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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Mayo Clinic Resource Report Resource Website 50+ mentions |
Mayo Clinic (RRID:SCR_011383) | institution | Nonprofit academic medical center focused on integrated clinical practice, education, and research with three major campuses: Rochester, Minnesota; Jacksonville, Florida; and Phoenix/Scottsdale, Arizona. Practice specializes in treating difficult cases through tertiary care and destination medicine. | medical, academic, center, integrated, clinical, practice, cardiovascular, disease, surgery |
uses: Kaggle is related to: Alzheimers Disease Genetics Consortium is related to: Clinical and Translational Science Awards Consortium is related to: Care Connectivity Consortium is parent organization of: Mayo Clinic College of Medicine is parent organization of: Mayo Clinic Florida; Florida; USA is parent organization of: Mayo Clinic Minnesota; Minnesota; USA is parent organization of: SnowsShoes-FTD is parent organization of: Mayo Clinic Center for Cell Signaling in Gastroenterology Clinical Core is parent organization of: Mayo Clinic Center for Cell Signaling in Gastroenterology Gene Editing and Cell Engineering Core is parent organization of: Mayo Clinic Center for Cell Signaling in Gastroenterology is parent organization of: Mayo Clinic Center for Cell Signaling in Gastroenterology Optical Microscopy Core is parent organization of: Mayo Clinic O'Brien Urology Center Urine Phenotyping Core is parent organization of: Mayo Clinic O'Brien Urology Center Imaging Core is parent organization of: Mayo Clinic O'Brien Urology Center is parent organization of: Mayo Clinic O'Brien Urology Center Biostatistics and Epidemiology Core is parent organization of: KnowEnG is parent organization of: Mayo Clinic Rochehster Bioinformatics Core Facility is parent organization of: Sample Size Matters is parent organization of: Mayo Clinic Immunochemical Core Facility is parent organization of: CNVpytor is parent organization of: Mayo Clinic Immune Monitoring Core Facility is parent organization of: Mayo Clinic Medical Genome Core Facility is parent organization of: Mayo Clinic Arizona Flow Cytometry Core Facility is parent organization of: Mayo Clinic Stem Cell and Organoid Core Facility is parent organization of: Mayo Clinic Cytometry and Cell Imaging Core Facility is parent organization of: Mayo Clinic Structural Biology Core Facility is parent organization of: Mayo Clinic Antibody Hybridoma Core Facility is parent organization of: Mayo Clinic Biomedical Imaging Resource Core Facility is parent organization of: Mayo Clinic Precision Mouse Engineering Core Facility is parent organization of: Mayo Clinic Genetic Screening and Engineering Core Facility is parent organization of: Mayo Clinic Genome Analysis Core Facility is parent organization of: Mayo Clinic Arizona Research Histology Care Facility |
GRID grid.66875.3a, Wikidata Q1130172, Crossref Funder ID 100000871, ISNI 0000 0004 0459 167X | https://ror.org/02qp3tb03 | SCR_011383 | 2026-09-12 12:57:33 | 71 | |||||||||
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National Institutes of Neurological Disorders and Stroke: Research Funding Resource Report Resource Website |
National Institutes of Neurological Disorders and Stroke: Research Funding (RRID:SCR_012874) | funding resource | Research funding for basic and clinical neuroscience trials to help train investigators and better understand diagnosis, treatment, and prevention of neurological disorders. Funds are allocated by Congress on a yearly basis. | epilepsy, epileptic seizure, funding resource, craniocervical injury, grant, grants, nervous system injury, nervous system trauma, neural stem cell, paralysis agitans, parkinson's, parkinson's disease, parkinson syndrome, seizure disorder, traumatic brain injury, research, funding, clinical, neuroscience, basic, trials | Available to the research community | nif-0000-01869 | SCR_012874 | NINDS Research Funding | 2026-09-12 12:57:54 | 0 | |||||||||
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Traumatic Brain Injury Clinical Trials Network Resource Report Resource Website |
Traumatic Brain Injury Clinical Trials Network (RRID:SCR_013165) | TBI Clinical Trials Network | data or information resource, disease-related portal, knowledge environment, portal, research forum portal, topical portal | The National Center for Medical Rehabilitation Research (NCMRR) established a multi-center network of sites that are working together to design clinical intervention protocols and measures of outcome for TBI. Through rigorous patient evaluation, using common protocols and interventions designed for multiple points of care����??including the accident scene, emergency room, intensive care unit, rehabilitation and long-term follow-up����??the NCMRR TBI Clinical Trials Network can study the required numbers of patients to provide answers more rapidly than individual centers acting alone. This interdisciplinary research Network is designed to evaluate the relationship among acute care practice, rehabilitation strategies, and the long-term functional outcome of TBI patients����??that is, to identify which intervention variables result in improvements in long-term outcomes. Taking advantage of the network model structure has allowed TBI research to progress toward a number of clinical research goals. Specifically, the NCMRR wants to highlight two major achievements to date. First, the TBI Network created a profile of its typical patient to determine the number of patients with different clinical features who might be eligible for future studies and to help estimate recruitment times necessary. Second, Network researchers are developing clinical treatment guidelines and procedures for all points in the continuum of care, including TBI Clinical Trials Network Guidelines for surgical care, systems-based protocol for severe and moderate TBI patients, deep-vein thrombosis prophylaxis procedures, and rehabilitation guidelines for physical therapy, speech-language pathology, occupational therapy, and neuropsychology. | traumatic brain injury, clinical, research, clinical trial, outcome, intervention, one mind tbi | has parent organization: National Institute of Child Health and Human Development | Traumatic Brain Injury | NCMRR | nlx_143904 | http://www.nichd.nih.gov/research/supported/TBI.cfm | SCR_013165 | NCMRR TBI Clinical Trials Network, Traumatic Brain Injury (TBI) Clinical Trials Network | 2026-09-12 12:57:59 | 0 | |||||
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Kennedy Krieger Institute: Diagnoses/Disorders Resource Report Resource Website |
Kennedy Krieger Institute: Diagnoses/Disorders (RRID:SCR_013260) | data or information resource, organization portal, portal, training resource | Kennedy Krieger Institute is an institution dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. Kennedy Kriegers clinical programs offer an interdisciplinary approach in treatment tailored to the individual needs of each child. Services include over 40 outpatient clinics; neurobehavioral, rehabilitation, and pediatric feeding disorders inpatient units; plus several home and community programs providing services to assist families. At Kennedy Krieger, there is no shortage of clinical programs to meet the specialized needs of children and adolescents with developmental disabilities. More than 35 different outpatient clinics, three inpatient units, several home and community programs and clinical laboratories all address the specific conditions of children with a wide range of disorders. Kennedy Krieger is recognized for its range of services in areas including autism, cerebral palsy, spina bifida, neurorehabilitation and feeding disorders. Kennedy Krieger school, is a nationally recognized Blue Ribbon School of Excellence, and is a leader in providing model programs of innovative education for children, adolescents and young adults with a wide range of learning, emotional, physical, neurological, and developmental disabilities. Faculty at Kennedy Krieger are among some of the worlds leading experts in this field and are attuned to the special needs of this population. These faculty have made crucial medical discoveries leading to innovative treatments and have improved the lives of individuals with disabilities. In addition to providing evaluation, rehabilitation, educational services and cutting edge research on behalf of children with brain related disabilities, Kennedy Krieger also provides professional training by renowned experts dedicated to increasing the number of qualified specialists in the United States and abroad. Children treated at Kennedy Krieger are seen by a variety of health care professionals working together in one or more of the Institutes clinical disciplines or departments. These highly trained professionals work directly with the Institutes medical staff to provide coordinated, interdisciplinary care tailored to the special needs of each child. This interdisciplinary approach puts Kennedy Krieger at the forefront in providing patient care for individuals with multiple developmental disabilities. Additionally, Kennedy Krieger Institutes Department of Special Education includes a number of programs that offer service to children with disabilities in a variety of settings. Kennedy Krieger School programs offer special education and related services to students aged 3-21 in three day-school settings and in partnership settings within public schools. For your convenience, a list of diagnoses/disorders treated at Kennedy Krieger Institute has been compiled to provide helpful related information for each diagnosis/disorder and include definitions, symptoms, treatment programs available at Kennedy Krieger, research being conducted at Kennedy Krieger, press releases, Potential articles and links to other helpful additional resources and websites outside the Institute. | emotional, adolescent, care, clinical, developmental disorder, disability, disorder, neurobehavioral, neurological, neurorehabitlitation, outpatient, patient, pediatric, pervasive, physical, prematurity, psychiatric, rehabilitation, research, self-injurious behavior, special education, paralysis, adrenoleukodystrophy, ald, ataxia telangiectasia, at, attention deficit disorder, add, autism spectrum disorder, asd, pervasive developmental disorder, pdd, barth syndrome, behavioral disorder, self-injurious behavior, brachial plexus injury, bpi, birth defect, brain injury, brain malformation, brain tumor, cerebral palsy, cp, communication disorder, speech disorder, language disorder, developmental disability, down syndrome, encephalitis, epilepsy, seizure disorder, feeding disorder, fetal alcohol syndrome, fas, fragile x syndrome, genetic disorder, hearing impairment, holoprosencephaly, hpe, lead poisoning, learning disorder, intellectual disability, metabolic disorder, mitochondrial disorder, movement disorder, neurodegenerative disorder, neurological disorder, osteogenesis imperfecta, psychiatric disorder, rett syndrome, skeletal disorder, sleep disorder, smith-lemli-opitz syndrome, spina bifida, sturge-weber syndrome | has parent organization: Kennedy Krieger Institute | nif-0000-10275 | SCR_013260 | KKI Diagnoses/Disorders | 2026-09-12 12:58:01 | 0 | |||||||||
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Atlas of Medical Parasitology Resource Report Resource Website |
Atlas of Medical Parasitology (RRID:SCR_008163) | A.M.P., AMP | data or information resource, data repository, database, image repository, service resource, storage service resource |
Database of images on medical parasitology created to provide educational materials for medical students primarily, but professional workers in medical or paramedical fields may also refer to this site covering the significant parasites in the world. Each database of protozoans, nematodes, trematodes, cestodes and arthropods contains information on the morphology, life cycle, geographical distribution, symptoms, prevention, etc. Users who wish to contribute can send the editor unpublished images of human parasites (microscopical, clinical, radiological or epidemiological aspects of human parasitic infections) by mail or e-mail. Pathology specimens (slide, samples) are welcome too. The A.M.P. received the citation of reliable sources such as Parasitology today and The Lancet, and is now listed in the Internet Resources on Specific Infectious Diseases Topics of the Mandell, Douglas and Bennets Principles and Practice of Infectious Diseases Fifth Edition. This website was established with a great contribution of the PROJECT COLLABORATORS and many contributors of The Korean Society for Parasitology. |
epidemiological, clinical, disease, human, infection, medical, microscopical, parasite, parasitic, parasitology, pathology, radiological, specimen, morphology, life cycle, geographical distribution, symptom, prevention, human parasite, biospecimen repository, training material, image | has parent organization: Chungbuk National University; Cheongju; South Korea | Human parasitic infection | Ministry of Health and Welfare - Republic of Korea ; Korean Medical Research Information Center |
The community can contribute to this resource | nif-0000-21025 | http://www.cdfound.to.it/_atlas.htm | SCR_008163 | Web Atlas of Medical Parasitology | 2026-09-12 12:57:00 | 0 | ||||
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ABX Guide Resource Report Resource Website 1+ mentions |
ABX Guide (RRID:SCR_008214) | ABX Guide | continuing medical education, data or information resource, database, training resource | Concise, clinically useful information for diagnosing, managing and treating infectious diseases in adults; however it does cover some pediatric topics including vaccines. It is designed for primary care providers and other non-infectious disease specialists as a tool that can be used at the point of care to assist in prescribing antibiotics. | drug interaction, drug, evaluation, antibiotic, clinical, contraindication, diagnosis, disease, disease state, dosing, immunization, indication, infectious disease, literature review, pathogen, pharmacokinetics, side effect, treatment, vaccine, antibiotic, adult, pediatric, vaccine, point of care |
is related to: Johns Hopkins Point of Care Guides is related to: Johns Hopkins University; Maryland; USA |
Infectious disease | Available for purchase | nif-0000-21292 | SCR_008214 | Johns Hopkins ABX Guide, Johns Hopkins Antibiotic Guide | 2026-09-12 12:57:01 | 4 | ||||||
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HIV Guide Resource Report Resource Website 1+ mentions |
HIV Guide (RRID:SCR_008252) | bibliography, continuing medical education, data or information resource, database, training resource | Launched in 2004, the HIV Guide is a single disease resource, with two main parts: the HIV database, which is accessed by searching on diagnosis, drug name, pathogen, or management or by accessing the resistance tool, and there are also browsable areas of the site, which include news, features, continuing medical education programs and other types of additional readings and information. Guides are authored by academic clinicians and subject to rigorous peer review. You may browse the guide by: Diagnosis Covering opportunistic infections, malignancies, and complications of therapy. Drugs Includes indications, dosing, drug interactions, and author recommendations. Pathogen - Describes microbiology, clinical syndromes, and therapy. Management Including antiretroviral therapy guidelines and strategies. Resistance Tool Provides up-to-date interpretation of genotypic resistance test results. Whether searching for a drug, a pathogen, a diagnosis, or a management issue, your search results will be delivered in a concise and standard form designed to give you the most clinically useful information first, with the option to go deeper if you choose. If you search by diagnosis, you will receive a page listing points covering establishment of a diagnosis, related pathogens, treatment recommendations, issues to consider on follow up, references and more. At each step, we provide you immediately with the information you need to treat the diagnosis and give you the option to read more or more deeply if you choose. On the diagnosis page, you are also provided with links to the information sheet for each drug that may be prescribed, and if you indicate which drug you intend to use, you will be provided with relevant drug selected comments. If you search by drug, you will receive a page listing FDA indications, usual adult dosing, adverse drug reactions, drug interactions, spectrum, and forms. You are also able to access full pharmacological information (mechanism, absorption, Cmax, volume of distribution, protein binding, metabolism/excretion, t _, dosing for glomerular filtration of 50-80, dosing for glomerular filtration of 10-50, dosing for glomerular filtration of <10 ml/min, dosing in hemodialysis, dosing in peritoneal dialysis, dosing in cavh, dosing for decreased hepatic function, pregnancy risk, and breast feeding compatibility). If you search by pathogen, you will receive a page covering the microbiology, clinical relevance, sites of infection, drug selected comments, other information and references. You are also provided with links to information for each drug that may be prescribed, and if you indicate which drug you intend to use, you will be provided with the drug selected comments for that choice. If you search by management, you will receive a page listing definition, indications, and clinical recommendations and additional details, including references. If you click on more wherever it appears on a page, you will find more detailed material about the topic. In addition, the HIV Guide homepage contains a Features section and Literature Review that contain synopses and articles about pertinent topics. The Publications section also provides .pdf versions of the Hopkins HIV Report. Prices represent the cost per unit specified, reflecting the Average Wholesale Price (AWP). AWP prices are taken from the Red Book, manufacturer information, and the McKesson database. These prices are updated every six months. We have listed up to 10 FDA-approved indications for uses of drugs. Though in some cases more may exist, for brevity and formatting issues authors and editors have chosen what they deem the most important. Also listed are disease states for which a drug may be likely prescribed regardless of FDA approval status (see Non-FDA approved uses). The HIV Guide is primarily focused on adult care but does cover issues of perinatal transmission. The material presented on this site represents the considered opinion of the Hopkins expert listed as the author of the module as of the date indicated. The reference section contains an annotated list of the articles that the author considers to be most relevant to the topic. Where authoritative guidelines exist, such as CDC, IDSA or Medical Letter guidelines, they are referenced and discussed along with the author''s recommendations presented. | drug interactions, drugs, adult, adverse drug reactions, aids, antiretroviral, clinical, clinical recommendations, complications, diagnosis, dosing, genotypic resistance, hiv, human, indications, infections, malignancies, management resistance tool, microbiology, newsletter, pathogen, syndromes, therapy, book, continuing medical education | has parent organization: Johns Hopkins University; Maryland; USA | nif-0000-22350 | SCR_008252 | HIV Guide | 2026-09-12 12:57:01 | 2 | |||||||||
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DE-ID Data Corp Resource Report Resource Website 1+ mentions |
DE-ID Data Corp (RRID:SCR_008668) | software resource | A commercial organization that suppplies software which creates separate HIPAA-compliant repositories of de-identified patient records and reports. This software allows clinicians, researchers, and administrative leadership to safely access, search, share, and analyze de-identified patient-level data. DE-ID can be acquired as stand-alone tool or integrated with data networks or clinical information systems. | clinical, data, patient protection, surgical report | nif-0000-33387 | SCR_008668 | DE-ID Data Corp | 2026-09-12 12:57:07 | 1 | ||||||||||
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Rush Alzheimer's Disease Center Resource Report Resource Website 1+ mentions |
Rush Alzheimer's Disease Center (RRID:SCR_008763) | RADC | biomaterial supply resource, brain bank, material resource, tissue bank | An Alzheimer's disease center which researches the cause, treatment and prevention of Alzheimer's disease with a focus on four main areas of research: risk factors for Alzheimer's and related disorders, the neurological basis of the disease, diagnosis, and treatment. Data includes a number of computed variables that are available for ROS, MAP and MARS cohorts. These variables are under categories such as affect and personality, chronic medical conditions, and clinical diagnosis. Specimens include ante-mortem and post-mortem samples obtained from subjects evaluated by ROS, MAP and clinical study cores. Specimen categories include: Brain tissue (Fixed and frozen), Spinal cord, Muscles (Post-mortem), and Nerve (Post-mortem), among other types of specimens. Data sharing policies and procedures apply to obtaining ante-mortem and post-mortem specimens from participants evaluated by the selected cohorts of the RADC. | clinical, post mortem, ante mortem, late adult human, brain, tissue, spinal cord, muscle, nerve, dna, lymphocyte, serum, plasma, urine, fixed, frozen, cryopreserved, alzheimer's disease, memory | is listed by: One Mind Biospecimen Bank Listing | Alzheimer's disease, Alzheimer's-related disorder, Aging | NIA | Available to the research community, Data sharing policies apply to both data and specimens | nlx_144050 | SCR_008763 | Rush ADC, Rush Alzheimer's Disease Center | 2026-09-12 12:57:08 | 3 | |||||
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NYU Alzheimer's Disease Center Resource Report Resource Website |
NYU Alzheimer's Disease Center (RRID:SCR_008754) | NYU ADC | biomaterial supply resource, brain bank, material resource, tissue bank | The NYU Alzheimer's Disease Center is part of the Department of Psychiatry at New York University School of Medicine. The center's goals are to advance current knowledge and understanding of brain aging and Alzheimer's disease, to expand the numbers of scientists working in the field of aging and Alzheimer's research, to work toward better treatment options and care for patients, and to apply and share its findings with healthcare providers, researchers, and the general public. The ADC's programs and services extend to other research facilities and to healthcare professionals through the use of its core facilities. The NYU ADC is made up of seven core facilities: Administrative Core, Clinical Core, Neuropathology Core, Education Core, Data Management and Biostatistics Core, Neuroimaging Core, and Psychosocial Core. | brain, tissue, alzheimer's disease, dementia, meeting resource, clinical, imaging, neuroimaging, psychosocial, post-mortem, autopsy, vaccination, treatment |
is listed by: One Mind Biospecimen Bank Listing has parent organization: New York University School of Medicine; New York; USA |
Alzheimer's disease, Dementia, Aging | NIA | Available to collaborators | nlx_144383 | http://www.med.nyu.edu/adc/ | SCR_008754 | NYU Alzheimer's Disease Center, New York University Alzheimer's Disease Center | 2026-09-12 12:57:08 | 0 | ||||
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Clinical Research Study Investigators Toolbox Resource Report Resource Website |
Clinical Research Study Investigators Toolbox (RRID:SCR_008815) | NIA Clinical Research Toolbox | data or information resource, narrative resource, portal, standard specification, topical portal | The purpose of the NIA Clinical Research Toolbox is to provide a Web-based information repository for investigators and staff involved in clinical research. The Toolbox contains templates, sample forms, guidelines, regulations and information materials to assist investigators in the development and conduct of high quality clinical research studies. | clinical research, adverse event, monitor, safety, informed consent, clinical research term, clinical | Aging | nlx_144419 | SCR_008815 | NIA Clinical Research Study Investigators Toolbox, Clinical Research Study Investigator''s Toolbox, NIA Clinical Research Study Investigator''s Toolbox | 2026-09-12 12:57:09 | 0 | ||||||||
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Central Brain Tumor Registry of the United States Resource Report Resource Website 10+ mentions |
Central Brain Tumor Registry of the United States (RRID:SCR_008748) | CBTRUS | nonprofit organization | Voluntary, non-profit organization dedicated to collecting and disseminating statistical data. Resource for gathering and disseminating epidemiologic data on all primary benign and malignant brain and other CNS tumors. | human, brain, tumor, cancer, central nervous system, epidemiology, incidence, survival, diagnosis, treatment, benign, malignant, registry, epidemiological data, aggregator, clinical, statistics, population, histology, age, gender, race, hispanic, mortality | Brain tumor, Aging | American Brain Tumor Association ; National Brain Tumor Society ; Pediatric Brain Tumor Foundation ; NCI contract HHSN261201000576P |
PMID:23095881 | Application required., The community can contribute to this resource | grid.492337.8, ISNI: 0000 0004 0484 2205, nlx_143889 | https://ror.org/03849s113 | SCR_008748 | 2026-09-12 12:57:08 | 26 | |||||
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Clinical Outcomes Research Initiative Resource Report Resource Website 1+ mentions |
Clinical Outcomes Research Initiative (RRID:SCR_009010) | CORI | data or information resource, database, resource, service resource, software resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on December 5, 2022. Endoscopic Reporting Software, aggregated and individual research data and tailor-made services aimed to advance the overall practice of endoscopy. It was developed to study outcomes of gastrointestinal (GI) endoscopic procedures in real life settings, using data obtained from the CORI Endoscopic Reporting Software or from other endoscopic reporting software. Practice sites include hospitals, ambulatory care centers, private practices, universities, and Veteran''''s hospitals (VA''''s). The CORI v4 Endoscopic Reporting Software is a specialty Electronic Health Record used to document endoscopic procedures and provide reporting services to your practice. Data from participating providers is also sent to a central data repository to become part of the National Endoscopic Database (NED), which now contains data from over 2.7 million GI procedures. The CORI v4 Endoscopic Reporting Software offers significant benefits for participating practices, providers and patients, as well as for everyone who benefits from CORI''''s research efforts. You may actively participate in research with CORI. If you have ideas for research using the NED, their research team can help you evaluate those ideas, collect and analyze the data. In addition, you may choose to participate in one of the prospective research projects conducted by CORI research staff. | clinical, endoscopy, gastroenterology, gastrointestinal, endoscopic, endoscopy reporting software, outcome, report, electronic health record, aggregator |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources has parent organization: Oregon Health and Science University; Oregon; USA |
NIDDK | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152692 | SCR_009010 | 2026-09-12 12:57:11 | 6 | |||||||
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GRDR Resource Report Resource Website 1+ mentions |
GRDR (RRID:SCR_008978) | GRDR, RaDaR | data or information resource, data repository, database, patient registry, people resource, service resource, storage service resource | Data repository of de-identified patient data, aggregated in a standardized manner, to enable analyses across many rare diseases and to facilitate various research projects, clinical studies, and clinical trials. The aim is to facilitate drug and therapeutics development, and to improve the quality of life for the many millions of people who are suffering from rare diseases. The goal of GRDR is to enable analyses of data across many rare diseases and to facilitate clinical trials and other studies. During the two-year pilot program, a web-based template will be developed to allow any patient organization to establish a rare disease patient registry. At the conclusion of the program, guidance will be available to patient groups to establish a registry and to contribute de-identified patient data to the GRDR repository. A Request for Information (RFI) was released on February 10, 2012 requesting information from patient groups about their interest in participating in a GRDR pilot project. ORDR selected 30 patient organizations to participate in this pilot program to test the different functionalities of the GRDR. Fifteen (15) organizations with established registries and 15 organizations that do not have patient registry. The 15 patient groups, each without a registry, were selected to assist in testing the implementation of the ORDR Common Data Elements (CDEs) in the newly developed registry infrastructure. These organizations will participate in the development and promotion of a new patient registry for their rare disease. The GRDR program will fund the development and hosting of the registry during the pilot program. Thereafter, the patient registry is expected to be self-sustaining.The 15 established patient registries were selected to integrate their de-identified data into the GRDR to evaluate the data mapping and data import/export processes. The GRDR team will assist these organizations in mapping their existing registry data to the CDEs. Participating registries must have a means to export their de-identified registry data into a specified data format that will facilitate loading the data into the GRDR repository on a regular basis. The GRDR will also develop the capability to link patients'''' data and medical information to donated biospecimens by using a Voluntary Global Unique Patient Identifier (GUID). The identifier will enable the creation of an interface between the patient registries that are linked to biorepositories and the Rare Disease Human Biospecimens/Biorepositories (RD-HUB) http://biospecimens.ordr.info.nih.gov/. | clinical, common data element, global unique patient identifier, clinical trial, drug development, therapy |
is related to: Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) is related to: NIH Data Sharing Repositories has parent organization: Office of Rare Diseases Research |
Rare disease | NIH | Public, The community can contribute to this resource | nlx_152145 | http://www.grdr.info/ | SCR_008978 | Rare Diseases Registry Program (RaDaR), Global Rare Diseases Patient Registry and Data Repository | 2026-09-12 12:57:11 | 1 | ||||
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NordicNeuroLab Resource Report Resource Website 50+ mentions |
NordicNeuroLab (RRID:SCR_009632) | NNL | commercial organization | From state of the art post-processing and visualization software for BOLD, Diffusion / DTI, and Perfusion / DCE imaging to fMRI hardware for audio and visual stimulation, eye tracking, and patient response collection, they provide products and solutions that define the field of functional MR imaging. They are dedicated to bringing the most advanced neuro-imaging tools to market while making functional MRI programs easy to implement. Through collaboration with research and clinical teams from both academic and medical centers, MR system manufacturers, and third party vendors they develop and manufacture hardware and software solutions that meet the needs of very experienced centers while developing training programs to make fMRI easy to adopt for more novice users. Their products are used around the world by researchers and clinicians alike. | analyze, ascii, dicom, diffusion mr fiber tracking, experiment control, eye tracking, fiber tracking, haemodynamic response, hardware, microsoft, magnetic resonance, nifti, perfusion, physiological recording, scanner, stimulus presentation, temporal curve fitting, temporal transformation, tractography, windows, windows vista, windows xp, fmri, post-processing, visualization, bold, diffusion, dti, perfusion, dce, audio stimulation, visual stimulation, eye tracking, patient response, clinical, eye tracking device | is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) | Commercial | nlx_155905 | http://www.nitrc.org/projects/nnl | SCR_009632 | 2026-09-12 12:57:14 | 57 | |||||||
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Lumina LP- 400 Response System Resource Report Resource Website |
Lumina LP- 400 Response System (RRID:SCR_009596) | Lumina LP-400 | instrument resource | A reliable patient response system designed specifically for use in an fMRI. Lumina was developed to satisfy the requirements of both the clinical and research fields. | experiment control, hardware, magnetic resonance, response monitoring, fmri, clinical, research, instrument, equipment | is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) | nlx_155789 | http://www.nitrc.org/projects/lumina | http://www.cedrus.com/ordering/mri/usa.htm | SCR_009596 | Lumina fMRI Input Device, Lumina LP-400 System for fMRI, Lumina fMRI Response Pad | 2026-09-12 12:57:14 | 0 | ||||||
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Northwestern University Schizophrenia Data and Software Tool (NUSDAST) Resource Report Resource Website |
Northwestern University Schizophrenia Data and Software Tool (NUSDAST) (RRID:SCR_014153) | NUSDAT | data or information resource, database, image collection | A repository of schizophrenia neuroimaging data collected from over 450 individuals with schizophrenia, healthy controls and their respective siblings, most with 2-year longitudinal follow-up. The data include neuroimaging data, cognitive data, clinical data, and genetic data. | database, neuroimaging, clinical, cognitive, genetic, schizophrenia, longitudinal |
uses: CAWorks is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: Northwestern University; Illinois; USA |
Schizophrenia | NIMH 1R01 MH084803; NIMH 1U01 MH097435; NIMH P50 MH071616; NIMH R01 MH056584; NCRR P41 RR15241; NIGMS U24 GM104203; NIH Bio-Informatics Research Network Coordinating Center |
Available to the research community | SCR_014153 | Northwestern University Schizophrenia Data and Software Tool | 2026-09-12 12:58:13 | 0 | ||||||
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Clinical Islet Transplantation Consortium (CITC) Resource Report Resource Website 1+ mentions |
Clinical Islet Transplantation Consortium (CITC) (RRID:SCR_014385) | CITC, CIT | access service resource, service resource | Network of clinical centers and a data coordinating center established to conduct studies of islet transplantation in patients with type 1 diabetes. | type 1 diabetes, consortium, network, islet transplantation, clinical |
is listed by: NIDDK Information Network (dkNET) is listed by: NIDDK Research Resources is listed by: Diabetes Research Centers |
Type 1 diabetes, Diabetes | NIAID ; NIDDK U01 DK070431 |
SCR_014385 | Clinical Islet Transplantation Consortium | 2026-09-12 12:58:16 | 1 | |||||||
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GVKBIO databases Resource Report Resource Website 1+ mentions |
GVKBIO databases (RRID:SCR_014893) | data or information resource, database, software resource, web application | Collection of databases with standalone databases, which gives opportunity for customers to integrate the data into their internal tools and databases, as well as online databases, that are available to the customers from a dedicated website where an individual can query and export the data in the selected format. The standalone database topics include medicinal chemistry, drugs and target class based compounds. The online databases are comprised of three major compilations: GVK BIO Online Structure Activity Relation Database (GOSTAR), GVK BIO Biomarker Database (GOBIOM), and Clinical Trial Outcome Database (CTOD). | research, database, online, standalone, medicinal chemistry, drug, clinical, toxicity, biomarker, contract research organization, cro | Commercial | SCR_014893 | GVK Biosciences, GVK BIO | 2026-09-12 12:58:22 | 3 | ||||||||||
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BioSpace Resource Report Resource Website 500+ mentions |
BioSpace (RRID:SCR_012010) | BioSpace | data or information resource, job resource, narrative resource | Online community for industry news and careers for life science professionals. | biotechnology, pharmaceutical, career, clinical, academic, biomedical, medical device | is listed by: OMICtools | The community can contribute to this resource | OMICS_01828 | SCR_012010 | 2026-09-12 12:57:43 | 510 |
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If you are logged into RRID you can add data records to your collections to create custom spreadsheets across multiple sources of data.
Here are the facets that you can filter the data by.
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