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Resource Name Proper Citation Abbreviations Resource Type Description Keywords Resource Relationships Related Condition Funding Defining Citation Availability Specification URL Alternate IDs Alternate URLs Old URLs Parent Organization Resource ID Synonyms Record Last Update Mentions Count
Autoimmunity Centers of Excellence
 
Resource Report
Resource Website
Autoimmunity Centers of Excellence (RRID:SCR_006510) ACE data or information resource, disease-related portal, portal, research forum portal, resource, topical portal Nine centers that conduct clinical trials and basic research on new immune-based therapies for autoimmune diseases. This program enhances interactions between scientists and clinicians in order to accelerate the translation of research findings into medical applications. By promoting better coordination and communication, and enabling limited resources to be pooled, ACEs is one of NIAID''''s primary vehicles for both expanding our knowledge and improving our ability to effectively prevent and treat autoimmune diseases. This coordinated approach incorporates key recommendations of the NIH Autoimmune Diseases Research Plan and will ensure progress in identifying new and highly effective therapies for autoimmune diseases. ACEs is advancing the search for effective treatments through: * Diverse Autoimmunity Expertise Medical researchers at ACEs include rheumatologists, neurologists, gastroenterologists, and endocrinologists who are among the elite in their respective fields. * Strong Mechanistic Foundation ACEs augment each clinical trial with extensive basic studies designed to enhance understanding of the mechanisms responsible for tolerance initiation, maintenance, or loss, including the role of cytokines, regulatory T cells, and accessory cells, to name a few. * Streamlined Patient Recruitment The cooperative nature of ACEs helps scientists recruit patients from distinct geographical areas. The rigorous clinical and basic science approach of ACEs helps maintain a high level of treatment and analysis, enabling informative comparisons between patient groups. immune system, infection, clinical trial, clinical, basic research is listed by: NIDDK Information Network (dkNET)
is listed by: NIDDK Research Resources
Type 1 diabetes, Diabetes, Autoimmune disease, Systematic lupus erythematosus, Rheumatoid arthritis, Sjogren's syndrome, Multiple sclerosis, Chronic inflammatory bowel disease, Pemphigus vulgaris, Scleroderma NIAID ;
NIDDK ;
NIH Office of Research on Womens Health
nlx_152751 SCR_006510 2026-09-12 12:56:41 0
NIDDK Central Repository
 
Resource Report
Resource Website
50+ mentions
NIDDK Central Repository (RRID:SCR_006542) CDR, NIDDKCDR biospecimen repository, data or information resource, data repository, database, material storage repository, service resource, storage service resource NIDDK Central Repositories are two separate contract funded components that work together to store data and samples from significant, NIDDK funded studies. First component is Biorepository that gathers, stores, and distributes biological samples from studies. Biorepository works with investigators in new and ongoing studies as realtime storage facility for archival samples.Second component is Data Repository that gathers, stores and distributes incremental or finished datasets from NIDDK funded studies Data Repository helps active data coordinating centers prepare databases and incremental datasets for archiving and for carrying out restricted queries of stored databases. Data Repository serves as Data Coordinating Center and website manager for NIDDK Central Repositories website. clinical supply resource, data, clinical, sample sharing, genotyping, genotype, phenotype, genetic analysis, data sharing, genetics, serum, plasma, stool, urine, dna, red blood cell, buffy coat, tissue, immortalized cell line, cell line, data set, digestive organ, kidney, diabetes, kidney disease, digestive disease, genome-wide association study, sequencing, FASEB list uses: DataCite
is used by: NIDDK Information Network (dkNET)
is used by: NIF Data Federation
is used by: NIH Heal Project
is recommended by: National Library of Medicine
is recommended by: NIDDK Information Network (dkNET)
is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases
lists: HEALTHY study
lists: Nonalcoholic Steatohepatitis Clinical Research Network
lists: HALT-C Trial
lists: Type 1 Diabetes Genetics Consortium
lists: TEDDY
lists: Type 1 Diabetes TrialNet
lists: Rare and Atypical Diabetes Network
lists: Diabetes Prevention Program
lists: Diabetes Prevention Program Outcomes Study
lists: Restoring Insulin Secretion Consortium (RISE)
lists: Epidemiology of Diabetes Interventions and Complications
lists: Diabetes Control and Complications Trial
lists: Treatment Options for type 2 Diabetes in Adolescents and Youth
is listed by: One Mind Biospecimen Bank Listing
is listed by: re3data.org
is listed by: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB)
is listed by: NIDDK Information Network (dkNET)
is related to: NCBI database of Genotypes and Phenotypes (dbGap)
is related to: Peginterferon and Ribavirin for Pediatric Patients with Chronic Hepatitis C
is related to: Chronic Renal Insufficiency Cohort Study
has parent organization: RTI International
NIDDK PMID:23396299
PMID:21959867
PMID:16595012
Restricted nlx_152673, r3d100010377 https://doi.org/10.17616/R3WP48 https://www.niddkrepository.org, SCR_006542 NIDDK Central Repository, National Institute of Diabetes and Digestive and Kidney Diseases Central Repository, NIDDKCentral Repositories 2026-09-12 12:56:41 92
CTE and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging
 
Resource Report
Resource Website
1+ mentions
CTE and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging (RRID:SCR_006543) CTE and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging data or information resource, disease-related portal, portal, research forum portal, topical portal Initiative to assemble a multicenter team of expert neuroscientists to evaluate the late effects of Traumatic brain injury (TBI), including single and repetitive TBI of varying severity, and Chronic Traumatic Encephalopathy (CTE), using histological examination of postmortem bio specimens and neuroimaging tools as a foundation to develop in vivo diagnostics. As a first aim, this proposal will bring together a team of 5 accomplished neuropathologists in neurodegenerative disease to establish consensus criteria for the post-mortem diagnosis of CTE. This team will also define the stages of CTE pathology, the features that differentiate CTE from other neurodegenerations and the effects of substance abuse, and the characteristics of posttraumatic neurodegeneration after single TBI. As a second aim, this proposal will establish a national bio specimen and data bank for TBI (Understanding Neurological Injury and Traumatic Encephalopathy (UNITE) bio bank) by developing a nationwide brain donor registry and hotline to acquire high quality bio specimens and data. The UNITE bank will use strictly standardized protocols and a web-based interface to ensure that tissue and data are readily available to qualified investigators. Comprehensive retrospective clinical data including clinical symptoms, brain trauma and substance abuse history, and medical records (including common data elements) will be entered into a secure database. Behavioral/ mood dysfunction, cognitive changes, substance abuse and traumatic exposure will be correlated with quantitative assessment of the multifocal tauopathy, Ass deposition and axonal injury. As a third aim, neuroimaging signatures of the neuropathology will be determined in post-mortem tissue using high spatial resolution diffusion tensor imaging (DTI) and autoradiography using a highly selective PET ligand for tau. Quantitative assessment of axonal injury, tau, and Ass will be correlated with ex vivo DTI abnormalities and tau ligand autoradiography. Pilot neuroimaging studies of individuals at high risk for the development of CTE will also be conducted in the final 2 years of the proposal. This proposal will determine the clinical and neuroimaging correlates of CTE and posttraumatic neurodegeneration and create the groundwork for establishing their incidence and prevalence. This study will have a tremendous impact on public health of millions of Americans and greatly increase our understanding of the latent effects of brain trauma. brain bank, biospecimen repository, neuroimaging, brain, neuropathology, dti, pet, clinical, cognitive decline, dementia, axonal injury, aggregated protein, neurodegeneration, post-mortem, incidence, prevalence, risk factor, clinical course, treatment, diagnosis, biomarker has parent organization: Boston University School of Medicine; Massachusetts; USA Traumatic brain injury, Chronic traumatic encephalopathy nlx_156786 SCR_006543 Chronic Traumatic Encephalopathy and Post-traumatic Neurodegeneration: Neuropathology and Ex Vivo Imaging 2026-09-12 12:56:41 1
F1000: Faculty of 1000 Post-Publication Peer Review
 
Resource Report
Resource Website
10+ mentions
F1000: Faculty of 1000 Post-Publication Peer Review (RRID:SCR_006537) F1000 commercial organization Service that identifies and evaluates the most important articles in biology and medical research publications. The selection process comprises a peer-nominated global ''Faculty'' of the world''s leading scientists and clinicians who rate the best of the articles they read and explain their importance. Faculty Members and their evaluations are organized into over 40 Faculties (subjects), which are further subdivided into over 300 Sections. On average, 1500 new evaluations are published each month; this corresponds to approximately the top 2% of all published articles in the biological and medical sciences. F1000 is a subscription service paid for by academic and corporate institutions. Users at subscribing institutions automatically receive full access to the F1000 service when using internet facilities provided by their institution. biology, medicine, biomedical science, clinical, database, peer review, medical research is used by: PrePubMed
is listed by: FORCE11
is related to: Overleaf
has parent organization: Science Navigation Group
is parent organization of: F1000 Reports
is parent organization of: Faculty of 1000 - YouTube
is parent organization of: F1000 Posters
is parent organization of: Naturally Selected
Subscription nlx_71290, Wikidata: Q5428884, grid.466681.b, ISNI: 0000 0000 8758 3069 https://ror.org/019tc7185 http://www.facultyof1000.com/ SCR_006537 F1000 Evaluations, Faculty of 1000, F1000 Evaluated Articles 2026-09-12 12:56:41 14
Leiden Open Variation Database
 
Resource Report
Resource Website
100+ mentions
Leiden Open Variation Database (RRID:SCR_006566) LOVD data or information resource, data processing software, data repository, data storage software, database, service resource, software application, software resource, storage service resource Freely available tool for Gene-centered collection and display of DNA variations. It also provides patient-centered data storage and storage of Next Generation Sequencing (NGS) data, even of variants outside of genes. Please note that LOVD provides a system for storage of information on genes and allelic variants. To obtain information about any genes or variants, do not download the LOVD package. This information should be obtained from the respective databases, http://www.lovd.nl/2.0/index_list.php In total: 2,507,027 variants (2,208,937 unique) in 170,935 individuals in 62619 genes in 88 LOVD installations. (Aug. 2013) LOVD 3.0 shared installation, http://databases.lovd.nl/shared/genes To maintain a high quality of the data stored, LOVD connects with various resources, like HGNC, NCBI, EBI and Mutalyzer. You can download LOVD in ZIP and GZIPped TARball formats. genetic variation, genomic variant, gene, transcript, disease, next generation sequencing, dna variation, variant, clinical, screening, locus, phenotype, sequence variation, allelic variant, data sharing, FASEB list is listed by: OMICtools
has parent organization: Leiden University; Leiden; Netherlands
European Union FP7 GEN2PHEN 200754 PMID:21520333
PMID:15977173
The community can contribute to this resource, Clearance to contribute required, GNU General Public License, Acknowledgement requested nif-0000-02998, OMICS_00275, r3d100011905 https://doi.org/10.17616/R3993T SCR_006566 Leiden Open Variation Database (LOVD) 2026-09-12 12:56:42 315
NIMH Repository and Genomics Resources
 
Resource Report
Resource Website
50+ mentions
NIMH Repository and Genomics Resources (RRID:SCR_006698) NRGR, RGR institution Collaborative venture between the National Institute of Mental Health (NIMH) and several academic institutions. Repository facilitates psychiatric genetic research by providing patient and control samples and phenotypic data for wide-range of mental disorders and Stem Cells.Stores biosamples, genetic, pedigree and clinical data collected in designated NIMH-funded human subject studies. RGR database likewise links to other repositories holding data from same subjects, including dbGAP, GEO and NDAR. Allows to access these data and biospecimens (e.g., lymphoblastoid cell lines, induced pluripotent cell lines, fibroblasts) and further expand genetic and molecular characterization of patient populations with severe mental illness. biosamples, genetic, pedigree, clinical, data is listed by: One Mind Biospecimen Bank Listing
is related to: NIMH Stem Cell Center
is related to: Rutgers Cell and DNA Repository
is related to: Sequenced Treatment Alternatives to Relieve Depression Study
is related to: CATIE - Clinical Antipsychotic Trials in Intervention Effectiveness
is related to: Systematic Treatment Enhancement Program for Bipolar Disorder (STEP-BD)
is related to: NKI-RS Enhanced Sample
has parent organization: Rutgers University; New Jersey; USA
has parent organization: Washington University in St. Louis; Missouri; USA
has parent organization: University of Southern California; Los Angeles; USA
Bipolar Disorder, Schizophrenia, Alzheimer's disease, Autism, Attention deficit-hyperactivity disorder, Depression, Control, Obsessive-Compulsive Disorder, Anorexia Nervosa, Relative, Mental disorder, Brain disorder, Relative National Institute for Mental Health ;
NIH Blueprint for Neuroscience Research
Restricted grid.482687.7, nif-0000-00186, SCR_016318 https://ror.org/026dax180 SCR_006698 NIMH: Center for Collaborative Genetic Studies, NIMH Human Genetics Initiative, NIMH Center for Genetic Studies, NIMH Genetics, Center for Collaborative Genomic Studies on Mental Disorders, NIMH Repository and Genomics Resources (NRGR) 2026-09-12 12:56:44 66
RxNorm
 
Resource Report
Resource Website
500+ mentions
RxNorm (RRID:SCR_006645) RxNorm controlled vocabulary, data or information resource, ontology Ontology that provides a normalized naming system for generic and branded drugs and a tool for supporting semantic interoperation between drug terminologies and pharmacy knowledge base systems. It contains the names of prescription and many over-the-counter drugs available in the United States and links its names to many of the drug vocabularies commonly used in pharmacy management and drug interaction software. It can mediate messages between systems not using the same software and vocabulary. * RxNorm Download Files - contain data consistent with the 2013AB UMLS Metathesaurus Release Files. * RxNorm API - web service for accessing the current RxNorm data set. * RxNorm Browser (RxNav) - a browser for several drug information sources, including RxNorm, RxTerms and National Drug File - Reference Terminology (NDF-RT) . * Current Prescribable Content - subset of currently prescribable drugs found in RxNorm. * RxTerms Drug Interface Terminology - a drug interface terminology derived from RxNorm for prescription writing or medication history recording umls, drug, pharmacy, clinical, drug pack, medicine, unique identifier, prescribable drug, web service, metathesaurus, generic drug, branded drug, data set, web service, database is listed by: BioPortal
has parent organization: National Library of Medicine
PMID:22426081 Account required, (UMLS Terminology Services (UTS)) nif-0000-02575 SCR_006645 Rx Norm 2026-09-12 12:56:43 760
Influenza Research Database (IRD)
 
Resource Report
Resource Website
50+ mentions
Influenza Research Database (IRD) (RRID:SCR_006641) IRD analysis service resource, data analysis service, data or information resource, data repository, database, production service resource, service resource, storage service resource The Influenza Research Database (IRD) serves as a public repository and analysis platform for flu sequence, experiment, surveillance and related data. avian, clinical, genomic, host, influenza, isolate, mammalian, nonhuman, phenotypic, preventive, proteomic, repository, strain, epitope, surveillance, treatment, virus, protein sequence, immune, 3d protein structure, align, blast, short peptide, flu protein, sequence variation, snp, phylogenetic tree, human, 3d spacial image, image, clinical data, clinical, genomic, proteomic, phenotype is recommended by: NIDDK Information Network (dkNET)
is listed by: DataCite
is listed by: re3data.org
is listed by: FAIRsharing
is related to: Los Alamos National Laboratory
is related to: University of California at Davis; California; USA
is related to: Sage Analytica
is related to: J. Craig Venter Institute
has parent organization: University of Texas Southwestern Medical Center; Texas; USA
has parent organization: Los Alamos National Laboratory
has parent organization: Sage Analytica
Influenza virus, Influenza NIAID PMID:17965094 Acknowledgement requested, The community can contribute to this resource DOI:10.25504/FAIRsharing.ws7cgw, nif-0000-21222, DOI:10.17616/R3S634, DOI:10.35094, r3d100011558 https://www.fludb.org/, https://doi.org/10.17616/R3S634, https://doi.org/10.17616/r3s634, https://doi.org/10.35094/, https://dx.doi.org/10.35094/, https://fairsharing.org/10.25504/FAIRsharing.ws7cgw, https://doi.org/10.17616/R3S634 http://www.fludb.org/brc/home.do?decorator=influenza SCR_006641 , Influenza Research Database, IRD 2026-09-12 12:56:43 55
Atlas of Medical Parasitology
 
Resource Report
Resource Website
Atlas of Medical Parasitology (RRID:SCR_008163) A.M.P., AMP data or information resource, data repository, database, image repository, service resource, storage service resource Database of images on medical parasitology created to provide educational materials for medical students primarily, but professional workers in medical or paramedical fields may also refer to this site covering the significant parasites in the world. Each database of protozoans, nematodes, trematodes, cestodes and arthropods contains information on the morphology, life cycle, geographical distribution, symptoms, prevention, etc. Users who wish to contribute can send the editor unpublished images of human parasites (microscopical, clinical, radiological or epidemiological aspects of human parasitic infections) by mail or e-mail. Pathology specimens (slide, samples) are welcome too. The A.M.P. received the citation of reliable sources such as Parasitology today and The Lancet, and is now listed in the Internet Resources on Specific Infectious Diseases Topics of the Mandell, Douglas and Bennets Principles and Practice of Infectious Diseases Fifth Edition.
This website was established with a great contribution of the PROJECT COLLABORATORS and many contributors of The Korean Society for Parasitology.
epidemiological, clinical, disease, human, infection, medical, microscopical, parasite, parasitic, parasitology, pathology, radiological, specimen, morphology, life cycle, geographical distribution, symptom, prevention, human parasite, biospecimen repository, training material, image has parent organization: Chungbuk National University; Cheongju; South Korea Human parasitic infection Ministry of Health and Welfare - Republic of Korea ;
Korean Medical Research Information Center
The community can contribute to this resource nif-0000-21025 http://www.cdfound.to.it/_atlas.htm SCR_008163 Web Atlas of Medical Parasitology 2026-09-12 12:57:00 0
ABX Guide
 
Resource Report
Resource Website
1+ mentions
ABX Guide (RRID:SCR_008214) ABX Guide continuing medical education, data or information resource, database, training resource Concise, clinically useful information for diagnosing, managing and treating infectious diseases in adults; however it does cover some pediatric topics including vaccines. It is designed for primary care providers and other non-infectious disease specialists as a tool that can be used at the point of care to assist in prescribing antibiotics. drug interaction, drug, evaluation, antibiotic, clinical, contraindication, diagnosis, disease, disease state, dosing, immunization, indication, infectious disease, literature review, pathogen, pharmacokinetics, side effect, treatment, vaccine, antibiotic, adult, pediatric, vaccine, point of care is related to: Johns Hopkins Point of Care Guides
is related to: Johns Hopkins University; Maryland; USA
Infectious disease Available for purchase nif-0000-21292 SCR_008214 Johns Hopkins ABX Guide, Johns Hopkins Antibiotic Guide 2026-09-12 12:57:01 4
HIV Guide
 
Resource Report
Resource Website
1+ mentions
HIV Guide (RRID:SCR_008252) bibliography, continuing medical education, data or information resource, database, training resource Launched in 2004, the HIV Guide is a single disease resource, with two main parts: the HIV database, which is accessed by searching on diagnosis, drug name, pathogen, or management or by accessing the resistance tool, and there are also browsable areas of the site, which include news, features, continuing medical education programs and other types of additional readings and information. Guides are authored by academic clinicians and subject to rigorous peer review. You may browse the guide by: Diagnosis Covering opportunistic infections, malignancies, and complications of therapy. Drugs Includes indications, dosing, drug interactions, and author recommendations. Pathogen - Describes microbiology, clinical syndromes, and therapy. Management Including antiretroviral therapy guidelines and strategies. Resistance Tool Provides up-to-date interpretation of genotypic resistance test results. Whether searching for a drug, a pathogen, a diagnosis, or a management issue, your search results will be delivered in a concise and standard form designed to give you the most clinically useful information first, with the option to go deeper if you choose. If you search by diagnosis, you will receive a page listing points covering establishment of a diagnosis, related pathogens, treatment recommendations, issues to consider on follow up, references and more. At each step, we provide you immediately with the information you need to treat the diagnosis and give you the option to read more or more deeply if you choose. On the diagnosis page, you are also provided with links to the information sheet for each drug that may be prescribed, and if you indicate which drug you intend to use, you will be provided with relevant drug selected comments. If you search by drug, you will receive a page listing FDA indications, usual adult dosing, adverse drug reactions, drug interactions, spectrum, and forms. You are also able to access full pharmacological information (mechanism, absorption, Cmax, volume of distribution, protein binding, metabolism/excretion, t _, dosing for glomerular filtration of 50-80, dosing for glomerular filtration of 10-50, dosing for glomerular filtration of <10 ml/min, dosing in hemodialysis, dosing in peritoneal dialysis, dosing in cavh, dosing for decreased hepatic function, pregnancy risk, and breast feeding compatibility). If you search by pathogen, you will receive a page covering the microbiology, clinical relevance, sites of infection, drug selected comments, other information and references. You are also provided with links to information for each drug that may be prescribed, and if you indicate which drug you intend to use, you will be provided with the drug selected comments for that choice. If you search by management, you will receive a page listing definition, indications, and clinical recommendations and additional details, including references. If you click on more wherever it appears on a page, you will find more detailed material about the topic. In addition, the HIV Guide homepage contains a Features section and Literature Review that contain synopses and articles about pertinent topics. The Publications section also provides .pdf versions of the Hopkins HIV Report. Prices represent the cost per unit specified, reflecting the Average Wholesale Price (AWP). AWP prices are taken from the Red Book, manufacturer information, and the McKesson database. These prices are updated every six months. We have listed up to 10 FDA-approved indications for uses of drugs. Though in some cases more may exist, for brevity and formatting issues authors and editors have chosen what they deem the most important. Also listed are disease states for which a drug may be likely prescribed regardless of FDA approval status (see Non-FDA approved uses). The HIV Guide is primarily focused on adult care but does cover issues of perinatal transmission. The material presented on this site represents the considered opinion of the Hopkins expert listed as the author of the module as of the date indicated. The reference section contains an annotated list of the articles that the author considers to be most relevant to the topic. Where authoritative guidelines exist, such as CDC, IDSA or Medical Letter guidelines, they are referenced and discussed along with the author''s recommendations presented. drug interactions, drugs, adult, adverse drug reactions, aids, antiretroviral, clinical, clinical recommendations, complications, diagnosis, dosing, genotypic resistance, hiv, human, indications, infections, malignancies, management resistance tool, microbiology, newsletter, pathogen, syndromes, therapy, book, continuing medical education has parent organization: Johns Hopkins University; Maryland; USA nif-0000-22350 SCR_008252 HIV Guide 2026-09-12 12:57:01 2
DE-ID Data Corp
 
Resource Report
Resource Website
1+ mentions
DE-ID Data Corp (RRID:SCR_008668) software resource A commercial organization that suppplies software which creates separate HIPAA-compliant repositories of de-identified patient records and reports. This software allows clinicians, researchers, and administrative leadership to safely access, search, share, and analyze de-identified patient-level data. DE-ID can be acquired as stand-alone tool or integrated with data networks or clinical information systems. clinical, data, patient protection, surgical report nif-0000-33387 SCR_008668 DE-ID Data Corp 2026-09-12 12:57:07 1
Rush Alzheimer's Disease Center
 
Resource Report
Resource Website
1+ mentions
Rush Alzheimer's Disease Center (RRID:SCR_008763) RADC biomaterial supply resource, brain bank, material resource, tissue bank An Alzheimer's disease center which researches the cause, treatment and prevention of Alzheimer's disease with a focus on four main areas of research: risk factors for Alzheimer's and related disorders, the neurological basis of the disease, diagnosis, and treatment. Data includes a number of computed variables that are available for ROS, MAP and MARS cohorts. These variables are under categories such as affect and personality, chronic medical conditions, and clinical diagnosis. Specimens include ante-mortem and post-mortem samples obtained from subjects evaluated by ROS, MAP and clinical study cores. Specimen categories include: Brain tissue (Fixed and frozen), Spinal cord, Muscles (Post-mortem), and Nerve (Post-mortem), among other types of specimens. Data sharing policies and procedures apply to obtaining ante-mortem and post-mortem specimens from participants evaluated by the selected cohorts of the RADC. clinical, post mortem, ante mortem, late adult human, brain, tissue, spinal cord, muscle, nerve, dna, lymphocyte, serum, plasma, urine, fixed, frozen, cryopreserved, alzheimer's disease, memory is listed by: One Mind Biospecimen Bank Listing Alzheimer's disease, Alzheimer's-related disorder, Aging NIA Available to the research community, Data sharing policies apply to both data and specimens nlx_144050 SCR_008763 Rush ADC, Rush Alzheimer's Disease Center 2026-09-12 12:57:08 3
NYU Alzheimer's Disease Center
 
Resource Report
Resource Website
NYU Alzheimer's Disease Center (RRID:SCR_008754) NYU ADC biomaterial supply resource, brain bank, material resource, tissue bank The NYU Alzheimer's Disease Center is part of the Department of Psychiatry at New York University School of Medicine. The center's goals are to advance current knowledge and understanding of brain aging and Alzheimer's disease, to expand the numbers of scientists working in the field of aging and Alzheimer's research, to work toward better treatment options and care for patients, and to apply and share its findings with healthcare providers, researchers, and the general public. The ADC's programs and services extend to other research facilities and to healthcare professionals through the use of its core facilities. The NYU ADC is made up of seven core facilities: Administrative Core, Clinical Core, Neuropathology Core, Education Core, Data Management and Biostatistics Core, Neuroimaging Core, and Psychosocial Core. brain, tissue, alzheimer's disease, dementia, meeting resource, clinical, imaging, neuroimaging, psychosocial, post-mortem, autopsy, vaccination, treatment is listed by: One Mind Biospecimen Bank Listing
has parent organization: New York University School of Medicine; New York; USA
Alzheimer's disease, Dementia, Aging NIA Available to collaborators nlx_144383 http://www.med.nyu.edu/adc/ SCR_008754 NYU Alzheimer's Disease Center, New York University Alzheimer's Disease Center 2026-09-12 12:57:08 0
Clinical Research Study Investigators Toolbox
 
Resource Report
Resource Website
Clinical Research Study Investigators Toolbox (RRID:SCR_008815) NIA Clinical Research Toolbox data or information resource, narrative resource, portal, standard specification, topical portal The purpose of the NIA Clinical Research Toolbox is to provide a Web-based information repository for investigators and staff involved in clinical research. The Toolbox contains templates, sample forms, guidelines, regulations and information materials to assist investigators in the development and conduct of high quality clinical research studies. clinical research, adverse event, monitor, safety, informed consent, clinical research term, clinical Aging nlx_144419 SCR_008815 NIA Clinical Research Study Investigators Toolbox, Clinical Research Study Investigator''s Toolbox, NIA Clinical Research Study Investigator''s Toolbox 2026-09-12 12:57:09 0
Central Brain Tumor Registry of the United States
 
Resource Report
Resource Website
10+ mentions
Central Brain Tumor Registry of the United States (RRID:SCR_008748) CBTRUS nonprofit organization Voluntary, non-profit organization dedicated to collecting and disseminating statistical data. Resource for gathering and disseminating epidemiologic data on all primary benign and malignant brain and other CNS tumors. human, brain, tumor, cancer, central nervous system, epidemiology, incidence, survival, diagnosis, treatment, benign, malignant, registry, epidemiological data, aggregator, clinical, statistics, population, histology, age, gender, race, hispanic, mortality Brain tumor, Aging American Brain Tumor Association ;
National Brain Tumor Society ;
Pediatric Brain Tumor Foundation ;
NCI contract HHSN261201000576P
PMID:23095881 Application required., The community can contribute to this resource grid.492337.8, ISNI: 0000 0004 0484 2205, nlx_143889 https://ror.org/03849s113 SCR_008748 2026-09-12 12:57:08 26
Clinical Outcomes Research Initiative
 
Resource Report
Resource Website
1+ mentions
Clinical Outcomes Research Initiative (RRID:SCR_009010) CORI data or information resource, database, resource, service resource, software resource THIS RESOURCE IS NO LONGER IN SERVICE. Documented on December 5, 2022. Endoscopic Reporting Software, aggregated and individual research data and tailor-made services aimed to advance the overall practice of endoscopy. It was developed to study outcomes of gastrointestinal (GI) endoscopic procedures in real life settings, using data obtained from the CORI Endoscopic Reporting Software or from other endoscopic reporting software. Practice sites include hospitals, ambulatory care centers, private practices, universities, and Veteran''''s hospitals (VA''''s). The CORI v4 Endoscopic Reporting Software is a specialty Electronic Health Record used to document endoscopic procedures and provide reporting services to your practice. Data from participating providers is also sent to a central data repository to become part of the National Endoscopic Database (NED), which now contains data from over 2.7 million GI procedures. The CORI v4 Endoscopic Reporting Software offers significant benefits for participating practices, providers and patients, as well as for everyone who benefits from CORI''''s research efforts. You may actively participate in research with CORI. If you have ideas for research using the NED, their research team can help you evaluate those ideas, collect and analyze the data. In addition, you may choose to participate in one of the prospective research projects conducted by CORI research staff. clinical, endoscopy, gastroenterology, gastrointestinal, endoscopic, endoscopy reporting software, outcome, report, electronic health record, aggregator is listed by: NIDDK Information Network (dkNET)
is listed by: NIDDK Research Resources
has parent organization: Oregon Health and Science University; Oregon; USA
NIDDK THIS RESOURCE IS NO LONGER IN SERVICE nlx_152692 SCR_009010 2026-09-12 12:57:11 6
GRDR
 
Resource Report
Resource Website
1+ mentions
GRDR (RRID:SCR_008978) GRDR, RaDaR data or information resource, data repository, database, patient registry, people resource, service resource, storage service resource Data repository of de-identified patient data, aggregated in a standardized manner, to enable analyses across many rare diseases and to facilitate various research projects, clinical studies, and clinical trials. The aim is to facilitate drug and therapeutics development, and to improve the quality of life for the many millions of people who are suffering from rare diseases. The goal of GRDR is to enable analyses of data across many rare diseases and to facilitate clinical trials and other studies. During the two-year pilot program, a web-based template will be developed to allow any patient organization to establish a rare disease patient registry. At the conclusion of the program, guidance will be available to patient groups to establish a registry and to contribute de-identified patient data to the GRDR repository. A Request for Information (RFI) was released on February 10, 2012 requesting information from patient groups about their interest in participating in a GRDR pilot project. ORDR selected 30 patient organizations to participate in this pilot program to test the different functionalities of the GRDR. Fifteen (15) organizations with established registries and 15 organizations that do not have patient registry. The 15 patient groups, each without a registry, were selected to assist in testing the implementation of the ORDR Common Data Elements (CDEs) in the newly developed registry infrastructure. These organizations will participate in the development and promotion of a new patient registry for their rare disease. The GRDR program will fund the development and hosting of the registry during the pilot program. Thereafter, the patient registry is expected to be self-sustaining.The 15 established patient registries were selected to integrate their de-identified data into the GRDR to evaluate the data mapping and data import/export processes. The GRDR team will assist these organizations in mapping their existing registry data to the CDEs. Participating registries must have a means to export their de-identified registry data into a specified data format that will facilitate loading the data into the GRDR repository on a regular basis. The GRDR will also develop the capability to link patients'''' data and medical information to donated biospecimens by using a Voluntary Global Unique Patient Identifier (GUID). The identifier will enable the creation of an interface between the patient registries that are linked to biorepositories and the Rare Disease Human Biospecimens/Biorepositories (RD-HUB) http://biospecimens.ordr.info.nih.gov/. clinical, common data element, global unique patient identifier, clinical trial, drug development, therapy is related to: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB)
is related to: NIH Data Sharing Repositories
has parent organization: Office of Rare Diseases Research
Rare disease NIH Public, The community can contribute to this resource nlx_152145 http://www.grdr.info/ SCR_008978 Rare Diseases Registry Program (RaDaR), Global Rare Diseases Patient Registry and Data Repository 2026-09-12 12:57:11 1
Federal Interagency Traumatic Brain Injury Research Informatics System
 
Resource Report
Resource Website
50+ mentions
Federal Interagency Traumatic Brain Injury Research Informatics System (RRID:SCR_006856) FITBIR data or information resource, data repository, database, narrative resource, portal, service resource, standard specification, storage service resource, topical portal Platform for Traumatic Brain Injury relevant data. System was developed to share data across entire TBI research field and to facilitate collaboration between laboratories and interconnectivity between informatics platforms. FITBIR implements interagency Common Data Elements for TBI research and provides tools and resources to extend data dictionary. Established submission strategy to ensure high quality and to provide maximum benefit to investigators. Qualified researchers can request access to data stored in FITBIR and/or data stored at federated repositories. Traumatic, brain, injury, platform, common, data, element, medical, imaging, clinical, assessment, environment, behavior, brain, magnetic, resonance is recommended by: National Library of Medicine
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC)
is listed by: NIH Data Sharing Repositories
is related to: NIH Data Sharing Repositories
has parent organization: Center for Information Technology
Traumatic Brain Injury Center for Information Technology ;
NINDS ;
U.S. Army Medical Research and Material Command
Restricted nlx_151755, r3d100012837 https://doi.org/10.17616/R31NJMED SCR_006856 Federal Interagency Traumatic Brain Injury Research (FITBIR) Informatics System, FITBIR Informatics System 2026-09-12 12:56:46 74
Nonhuman Primate Transplantation Tolerance Cooperative Study Group
 
Resource Report
Resource Website
Nonhuman Primate Transplantation Tolerance Cooperative Study Group (RRID:SCR_006847) NHPCSG data or information resource, disease-related portal, portal, research forum portal, resource, topical portal Cooperative program for research on nonhuman primate models of kidney, islet, heart, and lung transplantation evaluating the safety and efficacy of existing and new treatment regimens that promote the immune system''''s acceptance of a transplant and to understand why the immune system either rejects or does not reject a transplant. This program bridges the critical gap between small-animal research and human clinical trials. The program supports research into the immunological mechanisms of tolerance induction and development of surrogate markers for the induction, maintenance, and loss of tolerance. transplantation, clinical, kidney, islet, tolerance, heart, lung, treatment, immune system, tolerance induction is related to: NIDDK Information Network (dkNET) Kidney transplantation, Islet transplantation, Heart transplantation, Lung transplantation NIDDK ;
NIAID
nlx_152728 http://www.niddk.nih.gov/fund/diabetesspecialfunds/consortia/NHP.pdf SCR_006847 Non-human Primate Transplantation Tolerance Cooperative Study Group 2026-09-12 12:56:46 0

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