Disease (MDRD) Study equation. The IDMS-traceable version of the MDRD Study equation is used. Currently the best equation for estimating glomerular filtration rate (GFR) from serum creatinine in children is the Bedside Schwartz equation for use with creatinine methods with calibration traceable to IDMS. Using the original Schwartz equation with a creatinine value from a method with calibration traceable to IDMS will overestimate GFR. | adult human, child, glomerular filtration rate, estimate, kidney function, serum creatinine |
is related to: Creatinine Standardization Program is related to: NIDDK Information Network (dkNET) has parent organization: National Kidney Disease Education Program |
Chronic kidney disease | NIDDK | PMID:16908915 | nlx_152733 | SCR_006443 | Glomerular Filtration Rate Calculator, Glomerular Filtration Rate (GFR) Calculator | 2026-08-03 09:33:04 | 0 | |||||
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United States Renal Data System Resource Report Resource Website 50+ mentions |
United States Renal Data System (RRID:SCR_006699) | USRDS | database, narrative resource, resource, data or information resource, report | Annual report, standard analysis files and an online query system from the national data registry on the end-stage renal disease (ESRD) population in the U.S., including treatments and outcomes. The Annual Data Report is divided into two parts. The Atlas section displays data using graphs and charts. Specific chapters address trends in ESRD patient populations, quality of ESRD care, kidney transplantation outcomes, costs of ESRD care, Healthy People 2010 objectives, chronic kidney disease, pediatric ESRD, and cardiovascular disease special studies. The Reference Tables are devoted entirely to the ESRD population. The RenDER (Renal Data Extraction and Referencing) online data query system allows users to build data tables and maps for the ESRD population. National, state, and county level data are available. USRDS staff collaborates with members of Centers for Medicare & Medicaid Services (CMS), the United Network for Organ Sharing (UNOS), and the ESRD networks, sharing datasets and actively working to improve the accuracy of ESRD patient information. | renal, population, socio-demographic, treatment modality, treatment, kidney, trend, kidney transplantation, outcome, cost, pediatric, cardiovascular disease, incidence, prevalence, patient characteristic, clinical indicator, preventive care, hospitalization, survival, medicare, FASEB list |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources |
End-stage renal disease, Chronic kidney disease | NIDDK | PMID:23124788 | Free, Public domain, Acknowledgement requested, Account required, For RenDER | nlx_152716 | SCR_006699 | U.S. Renal Data System | 2026-08-03 09:33:07 | 59 | ||||
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Nonhuman Primate Transplantation Tolerance Cooperative Study Group Resource Report Resource Website |
Nonhuman Primate Transplantation Tolerance Cooperative Study Group (RRID:SCR_006847) | NHPCSG | portal, disease-related portal, resource, topical portal, research forum portal, data or information resource | Cooperative program for research on nonhuman primate models of kidney, islet, heart, and lung transplantation evaluating the safety and efficacy of existing and new treatment regimens that promote the immune system''''s acceptance of a transplant and to understand why the immune system either rejects or does not reject a transplant. This program bridges the critical gap between small-animal research and human clinical trials. The program supports research into the immunological mechanisms of tolerance induction and development of surrogate markers for the induction, maintenance, and loss of tolerance. | transplantation, clinical, kidney, islet, tolerance, heart, lung, treatment, immune system, tolerance induction | is related to: NIDDK Information Network (dkNET) | Kidney transplantation, Islet transplantation, Heart transplantation, Lung transplantation | NIDDK ; NIAID |
nlx_152728 | http://www.niddk.nih.gov/fund/diabetesspecialfunds/consortia/NHP.pdf | SCR_006847 | Non-human Primate Transplantation Tolerance Cooperative Study Group | 2026-08-03 09:33:11 | 0 | |||||
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Diabetes in America Resource Report Resource Website |
Diabetes in America (RRID:SCR_006754) | Diabetes in America | narrative resource, data or information resource, resource, book | A compilation and assessment of epidemiologic, public health, and clinical data on diabetes and its complications in the United States. Published by the National Diabetes Data Group of the National Institute of Diabetes and Digestive and Kidney Diseases, the book contains 36 chapters organized in five areas: * the descriptive epidemiology of diabetes in the United States based on national surveys and community-based studies, including prevalence, incidence, sociodemographic and metabolic characteristics, risk factors for developing diabetes, and mortality * the myriad complications that affect patients with diabetes * characteristics of therapy and medical care for diabetes * economic aspects, including health insurance and health care costs * diabetes in special populations, including African Americans, Hispanics, Asian and Pacific Islanders, Native Americans, and pregnant women. Diabetes in America, 2nd Edition, has been designed to serve as a reliable scientific resource for assessing the scope and impact of diabetes and its complications, determining health policy and priorities in diabetes, and identifying areas of need in research. The intended audience includes health policy makers at the local and Federal levels who need a sound quantitative base of knowledge to use in decision making; clinicians who need to know the probability that their patients will develop diabetes and the prognosis of the disease for complications and premature mortality; persons with diabetes and their families who need sound information on which to make decisions about their life with diabetes; and the research community which needs to identify areas where important scientific knowledge is lacking. | epidemiology, prevalence, incidence, sociodemographic, metabolic, risk factor, mortality, complication, therapy, medical care, economic, health insurance, health care cost, african american, hispanic, asian, pacific islander, native american, pregnant, clinical, pdf, medical care |
is related to: NIDDK Information Network (dkNET) has parent organization: National Diabetes Information Clearinghouse |
Diabetes | NIDDK | Public, Not copyrighted. The Clearinghouse encourages users of this publication to duplicate and distribute as many copies as desired. | nlx_152695 | SCR_006754 | Diabetes in America 2nd Edition | 2026-08-03 09:33:09 | 0 | |||||
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National Kidney and Urologic Diseases Information Clearinghouse Resource Report Resource Website 1+ mentions |
National Kidney and Urologic Diseases Information Clearinghouse (RRID:SCR_006842) | NKUDIC | service resource, narrative resource, resource, data or information resource, training material | Information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) established to increase knowledge and understanding about diseases of the kidneys and urologic system among people with these conditions and their families, health care professionals, and the general public: online, in booklets and fact sheets, by email, and over the phone. To carry out this mission, NKUDIC works closely with a coordinating panel of representatives from Federal agencies; voluntary organizations on the national level; professional groups; and State health departments to identify and respond to informational needs about kidney and urologic diseases. NKUDIC provides the following informational products and services: * Response to inquiries about kidney and urologic diseases-ranging from information about available patient and professional education materials to statistical data. By phone (8:30 a.m. to 5 p.m. eastern time, M-F), fax, mail, and email. * Publications about specific kidney and urologic diseases, provided free of copyright, in varying reading levels. Available online or as booklets and brochures. (See our Publications Catalog.) NKUDIC also sends publications to health fairs and community events. Please contact us for more information. * Referrals to health professionals through the National Library of Medicine''''s MEDLINEplus includes a consumer-friendly listing of organizations that will assist you in your search for physicians and other health professionals. * Exhibits at professional meetings specific to kidney and urologic diseases, as well as cross-cutting professional meetings. NKUDIC exhibits at 11 professional meetings, each year, including Society of Urologic Nurses and Associates, American Urologic Association, American Society of Nephrology, National Kidney Foundation, Polycystic Kidney Disease Research Foundation, American Academy of Family Physicians, American Academy of Physician Assistants, American Nurses Association, and the National Conference for Nurse Practitioners. | statistics, publication, kidney, urologic system, bladder, renal health, renal disease |
is related to: NIDDK Information Network (dkNET) has parent organization: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is parent organization of: Urologic Diseases in America |
Kidney disease, Urologic disease | NIDDK | Free, Public | nlx_152711 | SCR_006842 | National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) | 2026-08-03 09:33:11 | 1 | |||||
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Type 1 Diabetes Genetics Consortium Resource Report Resource Website 1+ mentions |
Type 1 Diabetes Genetics Consortium (RRID:SCR_001557) | T1DGC | portal, disease-related portal, resource, topical portal, research forum portal, data or information resource | Data and biological samples were collected by this consortium organizing international efforts to identify genes that determine an individual risk of type 1 diabetes. It originally focused on recruiting families with at least two siblings (brothers and/or sisters) who have type 1 diabetes (affected sibling pair or ASP families). The T1DGC completed enrollment for these families in August 2009. They completed enrollment of trios (father, mother, and a child with type 1 diabetes), as well as cases (people with type 1 diabetes) and controls (people with no history of type 1 diabetes) from populations with a low prevalence of this disease in January 2010. T1DGC Data and Samples: Phenotypic and genotypic data as well as biological samples (DNA, serum and plasma) for T1DGC participants have been deposited in the NIDDKCentral Repositories for future research. | gene, genetics, genotyping, analytic, dna, serum, plasma, data set, biomaterial supply resource, phenotypic, genotypic, autoantibody, hla, phenotype, genotype |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository |
Type 1 diabetes, Diabetes | NIDDK ; NIAID ; NHGRI ; JDRF |
PMID:17130525 | Free, Freely available | nlx_152867 | SCR_001557 | Type 1 Diabetes Genetics Consortium (T1DGC) | 2026-08-03 09:31:22 | 2 | ||||
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Intestinal Stem Cell Consortium Resource Report Resource Website 10+ mentions |
Intestinal Stem Cell Consortium (RRID:SCR_001555) | ISCC | consortium, organization portal, data or information resource, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 23,2022. Consortium to advance the understanding of intestinal epithelial stem cell biology during development, homeostasis, regeneration and disease. Its immediate goals are to isolate, characterize, culture and validate populations of intestinal stem cells; answer major questions in stem cell biology of the intestinal epithelium; and accelerate research by making information and resources available to the research community. Resources include data sets, protocols, and a resource catalog. Long-term goals include: 1) laying the ground work for therapeutic manipulation of the intestinal epithelium 2) contributing to the greater understanding of stem cell biology through knowledge of the intestine as a model stem cell-driven system. Research Projects are housed at 8 institutions across the nation: Oregon Health & Science University, Stanford University, Stowers Institute for Medical Research, University of California, Los Angeles School of Medicine (UCLA) (partnered with the VA Greater Los Angeles), University of North Carolina, Chapel Hill (UNC), University of Oklahoma, University of Pennsylvania, and University of Pittsburgh. | intestinal, epithelial stem cell, development, homeostasis, regeneration, disease, intestine, stem cell, intestinal stem cell, intestinal epithelium, stem cell, antibody, epithelium, data set |
is used by: NIF Data Federation is used by: NIDDK Information Network (dkNET) is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources |
NIDDK U01DK085532 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152862 | SCR_001555 | ISCC - Intestinal Stem Cell Consortium | 2026-08-03 09:31:26 | 19 | ||||||
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Type 1 Diabetes Resource Resource Report Resource Website 1+ mentions |
Type 1 Diabetes Resource (RRID:SCR_001475) | T1DR | biomaterial supply resource, material resource, organism supplier | International repository for importation, curation, genotypic and phenotypic validation, cryopreservation, and distribution of mouse stocks of value to the type 1 diabetes scientific community holding over 250 genetically modified or congenic mouse stocks that are being used to dissect genetic and biologic features of T1D. They provide extensive genotypic and phenotypic quality control and genetic stabilization for these strains, as well as incidence studies when available. An added value of T1DR stocks is their ability to propel advances in related areas of science, including research in non-T1D autoimmunity and infectious diseases. The staff provides information and technical assistance regarding selection and use of existing T1DR models, and will provide limited support for development of new models considered to be of high-value for the T1D community. The resource includes strains generated at the Jackson Laboratory as well as strains donated by external scientists. Investigators are highly encouraged to donate a strain to ensure its preservation and availability to other researchers. | genotype, phenotype, animal model |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) has parent organization: Jackson Laboratory |
Type 1 diabetes, Diabetes | NIDDK UC4DK097610 | Free, Freely Available | nlx_152730 | SCR_001475 | 2026-08-03 09:31:23 | 1 | ||||||
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Type 1 Diabetes TrialNet Resource Report Resource Website 10+ mentions |
Type 1 Diabetes TrialNet (RRID:SCR_001508) | TrialNet | portal, disease-related portal, database, resource, topical portal, clinical trial, data or information resource | International network of researchers who are exploring ways to prevent, delay and reverse the progression of type 1 diabetes. It is conducting clinical trials with researchers from 18 Clinical Centers in the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia and New Zealand. In addition, more than 150 medical centers and physician offices are participating in the TrialNet network. Studies are available for people newly diagnosed with type 1 diabetes, as well as for relatives of people with type 1 diabetes who are at greater risk of developing the disease. This NIH-sponsored clinical trials network conducts studies designed to evaluate new approaches to prevent or ameliorate type 1 diabetes specifically by interdicting the type 1 diabetes disease process. These include interventions designed to decrease beta-cell destruction and/or enhance beta-cell survival. Studies are conducted in non-diabetic persons at risk of type 1 diabetes in an effort to delay the development of type 1 diabetes as a clinical disease; or (if initiated prior to appearance of autoimmunity) in an effort to delay the appearance of autoimmunity; or in individuals with type 1 diabetes who are either newly diagnosed or have evidence of sustained beta cell function. Studies include long-term follow-up of subjects developing type 1 diabetes. The TrialNet network also supports natural history and genetics studies in populations screened for or enrolled in studies conducted by the TrialNet study group. In addition, TrialNet will evaluate methodologies that enhance the conduct of clinical trials interdicting the type 1 diabetes disease process. | intervention, beta-cell, clinical, child, young human, natural history, genetics, prevention, delay |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository has parent organization: University of South Florida; Florida; USA is parent organization of: Living Biobank |
Diabetes, Type 1 diabetes | NIDDK U01DK061058 | Available to the research community | nlx_152812 | SCR_001508 | 2026-08-03 09:31:21 | 22 | ||||||
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CKID A Prospective Cohort Study of Kidney Disease in Children Resource Report Resource Website 10+ mentions |
CKID A Prospective Cohort Study of Kidney Disease in Children (RRID:SCR_001500) | CKID | portal, disease-related portal, resource, topical portal, research forum portal, data or information resource, bibliography | Prospective, observational cohort study of children with mild to moderate chronic kidney disease (CKD) to: (1) determine risk factors for progression of pediatric chronic kidney disease (CKD); (2) examine the impact of CKD on neurocognitive development; (3) examine the impact of CKD on risk factors for cardiovascular disease, and; (4) examine the impact of CKD on growth. The CKiD study population will include a cohort of 540 children, age 1 16 years, expected to be enrolled over a 24-month period. | child, young human, pediatric, risk factor, kidney function, neurodevelopment, cognitive ability, behavior, kidney, urologic problem, glomerular disease, adverse effect, cognition, growth, adolescent, infant, clinical |
is listed by: NIDDK Information Network (dkNET) has parent organization: Johns Hopkins University; Maryland; USA |
Chronic kidney disease, Renal disease, Cardiovascular disease | NIDDK U01DK066174; NCRR M01RR000052 |
Free, Freely available | nlx_152790 | SCR_001500 | CKID: A Prospective Cohort Study of Kidney Disease in Children, Chronic Kidney Disease in Children | 2026-08-03 09:31:24 | 10 | |||||
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Collaborative Islet Transplant Registry Resource Report Resource Website 1+ mentions |
Collaborative Islet Transplant Registry (RRID:SCR_001466) | CITR | data repository, data or information resource, database, narrative resource, resource, storage service resource, service resource, report | Collect, analyze, and communicate on comprehensive and current data on all islet/beta cell transplants in human recipients performed in North America, as well as some European and Australian centers to expedite progress and promote safety in islet/beta cell transplantation. This site serves as a repository for general information concerning protocols, clinical transplantation sites, publications, and other information of interest to the general community. Annual Reports are available. Islet/beta cell transplantation is a complex procedure with many factors contributing to the outcome. Compiling and analyzing data from all transplant centers in the US, Canada, as well as some European and Australian centers will accelerate the identification of both critical risk factors and key determinants of success and thereby guide transplant centers in developing and refining islet/beta cell transplant protocols. The inclusion of the term collaborative in the name of the Registry emphasizes the importance of collaboration in fulfilling the CITR mission and goals. Close collaboration with the transplant centers will ensure that relevant questions are addressed, that data submitted are accurate and complete, and that the needs of the transplant community are served. Information on how to participate as a CITR Transplant Center and to receive a transplant center application is available through the website. Progress in islet transplantation depends entirely on complete, high-quality medical data, including the information patients consented to report to the Collaborative Islet Transplant Registry. To make it as easy as possible to provide updated information about patient's health, an on-line questionnaire is available or patients can mail it to their transplant center. This information is very important in the continuing search for a cure for Type 1 diabetes. | transplant center, transplant, islet, beta cell, clinical, islet transplantation, beta cell transplantation, outcome, metadata standard, adverse event report, diabetes, data element, bibliography, questionnaire, protocol, risk factor, case report form, allograft, pancreatectomy, autograft, islet processing | is listed by: NIDDK Information Network (dkNET) | Type 1 diabetes, Diabetes | NIDDK N01-DK6-2868; NIDDK N01-DK1-2472 |
PMID:15387102 | Free, Freely Available | nlx_152693 | SCR_001466 | 2026-08-03 09:31:23 | 9 | |||||
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Teen-Longitudinal Assessment of Bariatric Surgery Resource Report Resource Website |
Teen-Longitudinal Assessment of Bariatric Surgery (RRID:SCR_001492) | consortium, organization portal, data or information resource, portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on June 29,2023. Consortium made up of five clinical centers and a data coordinating center. The goal of Teen-LABS is to conduct clinical, epidemiological, and behavioral research in adolescent bariatric surgery, through an observational prospective study protocol. Teen-LABS is an ancillary study to LABS, an observational study of adult bariatric surgery. Research staff, certified in standardized uniform data collection according to the protocol, collect data at pre-operative research visits, at surgery, 30 days and six months post-operative, and annual post-operative research visits at the five participating centers. | adolescent human, bariatrics, pre-operative, at surgery, post-operative, clinical, epidemiology, behavior, surgical outcome, metadata standard, observational study, clinical, experimental protocol, evidence-based recommendation, patient evaluation, follow-up care | is listed by: NIDDK Information Network (dkNET) | Bariatric surgery, Obesity | NIDDK R01DK080020 | THIS RESOURCE IS NO LONGER IN SERVICE | SCR_014388, nlx_152747 | SCR_001492 | Teen-LABS, Adolescent Bariatrics: Assessing Health Benefits and Risks, Teen-Longitudinal Assessment of Bariatric Surgery, Adolescent Bariatrics: Assessing Health Benefits and Risks (Teen-LABS) | 2026-08-03 09:31:24 | 0 | ||||||
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Globin Gene Server Resource Report Resource Website 10+ mentions |
Globin Gene Server (RRID:SCR_001480) | Globin Gene Server | production service resource, data analysis service, service resource, database, narrative resource, resource, source code, analysis service resource, data or information resource, software resource, training material | Data and tools for studying the function of DNA sequences, with an emphasis on those involved in the production of hemoglobin. It includes information about naturally-occurring human hemoglobin mutations and their effects, experimental data related to the regulation of the beta-like globin gene cluster, and software tools for comparing sequences with one another to discover regions that are likely to play significant roles. | dna sequence, hemoglobin, mutation, globin gene cluster, sequence comparison, functional genomics, gene, alignment, genetic analysis, variant, gene expression, protein, thalassemia, globin gene, genome, pairwise alignment, multiple alignment, annotation, sequence analysis, dna |
is listed by: NIDDK Information Network (dkNET) has parent organization: Pennsylvania State University |
NLM R01LM05773; NLM R01LM05110; NIDDK DK27635 |
PMID:11857738 PMID:11480780 PMID:9799599 PMID:9576329 PMID:8088828 |
Free, Freely available | nlx_152723 | SCR_001480 | 2026-08-03 09:31:21 | 27 | ||||||
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Nonalcoholic Steatohepatitis Clinical Research Network Resource Report Resource Website 10+ mentions |
Nonalcoholic Steatohepatitis Clinical Research Network (RRID:SCR_001519) | NASH CRN | portal, disease-related portal, clinical trial, resource, topical portal, research forum portal, data or information resource | Clinical research network to focus on the etiology, contributing factors, natural history, complications, and therapy of nonalcoholic steatohepatitis. They research the nature and underlying cause of Nonalcoholic Steatohepatitis (NASH) and conduct clinical studies on prevention and treatment. Approximately 1,500 pediatric and adult participants throughout the United States and Canada with nonalcoholic fatty liver disease (NAFLD) have enrolled into a database. The NASH CRN has recently reopened the database to enroll additional pediatric and adult participants with NAFLD. Serum, liver tissue, and genomic DNA samples are being collected and stored in the NIDDKrepository for ongoing as well as future studies. A three-arm randomized, placebo-controlled clinical trial of pioglitazone versus vitamin E completed enrollment in 2009. In addition to this adult trial, a similar trial in pediatric NASH patients randomized 180 children to receive treatment with vitamin E, metformin, or placebo. | prevention, treatment, pediatric, child, adult human, serum, liver tissue, dna, placebo, pioglitazone, vitamin e, metformin, etiology, contributing factor, natural history, complication, therapy, young human, database, clinical trial, bibliography, patient registry |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Central Repository has parent organization: Johns Hopkins University; Maryland; USA |
Nonalcoholic steatohepatitis, Nonalcoholic fatty liver disease | NIDDK 1ZIADK075013 | Free, Freely available | nlx_152845 | https://www.nashcrn.com | SCR_001519 | Nonalcoholic Steatohepatitis Clinical Research Network (NASH CRN), Clinical Research Network in Nonalcoholic Steatohepatitis | 2026-08-03 09:31:25 | 21 | ||||
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Pediatric Acute Liver Failure Study Resource Report Resource Website |
Pediatric Acute Liver Failure Study (RRID:SCR_001478) | PALF | portal, disease-related portal, resource, topical portal, research forum portal, data or information resource | Study group and network for a 2008 longitudinal study for the etiology, diagnosis, treatment, and outcome of acute liver failure in infants, children, and adolescents. Data from patients include urine, bile, serum, liver tissue, cell lines derived from fibroblast culture, and DNA. | management strategy, infant, child, adolescent, clinical, liver, patient care, rare disease, blood, tissue, longitudinal, urine, bile, serum, liver tissue, cell line, fibroblast culture, dna, etiology, diagnosis, treatment, outcome |
is listed by: NIDDK Information Network (dkNET) is related to: Acute Liver Failure Study Group has parent organization: University of Pittsburgh; Pennsylvania; USA |
Acute liver failure | NIDDK U01DK072146 | Free, Freely available | nlx_152715 | http://www.palfstudy.org/ | SCR_001478 | Pediatric Acute Liver Failure (PALF) Study, Pediatric Acute Liver Failure (PALF) Study Group | 2026-08-03 09:31:24 | 0 |
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