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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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American Society of Diagnostic and Interventional Nephrology Resource Report Resource Website 1+ mentions |
American Society of Diagnostic and Interventional Nephrology (RRID:SCR_003968) | ASDIN | portal, training resource, community building portal, data or information resource | Society that aims to promote the proper application of new and existing procedures to improve the care of patients with kidney disease. They promote education, research, public policy and clinical practice initiatives relating to diagnostic and interventional procedures. ASDIN works closely with other societies and programs to achieve its goals. All professionals involved in the care of patients with kidney disease are welcome to join and become active in the Society. Activities of the Society include: * the establishment of practice standards, * certification of physicians in specific procedures, * accreditation of training programs in specific procedures, * development of training tools and techniques, * sponsoring symposia and training courses, * and the dissemination of information through periodic meetings and through print and other media. | nephrology, diagnostic, intervention, clinical, kidney | is related to: Kidney Health Initiative | Kidney disease | nlx_158373 | SCR_003968 | American Society of Diagnostic & Interventional Nephrology | 2026-08-06 09:26:02 | 3 | |||||||
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EORTC Clinical Trials Resource Report Resource Website |
EORTC Clinical Trials (RRID:SCR_004011) | clinical trial, data or information resource, catalog, database | A database that contains information about EORTC (European Organisation for Research and Treatment of Cancer) clinical trials but also clinical trials from other organizations, in which EORTC has been/is participating. The protocol database may be browsed by EORTC Research Group, tumor site, treatment, or drug. | clinical, protocol | has parent organization: EORTC | Cancer | nlx_158511 | SCR_004011 | European Organisation for Research and Treatment of Cancer Clinical trials, EORTC protocol database | 2026-08-06 09:26:00 | 0 | ||||||||
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Nutrition and Obesity Research Centers Resource Report Resource Website 10+ mentions |
Nutrition and Obesity Research Centers (RRID:SCR_004131) | NORC | topical portal, disease-related portal, data or information resource, organization portal, portal, resource | Portal to research centers and core facilities specifically support obesity research and better understand the relationship between health and nutrition. | obesity core facility, obesity portal, obesity research center |
is listed by: NIDDK Information Network (dkNET) is listed by: Diabetes Research Centers is affiliated with: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases has organization facet: Boston Nutrition and Obesity Research Centers has organization facet: Nutrition and Obesity Research Centers at Harvard has organization facet: Mid-Atlantic Nutrition Obesity Research Center has organization facet: New York Obesity Nutrition Research Center has organization facet: Pennington Biomedical Research Center Nutrition and Obesity Research Center has organization facet: University of Alabama at Birmingham Nutrition and Obesity Research Center has organization facet: University of California San Francisco Nutrition and Obesity Research Center has organization facet: University of Colorado Anschutz Medical Campus Nutrition and Obesity Research Center has organization facet: University of Michigan Nutrition and Obesity Research Center has organization facet: University of North Carolina at Chapel Hill Nutrition and Obesity Research Center has organization facet: University of Washington Nutrition and Obesity Research Center has organization facet: Washington University St. Louis Nutrition Obesity Research Center |
Obesity, Nutrition-related disease, Eating disorder, Anorexia nervosa, AIDS, Cancer | NIDDK RFA-DK16-006 | Available to the research community | nlx_158684 | SCR_004131 | 2026-08-06 09:26:02 | 40 | ||||||
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Medical Education and Research Institute - MERI Resource Report Resource Website |
Medical Education and Research Institute - MERI (RRID:SCR_004202) | MERI | training resource, training service resource, service resource | A nonprofit medical teaching and training school in Memphis, Tennessee qualified under section 501 (c) (3) of the Internal Revenue Code. The MERI conducts state-of-the-art, hands-on educational courses for physicians, nurses and other medical professionals from across the country and around the world. At the MERI, medical professionals are introduced to the latest innovations in medicine, and have the opportunity to learn first-hand about the most up-to-date medical techniques and technologies. The MERI supports research in all specialties by providing the sponsor with the most effective environment for achieving maximal outcomes for their studies. Through our Mobile MERI unit, we are proud to provide courses and support to our sponsors off-site anywhere in the continental United States. Our dedicated course specialists offer customer service, provide safe and efficient transport of equipment and ensure a quality training and educational experience at the off-site location. | education, course, physician, nurse, medical professional, medicine, medical technique, technology, on-site course | nlx_22603 | SCR_004202 | Medical Education & Research Institute, Medical Education and Research Institute | 2026-08-06 09:26:06 | 0 | |||||||||
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NIMH Data Archive Resource Report Resource Website 100+ mentions |
NIMH Data Archive (RRID:SCR_004434) | NDA | storage service resource, service resource, data repository, data or information resource, database | The National Institute of Mental Health Data Archive (NDA) makes available human subjects data collected from hundreds of research projects across many scientific domains. Research data repository for data sharing and collaboration among investigators. Used to accelerate scientific discovery through data sharing across all of mental health and other research communities, data harmonization and reporting of research results. Infrastructure created by National Database for Autism Research (NDAR), Research Domain Criteria Database (RDoCdb), National Database for Clinical Trials related to Mental Illness (NDCT), and NIH Pediatric MRI Repository (PedsMRI). | afni brik, ascii, bshort, bfloat, connectome file format, cifti, clinical neuroinformatics, cor, dicom, imaging genomics, inc, minc2, nifti, os independent, philips par/rec, tex, vrml, phenotype, neuroimaging, genomic, gender, male, female, dti, fmri, mri, spectroscopy, eeg, microarray, snp, cnv, next-generation sequencing, gene regulation, gene expression, genotyping, pedigree, clinical assessment, FASEB list |
uses: HED Tags is used by: National Database for Clinical Trials related to Mental Illness is used by: RDoCdb is used by: NIH Heal Project is recommended by: National Library of Medicine is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is listed by: re3data.org is related to: National Database for Clinical Trials related to Mental Illness is related to: RDoCdb has parent organization: National Institute of Mental Health hosts: GUID Tool |
Autism, Autism spectrum disorder, Asperger Syndrome, Normal control, Sibling control, Parental control, Fragile X syndrome | NIMH ; NINDS ; NIEHS ; NICHD ; Center for Information Technology |
Restricted | nlx_143735, r3d100010717, r3d100012653 | http://www.nitrc.org/projects/ndarportal, https://data-archive.nimh.nih.gov/, https://doi.org/10.17616/R37K63, https://doi.org/10.17616/R3XV5P | http://ndar.nih.gov/ | SCR_004434 | NDAR, National Database for Autism Research, National Institute of Mental Health Data Archive, National Database for Autism Research (NDAR) | 2026-08-06 09:26:08 | 291 | |||
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UAB Alzheimer's Disease Center Resource Report Resource Website |
UAB Alzheimer's Disease Center (RRID:SCR_004305) | ADC, UAB ADC | brain bank, tissue bank, material resource, biomaterial supply resource | The UAB Alzheimer's Disease Center provides comprehensive treatment for Alzheimer's patients while also promoting research for the prevention and cure of Alzheimer's disease and related disorders. The ADC is an interdisciplinary program of scientists working in areas including neurology, psychiatry, genetics, and psychology. The Center provides comprehensive treatment and promotes research for the prevention and/or cure of Alzheimer's disease and other related disorders with memory loss and impaired cognition. A major emphasis of research is the maintenance of a clinical research database comprised of neurological, medical, and neuropsychological test data from participants seen in the ADRC Clinical study since 1999, many of whom have been followed for several years in the study. | brain, alzheimer's disease, mild cognitive impairment, brain donation, clinical research database |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Alabama at Birmingham; Alabama; USA |
Alzheimer's disease, Mild Cognitive Impairment, Aging | NIA 1P50 AG16582 | Researchers interested in Alzheimer's disease may access the clinical research data | nlx_143674 | http://main.uab.edu/adc/ http://www.uab.edu/medicine/neurology/alzheimers-disease-center | SCR_004305 | UAB Alzheimer's Disease Center, University of Alabama at Birmingham Alzheimer's Disease Center | 2026-08-06 09:26:05 | 0 | ||||
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BrainNet Europe Resource Report Resource Website 10+ mentions |
BrainNet Europe (RRID:SCR_004461) | BNE | portal, consortium, data or information resource, organization portal | THIS RESOURCE IS NO LONGER IN SERVICE.Documented on July 7, 2022. Consortium of 19 brain banks across Europe with an aim to harmonize neuropathological diagnostic criteria and develop gold standards for quality, safety and ethics standards for brain banking. BrainNet Europe also contributes to research on rare diseases, such as: Pick''s disease or other rare forms of dementia, as well as to questions after the events in the aging brain. Anyone can be a donor - irrespective of disease of the central nervous system or not, because for research purposes, one does not only need tissue samples from ill donors, but also from healthy ones for comparison. | central nervous system, clinical, brain research, brain tissue, brain, tissue, late adult human, brain bank, gold standard, neuropathological diagnosis, tissue handling, safety, quality control, ethics, post mortem, data sharing, tissue sampling, autopsy, microdissection, diagnosis |
is listed by: One Mind Biospecimen Bank Listing is listed by: Consortia-pedia is related to: Medical University of Vienna Institute of Neurology is related to: Human Brain Tissue Bank has parent organization: Ludwig-Maximilians-University; Munich; Germany is parent organization of: BrainNet Europe Sampling Protocols |
Central nervous system disorder, Normal control, Aging, Neurological disease, Psychiatric disease, Pick''s disease, Dementia | European Union FP6 LSHM-CT-2004-503039 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_45326 | SCR_004461 | BrainNet Europe Consortium | 2026-08-06 09:26:10 | 24 | |||||
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Duke Cancer Institute Resource Report Resource Website 1+ mentions |
Duke Cancer Institute (RRID:SCR_004338) | DCI | portal, topical portal, data or information resource | One of 40 centers in the country designated by the National Cancer Institute (NCI) as a comprehensive cancer center, it combines cutting-edge research with compassionate care. Its vision is to accelerate research advances related to cancer and improve Duke''s ability to translate these discoveries into the most advanced cancer care to patients by uniting hundreds of cancer physicians, researchers, educators, and staff across the medical center, medical school, and health system under a shared administrative structure. | cancer, patient, research, clinical trial |
is related to: Biospecimen Repository and Processing Core has parent organization: Duke University School of Medicine; North Carolina; USA is parent organization of: DCI Tissue and Blood Procurement Shared Resource |
Cancer | NCI | nlx_143695 | http://www.cancer.duke.edu/ | SCR_004338 | Duke Cancer Institute: A National Cancer Institute-designated Comprehensive Cancer Center | 2026-08-06 09:26:09 | 1 | |||||
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Northern Ireland Virtual Tissue Archive Resource Report Resource Website |
Northern Ireland Virtual Tissue Archive (RRID:SCR_004452) | NIVTA | image collection, training material, narrative resource, data or information resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. A pan European network for virtual tissue archiving aimed at supporting clinical trials, biomarker research, tissue microarray analysis and virtual slide based education. NIVTA has state-of-the-art digital scanning systems including an Aperio CS system, Aperio OS system (one of only two currently available in Europe) and a Hamamatsu system with fluorescent scanning capability. | clinical trial, biomarker research, tissue microarray, analysis, virtual slide, tissue, archive, data resource | has parent organization: Queens University Belfast; Ireland; United Kingdom | Queen's University Belfast; Ireland; United Kingdom ; Hewlett-Packard |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_44619 | SCR_004452 | 2026-08-06 09:26:08 | 0 | |||||||
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Epilepsy Research Ireland Resource Report Resource Website |
Epilepsy Research Ireland (RRID:SCR_004448) | ERI | funding resource, topical portal, disease-related portal, data or information resource, portal | Epilepsy Research Ireland is a non-profit organization (Charity CHY17527), run by a group of volunteers, who are dedicated to find cure for epilepsy by raising awareness and money for research. We can say cure now with much more confidence than we could even 10 years ago because recent advances in genetics, brain imaging and drug therapy, all hold out the promise of that holy grail the cure. We can also say with confidence that you can be part of that push by participating in this new foundation since we have collaborations with doctors and scientists all over Europe, the US and Australia, all of whom share the same goal. Epilepsy research, conducted by Epilepsy Research Ireland, is essential and will deliver benefits across the board. Research planned and already underway by Epilepsy Research Ireland will help develop and improve clinical skills; it will provide a knowledge base to develop new ways to manage and treat epilepsy; it will help in the evaluation of new medical advances. Ultimately we can improve the quality of care and provide greater understanding, better and more accurate diagnosis and more tailored treatments. Ireland is uniquely well-positioned, given its relatively homogenous population to make the goal, of making real discoveries in epilepsy research that will directly improve the lives of people with epilepsy, a realistic one. | epilepsy, brain | nlx_143739 | http://www.epilepsyresearchireland.org/index.php?id=17 | SCR_004448 | 2026-08-06 09:26:07 | 0 | |||||||||
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Maryland Brain Collection Resource Report Resource Website 1+ mentions |
Maryland Brain Collection (RRID:SCR_004384) | MBC | brain bank, tissue bank, material resource, biomaterial supply resource | The Maryland Brain Collection (MBC), a resource of the Maryland Psychiatric Research Center (MPRC), is dedicated to promoting research with brain tissue obtained post-mortem from individuals with schizophrenia or related disorders. The primary goal of the MBC is to provide high-quality tissue, along with comprehensive clinical information, for hypothesis-driven research. The MBC is not conceptualized as a Brain Bank with open access but is maintained and funded through collaborative research. The Maryland Brain Collection is managed by researchers at the Maryland Psychiatric Research Center (MPRC). MPRC scientists are dedicated to understanding the causes and improving the treatment of mental illness. The Maryland Brain Collection is associated with the Office of the Chief Medical Examiner for the State of Maryland and other donor sources. MPRC scientists collaborate with scientists from around the world to understand how abnormalities in brain tissue relate to mental illness. The purpose of the MBC is to study the following: Schizophrenia, Bipolar Disorder, Depression, Suicide/Teen suicide, Substance Abuse. |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Maryland School of Medicine; Maryland; USA |
University of Maryland; Maryland; USA ; private donations individuals and foundations ; NIH |
nlx_39828 | http://medschool.umaryland.edu/MPRC/mbc.asp | SCR_004384 | 2026-08-06 09:26:07 | 2 | ||||||||
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USIDNET: US Immunodeficiency Network Resource Report Resource Website 1+ mentions |
USIDNET: US Immunodeficiency Network (RRID:SCR_004672) | USIDNET | topical portal, patient registry, people resource, data or information resource, portal | Research consortium to advance scientific research in the primary immune deficiency diseases (PIDD) and: * Assemble and maintain a registry of patients with primary immunodeficiency diseases to provide a minimum estimate of the prevalence of each disorder in the United States. Provide a comprehensive clinical picture of each disorder and act as a resource for clinical and laboratory research. * Establish a multifaceted mentoring program to introduce new investigators into the field and stimulate interest and research in primary immune deficiency diseases. * Establish an advisory/review committee to maintain a cell/DNA Repository of biologic material from well-characterized PIDD patients for the advancement of scientific research USIDNET operates a large database of patient information for your use. The purpose and scope of this project is to assemble and maintain a registry of residents with primary immunodeficiency diseases. The project was started with the Registry of U.S. Residents with Chronic Granulomatous Disease. Since then, the registry has been expanded and now collects data on all primary immunodeficiency disorders. The following are just a few of the diseases housed in the registry: Chronic Granulomatous Disease, Common Variable Immunodeficiency Disease, DiGeorge Anomaly, Hyper IgM Syndrome, Leukocyte Adhesion Defect, Severe Combined Immunodeficiency Disease, Wiskott-Aldrich Syndrome, X-Linked Agammaglobulinemia Physicians who would like to register their patients or access the registry are encouraged to contact Onika Davis or Lamar Hamilton, USIDNET team, at odavis (at) primaryimmune.org, or lhamilton (at) primaryimmune.org | patient information, primary immunodeficiency disease, immunodeficiency disease, disease, immune deficiency disease, clinical trail, clinical, primary immune deficiency disease |
has parent organization: Immune Deficiency Foundation is parent organization of: USIDNET DNA and Cell Repository |
Primary immune deficiency disease, Chronic Granulomatous Disease, Common Variable Immunodeficiency Disease, DiGeorge Anomaly, Hyper IgM Syndrome, Leukocyte Adhesion Defect, Severe Combined Immunodeficiency Disease, Wiskott-Aldrich Syndrome, X-Linked Agammaglobulinemia | Immune Deficiency Foundation ; NIH ; NIAID |
The community can contribute to this resource | nlx_143859 | SCR_004672 | United States Immunodeficiency Network, US Immunodeficiency Network | 2026-08-06 09:26:12 | 1 | |||||
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Repository of molecular brain neoplasia data Resource Report Resource Website 1+ mentions |
Repository of molecular brain neoplasia data (RRID:SCR_004704) | REMBRANDT | topical portal, service resource, production service resource, data analysis service, data or information resource, portal, analysis service resource, database | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on April 28,2023. REMBRANDT is a data repository containing diverse types of molecular research and clinical trials data related to brain cancers, including gliomas, along with a wide variety of web-based analysis tools that readily facilitate the understanding of critical correlations among the different data types. REMBRANDT aims to be the access portal for a national molecular, genetic, and clinical database of several thousand primary brain tumors that is fully open and accessible to all investigators (including intramural and extramural researchers), as well as the public at-large. The main focus is to molecularly characterize a large number of adult and pediatric primary brain tumors and to correlate those data with extensive retrospective and prospective clinical data. Specific data types hosted here are gene expression profiles, real time PCR assays, CGH and SNP array information, sequencing data, tissue array results and images, proteomic profiles, and patients'''' response to various treatments. Clinical trials'''' information and protocols are also accessible. The data can be downloaded as raw files containing all the information gathered through the primary experiments or can be mined using the informatics support provided. This comprehensive brain tumor data portal will allow for easy ad hoc querying across multiple domains, thus allowing physician-scientists to make the right decisions during patient treatments., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | gene, genetic, cancer, glioma, tumor, clinical genomics, functional genomics, clinical trial, genomics, gene expression, chromosomal aberration, clinical data, clinical, cellular pathway, gene ontology, molecule, brain, neoplasia, brain tumor, adult, pediatric, child, adolescent, gene expression profile, real time pcr assay, cgh array, snp array, sequence, tissue array, image, proteomic profile, treatment, protocol, molecular data, oncology, data mining, copy number array, gene expression array, secretion, kinase, membrane, gene-anomaly, translational research, personalized medicine, data integration, pathway, cell, phenotype |
is related to: Gene Ontology is related to: Glioma Molecular Dignostic Initiatives has parent organization: National Cancer Institute |
Glioma, Brain cancer, Brain tumor | NCI ; NINDS |
PMID:19208739 | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00230 | SCR_004704 | REMBRANDT (Repository of Molecular Brain Neoplasia Data), REMBRANDT - Repository of Molecular Brain Neoplasia Data, REpository for Molecular BRAin Neoplasia DaTa (REMBRANDT) | 2026-08-06 09:26:13 | 2 | ||||
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UK Multiple Sclerosis Tissue Bank Resource Report Resource Website |
UK Multiple Sclerosis Tissue Bank (RRID:SCR_004609) | UK MS Tissue Bank | brain bank, tissue bank, material resource, biomaterial supply resource | Procures brain, spinal cord and other tissues bequeathed by donors and makes them available to scientists investigating the cause and treatment of multiple sclerosis. The Tissue Bank achieves this aim by addressing the following objectives: # Increasing the awareness of the importance of human tissue to research amongst the MS and scientific communities. # Being sensitive to the needs of the tissue donor and responsive to the requirements of scientists when collecting and processing donated tissue. # Making available high quality, well-documented samples of tissue to research scientists working to better understand MS. There are approximately 85 000 people with multiple sclerosis in the United Kingdom. The varied symptoms experienced by all these people result from damage taking place within their brain and spinal cord. Understanding the exact nature of this damage is essential if we are to better treat the condition. Vital information about how the brain and spinal cord are damaged in multiple sclerosis can be obtained by using a multitude of experimental approaches to study the affected tissue from people with MS and ''control'' tissue from people without the disease. The donation of tissue for research is therefore fundamental to furthering our understanding of the causes of multiple sclerosis and to developing more effective treatments for the disease. The UK Multiple Sclerosis Tissue Bank welcomes requests for tissue samples for use in research into the cause and treatment of multiple sclerosis. It has available post mortem, cryopreserved brain and spinal cord tissue both fixed and unfixed, and cerebrospinal fluid from patients with and without a history of multiple sclerosis. Freshly dissected tissue samples, or those preserved using unconventional techniques may also be made available by prior arrangement. | brain, spinal cord, tissue, cerebral spinal fluid, post-mortem |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Imperial College London; London; United Kingdom |
Multiple Sclerosis, Normal control | Multiple Sclerosis Society of Great Britain and Northern Ireland | Public: Available to scientists investigating the cause and treatment of multiple sclerosis. | nlx_60486 | SCR_004609 | 2026-08-06 09:26:11 | 0 | ||||||
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Human Biological Data Interchange Resource Report Resource Website 100+ mentions |
Human Biological Data Interchange (RRID:SCR_004591) | HBDI | material storage repository, biospecimen repository, storage service resource, service resource | Database of medical history and genealogical data on over 6700 families who are affected by type 1 diabetes and a repository of DNA and immortalized cell lines collected from 500 families. This database and repository was originally created to help researchers uncover the genetic causes of type 1 diabetes but today, it is also used by researchers who study type 2 diabetes, diabetic complications, autoimmune diseases, kidney disease, and other disorders. The following resources and services are available to researchers through HBDI: * International Type 1 Diabetes Database: This database includes more than 6700 families with diabetes, related complications and other genetic diseases. There are extensive genealogical and medical histories for more than 90,000 individuals. NDRI conducts searches of the database for approved research requests. * HBDI Catalog: The catalog contains 503 family pedigrees with associated cell lines, DNA, and serum for research. Also available are HLA-typing and auto-antibody test results for diabetes families in the catalog. * HBDI Repository: The HBDI repository contains cell lines, DNA, and HLA typing information from 480 families, and frozen buffy coats from 23 families, all with Type 1 diabetes. They have recently expanded the repository to include specimens from individuals with rare diseases. * Customized Collections: NDRI will collect data from patients and physicians, conduct phone interviews and collect blood and other specimens for research on request., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | genetics, medical history, genealogical data, type 2 diabetes, diabetic complication, autoimmune disease, kidney disease, disorder, family pedigree, hla typing, frozen, buffy coat, catalog, demographic data, clinical data, autoantibody data, FASEB list |
is listed by: One Mind Biospecimen Bank Listing is related to: NIDDK Information Network (dkNET) has parent organization: National Disease Research Interchange |
Type 1 diabetes, Rare disease, Type 2 diabetes, Diabetic complication, Autoimmune disease, Kidney disease, Diabetes | NIDDK | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143829 | SCR_004591 | Human Biological Data Interchange (HBDI) | 2026-08-06 09:26:12 | 107 | |||||
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Competence Network on Parkinson's Disease Resource Report Resource Website |
Competence Network on Parkinson's Disease (RRID:SCR_005013) | topical portal, disease-related portal, data or information resource, portal, community building portal | A medical network comprised of university clinics, special clinics, and special practices working together to collect data, gene samples, and execute clinical trials in order to bring about diagnoses and therapy methods. Research projects are done in cure research, diagnostic and therapeutic research. The care network includes university clinics, town clinics, special clinics for Parkinson's disease, specialists, and general practitioners. | parkinson's disease, research, care, clinical trial, data, gene sample, therapy | German Federal Ministry of Research and Education | nlx_144005 | http://www.kompetenznetz-parkinson.de/englisch/englisch.html | SCR_005013 | Kompetenznetz Parkinson, Competence Network on Parkinson's Disease | 2026-08-06 09:26:18 | 0 | ||||||||
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RLS Foundation Brain Bank Resource Report Resource Website |
RLS Foundation Brain Bank (RRID:SCR_005089) | RLS Foundation Brain Bank | brain bank, tissue bank, material resource, biomaterial supply resource | The Restless Legs Syndrome Foundation established the RLS Foundation Brain Bank at the Harvard Brain Tissue Resource Center in 2000. A part of the Harvard University medical system, the Center (housed at McLean Hospital and commonly referred to as The Brain Bank) began in 1978 as a centralized resource for the collection and distribution of human brain specimens for research and diagnostic studies. Over the years, hundreds of scientists from the nation''s top research and medical centers have requested tissue from The Brain Bank for their investigations. Because most of these studies can be carried out on a very small amount of tissue, each donated brain provides a large number of samples for many researchers. For comparative purposes, brain tissue is needed from healthy individuals, as well as from those who had RLS. When possible, a small portion of frozen tissue taken from each brain donated to the RLS Foundation Collection will be kept available to serve as a resource for future genetic testing. The process of donating your brain to RLS research is broken down into 5 steps. To view these steps, please read our Process Steps in RLS Brain Tissue Collection. To read about the process of donating brain tissue for research, visit our Brain Bank Tissue Donation page. | restless legs syndrome, healthy, normal control, brain tissue, brain, tissue, frozen, quick frozen, passive frozen, formalin fixed, paraffin embedded, post-mortem |
is listed by: One Mind Biospecimen Bank Listing has parent organization: RLS Foundation has parent organization: Harvard Brain Tissue Resource Center has parent organization: Harvard Medical School; Massachusetts; USA |
Restless Legs Syndrome, Healthy, Normal control | Public (non-commercial?): Over the years, Hundreds of scientists from the nation''s top research and medical centers have requested tissue from The Brain Bank for their investigations. | nlx_144146 | SCR_005089 | RLS Foundation Brain Bank Tissue Collection, Restless Legs Syndrome Foundation Brain Bank, RLS Foundation Research Brain Bank | 2026-08-06 09:26:20 | 0 | ||||||
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Joseph and Kathleen Bryan Alzheimer's Disease Research Center Resource Report Resource Website |
Joseph and Kathleen Bryan Alzheimer's Disease Research Center (RRID:SCR_005025) | research forum portal, patient-support portal, topical portal, disease-related portal, data or information resource, portal | An Alzheimer's disease center (ADC) that offers support services for families caring for persons with memory disorders, community outreach and education programs, in addition to its clinical and basic research activities. Information on current scientific and clinical findings is offered to the general public, medical and scientific community. An important emphasis of the Bryan ADRC is to advance basic medical discovery concerning AD and related dementias. This basic science mission is facilitated through the DNA cell repository located in the Institute of Genome Sciences and Policy (IGSP) and the Bryan ADRC brain donation program of the Kathleen Price Bryan Brain Bank. These affiliated Bryan ADRC programs provide a source of fresh brain tissue. | alzheimer's disease, memory disorder, clinical trial, dementia, human brain |
has parent organization: Duke University School of Medicine; North Carolina; USA is parent organization of: Duke University Kathleen Price Bryan Brain Bank |
Alzheimer's disease, Memory disorder, Dementia | NIA | Public, Samples are available to the research community | nlx_144012 | SCR_005025 | Bryan Alzheimer's Disease Research Center, Joseph & Kathleen Bryan Alzheimer's Disease Research Center, Bryan ADRC, Joseph and Kathleen Bryan Alzheimer's Disease Research Center | 2026-08-06 09:26:18 | 0 | ||||||
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State of Florida Alzheimer's Disease Initiative Resource Report Resource Website |
State of Florida Alzheimer's Disease Initiative (RRID:SCR_004942) | patient-support portal, topical portal, training resource, disease-related portal, data or information resource, portal | A program that provides services to meet the needs of individuals with Alzheimer's disease, and similar memory disorders, and their families. The Alzheimer's Disease Initiative (ADI) of Florida provides caregiver respite services and support which include in-home, facility-based, emergency, and extended care for caregivers who serve patients with memory disorders. Additionally, the ADI includes services provided by Memory Disorder Clinics (MDCs). | alzheimer's disease, memory disorder, clinical, memory, florida, caregiver | is parent organization of: Florida Brain Bank | nlx_143955 | SCR_004942 | Florida ADI, Florida Alzheimer's Disease Initiative, State of Florida Alzheimer's Disease Initiative | 2026-08-06 09:26:15 | 0 | |||||||||
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Florida Brain Bank Resource Report Resource Website |
Florida Brain Bank (RRID:SCR_004936) | brain bank, tissue bank, material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A service and research oriented network of statewide regional brain bank sites. The intent of the brain bank program is to study brains of persons clinically diagnosed with dementia and provide tissue for research after their deaths. Mt. Sinai Medical Center contracts annually with the State of Florida to operate the primary brain bank. Coordinators at regional brain bank sites in Orlando, Tampa and Pensacola assist in recruiting participants and act as liaisons between the brain bank and participant families. Alzheimer's disease respite care program providers, memory disorder clinics, and model day care programs also recruit brain bank participants. The Florida Brain Bank supports collaborative research programs related to Alzheimer's disease and other degenerative disorders of the brain. | post-mortem, tissue, brain, alzheimer's disease, dementia, clinical, mild cognitive impairment, florida, brain bank, degenerative brain disorder |
is listed by: One Mind Biospecimen Bank Listing has parent organization: State of Florida Alzheimer's Disease Initiative has parent organization: Wien Center For Alzheimer's Disease and Memory Disorders |
Alzheimer's disease, Dementia, Mild Cognitive Impairment | State of Florida Department of Elder Affairs | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143950 | http://elderaffairs.state.fl.us/english/BrainBank/index.php | SCR_004936 | State of Florida Brain Bank, Florida Alzheimer's Disease Brain Bank | 2026-08-06 09:26:16 | 0 |
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