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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Aging Status and Sense of Control (ASOC) Resource Report Resource Website |
Aging Status and Sense of Control (ASOC) (RRID:SCR_013500) | ASOC | data set, data or information resource | A dataset generated longitudinal study that aims to explain the relationship between age and changes in the sense of control over one''''s life, over two follow-up periods. The main hypotheses are (a) over a period of time, the sense of control declines by an amount that increases with age; (b) the change in sense of control reflects an underlying change in biosocial function, which accelerates with age; (c) higher social status slows the decline in the sense of control, possibly by preserving biosocial function; and (d) changes in biosocial function and in the sense of control have deviation-amplifying reciprocal effects that accelerate age-dependent changes in the sense of control. This was a three-wave panel survey with fixed 3-year intervals and repeated assessments of the same variables. Questionnaire topics focused on: physical health (subjective health; activities of daily living; height and weight; health conditions; expected personal longevity); health behavior (exercise, smoking, diet, alcohol use); use of medical services (medical insurance coverage, prescription drug use); work status (current employment status; title of current job or occupation and job description; types of work, tasks, or activities; description of work or daily activity and interactions; supervisory status; management position and level; work history); sense of controlextent of agreement or disagreement with planning and responsibility versus luck and bad breaks; sense of victimhood versus control; social support and participation; personal and household demographics; marital and family relations; socioeconomic status; history of adversity. * Dates of Study: 1994-2001 * Sample Size: 2,593 (Waves 1-2); 1.144 (Wave 3) * Study Features: Longitudinal Data Archives: http://www.sscnet.ucla.edu/issr/da/da_catalog/da_catalog_titleRecord.php?studynumber=I3334V1 | longitudinal, control, physical health, health behavior, late adult human, activities of daily living, disease, health services utilization, health status, life event, life satisfaction, mental health, physical fitness, self concept, social network, social status, survey data, telephone interview |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: National Archive of Computerized Data on Aging (NACDA) has parent organization: University of Texas at Austin; Texas; USA |
Aging | NIA RO1-AG12393 | Public: The first three waves of data are available at ICPSR. | nlx_151355 | SCR_013500 | Aging Status and Sense of Control, Aging Status Sense of Control (ASOC) | 2026-08-04 09:43:14 | 0 | |||||
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Longitudinal Studies of Aging Resource Report Resource Website |
Longitudinal Studies of Aging (RRID:SCR_013355) | LSOA, LSOAs | data set, data or information resource | A data set of a multicohort study of persons 70 years of age and over designed primarily to measure changes in the health, functional status, living arrangements, and health services utilization of two cohorts of Americans as they move into and through the oldest ages. The project is comprised of four surveys: * The 1984 Supplement on Aging (SOA) * The 1984-1990 Longitudinal Study of Aging (LSOA) * The 1994 Second Supplement on Aging (SOA II) * The 1994-2000 Second Longitudinal Study of Aging (LSOA II) The surveys, administered by the U.S. Census Bureau, provide a mechanism for monitoring the impact of proposed changes in Medicare and Medicaid and the accelerating shift toward managed care on the health status of the elderly and their patterns of health care utilization. SOA and SOA II were conducted as part of the in-person National Health Interview Survey (NHIS) of noninstitutionalized elderly people aged 55 years and over living in the United States in 1984, and at least 70 years of age in 1994, respectively. The 1984 SOA served as the baseline for the LSOA, which followed all persons who were 70 years of age and over in 1984 through three follow-up waves, conducted by telephone in 1986, 1988, and 1990. The SOA covered housing characteristics, family structure and living arrangements, relationships and social contracts, use of community services, occupation and retirement (income sources), health conditions and impairments, functional status, assistance with basic activities, utilization of health services, nursing home stays, and health opinions. Most of the questions from the SOA were repeated in the SOA II. Topics new to the SOA II included use of assistive devices and medical implants; health conditions and impairments; health behaviors; transportation; functional status, assistance with basic activities, unmet needs; utilization of health services; and nursing home stays. The major focus of the LSOA follow-up interviews was on functional status and changes that had occurred between interviews. Information was also collected on housing and living arrangements, contact with children, utilization of health services and nursing home stays, health insurance coverage, and income. LSOA II also included items on cognitive functioning, income and assets, family and childhood health, and more extensive health insurance information. The interview data are augmented by linkage to Medicare enrollment and utilization records, the National Death Index, and multiple cause-of-death records. Data Availability: Copies of the LSOA CD-ROMs are available through the NCHS or through ICPSR as Study number 8719. * Dates of Study: 1984-2000 * Study Features: Longitudinal * Sample Size: ** 1984: 16,148 (55+, SOA) ** 1984: 7,541(70+, LSOA) ** 1986: 5,151 (LSOA followup 1) ** 1988: 6,921 (LSOA followup 2) ** 1990: 5,978 (LSOA followup 3) ** 1994-6: 9,447 (LSOA II baseline) ** 1997-8: 7,998 (LSOA II wave 2) ** 1999-0: 6,465 (LSOA II wave 3) Link: * LSOA 1984-1990 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/08719 | health, functional status, living arrangement, health services utilization, late adult human, american, longitudinal, assisted living, chronic disability, chronic illness, disability, health care, health care service, illness, independent living, medicare, mortality rate, supportive services, mortality, survey, behavior, interview, housing, demographic, social, economic, middle adult human |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Nihon University Japanese Longitudinal Study of Aging has parent organization: Centers for Disease Control and Prevention |
Aging | National Center for Health Statistics ; NIA |
Public | nlx_151843 | SCR_013355 | LSOA - Longitudinal Studies of Aging, Longitudinal Studies of Aging (LSOAs) | 2026-08-04 09:43:11 | 0 | |||||
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Progeria Research Foundation Resource Report Resource Website 10+ mentions |
Progeria Research Foundation (RRID:SCR_012786) | PRF | institution | The mission of The Progeria Research Foundation is to discover treatments and the cure for Progeria, and its aging related disorders. Progeria is a rare and fatal genetic disease characterized by an appearance of accelerated aging in children. Without the discovery of new treatments, all children with Progeria will die of heart disease at an average age of 13 years. The Progeria Research Foundation (PRF) was founded in 1999 in response to the complete lack of progress being made to help children with Progeria. We have filled a void, taking these children out of the background where they had been for over 100 years and putting them and Progeria at the forefront of scientific efforts. In just 11.5 years, we have achieved extraordinary progress towards our mission: the Progeria gene discovery in 2003, first-ever clinical drug trials initiated in 2007, extensive global awareness of the disease and PRF''s work, and discovery of critical biological links between Progeria, heart disease and aging we all experience. | progeria | is parent organization of: Progeria Cell and Tissue Bank | Aging | Crossref funder ID: 100002287, grid.423381.f, nlx_53243 | https://ror.org/03qs03z89 | SCR_012786 | 2026-08-01 12:04:51 | 34 | |||||||
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Signal Detection Software for Receiver Operator Characteristics Resource Report Resource Website 1+ mentions |
Signal Detection Software for Receiver Operator Characteristics (RRID:SCR_008752) | Signal Detection Software for ROC | software resource | Software program designed to help the average clinician/researcher with a PC to evaluate clinical databases and discover the characteristics of patients, including genetics that best predict a binary outcome. That outcome may be any binary outcome such as: * Whether or not the patient has a certain disorder (medical test evaluation) * Whether or not the patient is likely to develop a certain disorder (risk factor evaluation) * Whether or not the patient is likely to respond to a certain treatment (evaluation of treatment moderators) When the predictors considered are themselves all binary (e.g., male/female; inpatient/outpatient; symptoms present/absent), the program identifies the optimal predictor. When one or more of the predictors are ordinal (e.g., age, severity of symptoms) it identifies the optimal cutpoint for each or the ordinal predictors, as well as the overall optimal predictor. | signal detection, signal, clinician, researcher, prediction, binary outcome, evaluation, medical test, risk factor, treatment | has parent organization: Stanford/VA Aging Clinical Research Center | Aging | nlx_143946 | SCR_008752 | 2026-08-01 12:03:52 | 4 | ||||||||
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University Memory and Aging Center Resource Report Resource Website 1+ mentions |
University Memory and Aging Center (RRID:SCR_010611) | institution | The University Memory and Aging Center (formerly known as University Alzheimer Center) is a partnership of Case Western Reserve University and University Hospitals of Cleveland promoting the best possible care for persons with memory problems, and assisting their families, through an integrated program of clinical services, research, and education. Our staff includes a wide range of professionals dedicating their time and efforts to understand and work for the betterment of those affected by any disorder which affects cognitive abilities. We include Neuroscientists, Neurologists, Psychologists, Sociologists, Social Workers, Nurses, Clinical trials coordinators, Research Assistants, Data Managers and Administrative staff. We work with researchers in Cleveland, throughout the US and around the globe. | has parent organization: Case Western Reserve University; Ohio; USA | Aging | nlx_52510, Wikidata: Q30294636, grid.443939.0 | https://ror.org/01dssfj41 | SCR_010611 | University Alzheimer Center | 2026-08-01 12:04:14 | 3 | ||||||||
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Fritz Lipmann Institute; Jena; Germany Resource Report Resource Website |
Fritz Lipmann Institute; Jena; Germany (RRID:SCR_011250) | FLI | institution | The Leibniz Institute for Aging Research - Fritz Lipmann Institute (FLI) is the first national research institute in Germany that deals with biomedical research into human aging. Aging is a multifactorial process that is influenced by the environment and genetic factors. |
is parent organization of: Jenalib: Jena Library of Biological Macromolecules is parent organization of: Leibniz Institute for Age Research |
Aging | ISNI: 0000 0000 9999 5706, grid.418245.e, nlx_153854 | https://ror.org/039a53269 | SCR_011250 | Fritz Lipmann Institute, Leibniz Institute for Age Research - Fritz Lipmann Institute | 2026-08-01 12:04:21 | 0 | |||||||
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Missouri University of Science and Technology; Missouri; USA Resource Report Resource Website |
Missouri University of Science and Technology; Missouri; USA (RRID:SCR_011396) | Missouri S andT | university | Founded in 1870 as one of the first technological schools west of the Mississippi, Missouri S&T is one of the nation''s top technological research universities. Missouri S&T produced the engineers, scientists and innovators who helped drive the Industrial Revolution and launch the Space Age. Today, our graduates are poised to lead the new global, green economy. | has parent organization: University of Missouri System; Missouri; USA | Aging | ISNI:0000 0000 9364 6281, Wikidata:Q4380853, Crossref funder ID:100006531, grid.260128.f, nlx_144159 | https://ror.org/00scwqd12 | SCR_011396 | University of Missouri-Rolla, Missouri S and T, Missouri University of Science Technology, Missouri University of Science and Technology | 2026-08-01 12:04:08 | 0 | |||||||
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Greek Association of Alzheimers Disease and Related Disorders Resource Report Resource Website |
Greek Association of Alzheimers Disease and Related Disorders (RRID:SCR_003938) | GAADRD | nonprofit organization | A non-profit organization whose aim is to offer advice concerning the care of Alzheimer''''s disease patients, information and services for the people affected and their families. Also, to offer mutual help to the family members of the patients in order to reduce the social, economic and emotional cost deriving from the long care of people suffering from dementia. Lastly, the association attempts to publicize the social needs of the population affected and to inform the public in order to be acquainted with the problem. The mission of the Greek Association of Alzheimer''''s Disease is * the early diagnosis of dementia by scientists * the promotion of research * education and training for all the stakeholders * the development of Care Units for patients with Alzheimer''''s Disease * the provision of useful information and advise (24 hour help-line) on dementia problems (caring, legal or financial issues) * the presentation of lectures by health professionals and informal carers, covering all aspects of Alzheimer Disease * and the development of professional seminars during the whole year. | late adult human |
is related to: Alzheimer Europe is related to: PharmaCog is related to: Alzheimers Disease International |
Alzheimer's disease, Dementia, Aging | nlx_158314, grid.428867.7 | https://ror.org/04xqgyf78 | SCR_003938 | Greek Association of Alzheimer Disease and Relative Disorders, Greek Association of Alzheimer Disease and Related Disorders, Alzheimer Hellas, Greek Association of Alzheimer's Disease and Related Disorders | 2026-08-01 12:02:28 | 0 | ||||||
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Alzheimers Association Resource Report Resource Website 100+ mentions |
Alzheimers Association (RRID:SCR_007398) | ALZ | nonprofit organization | A non profit organization dedicated to providing support for patients and families with Alzheimer's disease, to educating the public about the disease, to funding a wide range of Alzheimer's disease related research and to finding ways to treat and eventually to prevent Alzheimer's disease. Resources include: the Alzheimer's Association Green-Field Library, a research grants program, and the Journal of the Alzheimer's Association. | advocacy group, brain, brain health, clinical, dementia, alzheimers disease, community building portal, narrative resource, training material, database, training resource, service resource, FASEB list |
is related to: ADNI - Alzheimer's Disease Neuroimaging Initiative is related to: International Genomics of Alzheimers Project is parent organization of: General Practitioner Assessment of Cognition is parent organization of: Alzheimers Association Research Roundtable is parent organization of: Biomarkers Across Neurodegenerative Diseases is parent organization of: Alzheimer's Association International Research Grant Program is parent organization of: Informant Questionnaire on Cognitive Decline in the Elderly is parent organization of: IADRP is parent organization of: CADRO |
Alzheimer's disease, Aging | Public, Available to the research community | ISNI: 0000 0004 0614 7003, nif-0000-00451, Crossref funder ID: 100000957, grid.422384.b, Wikidata: Q4738818 | https://ror.org/0375f4d26 | SCR_007398 | Alzheimers Association, Alzheimer's Association | 2026-08-01 12:03:34 | 114 | |||||
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AlzProtect Resource Report Resource Website |
AlzProtect (RRID:SCR_000492) | AlzProtect | commercial organization | Commercial organization that develops drug candidates in the field of neurodegenerative diseases and particularly Alzheimer's. Their main objective is the development of a drug against Alzheimer's disease from molecules patented by Inserm and the University of Lille II. | late adult human, drug, molecule, neurodegeneration, medicine, drug development | is related to: PharmaCog | Alzheimer's disease, Aging, Neurodegenerative disease | nlx_158327 | SCR_000492 | Alz Protect, SAS AlzProtect, Alzprotect SAS, AlzProtect - Therapeutic Solutions for Neurodegeneration | 2026-08-01 12:01:23 | 0 | |||||||
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Salk Institute for Biological Studies Resource Report Resource Website 1+ mentions |
Salk Institute for Biological Studies (RRID:SCR_000752) | institution | The Salk Institute conducts research within three major areas of study: Molecular Biology and Genetics; Neurosciences; and Plant Biology. Six key areas represent strategic research priorities: Chemistry and Proteomics; Stem Cell Biology; Cell Biology; Regulatory Biology; Metabolic Research; and Computational and Theoretical Biology. | organization portal, meeting resource, genetics, disease, disorder, human, metabolic research, molecular biology, neuroscience, plant biology, proteomics, regulatory biology, stem cell biology, theoretical biology |
is parent organization of: Mammalian Brain Methylomes is parent organization of: neurospy is parent organization of: Computational Neurobiology Laboratory at the Salk Institute is parent organization of: Brain Cell Methylation Viewer is parent organization of: CEMBA MethylC Seq Pipeline is parent organization of: Whole Mouse Brain Cell and Genome Atlas is parent organization of: Salk Institute Biophotonics Core Facility is parent organization of: Salk Institute Flow Cytometry Core Facility is parent organization of: Salk Institute Gene Transfer Targeting and Therapeutics Viral Vector Core Facility is parent organization of: Salk Institute Mass Spectrometry Core Facility is parent organization of: Salk Institute Scientific Core Facilities Senior Director's Office is parent organization of: Salk Institute Single-Cell and Spatial Omics Core Facility is parent organization of: Salk Institute Next Generation Sequencing Core (NGS) |
Aging | March of Dimes ; Donations ; San Diego City Council |
grid.250671.7, Wikidata: Q1351061, nif-0000-10414, ISNI: 0000 0001 0662 7144 | https://ror.org/03xez1567 | SCR_000752 | Salk Institute | 2026-08-01 12:01:18 | 1 | ||||||
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Longevity Foundation Resource Report Resource Website |
Longevity Foundation (RRID:SCR_006338) | Longevity Foundation | funding resource | Funding resource that supports research into A-T (Ataxia Telangiectasia) and other debilitating, degenerative diseases plaguing human kind, including cancer and neuro-degeneration associated with auto-immunity and aging. Researchers share their findings and collaborate with each other. The research must lead to practical, near-term treatments and cures to receive funds. The researchers have found treatments and cures that are the first of their kind in the world. Over $850,000 in direct research grants have been made. These grants have leveraged over $9 million in research resources contributed by partner institutions. We pay the research institutions for direct costs only. We pay no administrative, indirect, or overhead costs. | grant, research | Degenerative disease, Ataxia Telangiectasia, Neurodegeneration, Autoimmunity, Inflammation, Premature aging, Aging, Cancer | nlx_152041 | SCR_006338 | 2026-08-01 12:03:07 | 0 | |||||||||
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Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) Resource Report Resource Website |
Biospecimens/Biorepositories: Rare Disease-HUB (RD-HUB) (RRID:SCR_004327) | RD-HUB | biomaterial supply resource, material resource | A database of biospecimens collected, stored, and distributed by biorepositories in the United States and around the globe. Its goals are: To help and assist interested parties and investigators search, locate, and identify desired biospecimens needed for their research; to facilitate collaboration and sharing of material and data among investigators across the globe; to accelerate research to facilitate the discovery of new treatments, therapeutics and eventually cures for rare diseases as well as common diseases; to identify, locate and increase the awareness of existing biorepositories across the globe; and to link the RD-HUB with the Global Rare Diseases Patient Registry and Data Repository (GRDR). | rare disease, disease, public |
lists: NIDDK Central Repository lists: National Disease Research Interchange is listed by: NIH Data Sharing Repositories is listed by: One Mind Biospecimen Bank Listing is listed by: Accelerated Cure Project MS Repository is listed by: Cooperative Human Tissue Network Western Division at Vanderbilt University Medical Center is listed by: NIDDK Information Network (dkNET) is related to: GRDR has parent organization: Office of Rare Diseases Research |
Rare disease, Aging | NIH | PMID:20609392 | Public, The community can contribute to this resource | nlx_143682 | http://biospecimens.ordr.info.nih.gov/ | SCR_004327 | Biospecimens / Biorepositories: Rare Disease-HUB, Biospecimens/Biorepositories: Rare Disease-HUB, Rare Disease-HUB | 2026-08-01 12:10:36 | 0 | |||
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KI Biobank - SATSA Resource Report Resource Website 1+ mentions |
KI Biobank - SATSA (RRID:SCR_005966) | KI Biobank - SATSA | biomaterial supply resource, material resource | Longitudinal twin study to understand individual differences in aging with corresponding data and biological samples. The twin design and the inclusion of twins reared apart makes it possible to study the importance of genetic and environmental factors that may underlie differing aging outcomes. Further, the broad spectrum of biological, psychological, and social domains assessed across the life span makes it possible to study patterns of change within and across domains and how these predict health and diseases of aging. The study is comprised of several longitudinal components including, a comprehensive questionnaire that was sent to all twins in the Swedish Twin Registry who were separated at an early age and reared apart and a control sample of twins reared together. The questionnaires include items concerning rearing, family, adult, and working environment, health status, health related behaviors (e.g. alcohol, tobacco, and dietary habits) as well as relationships, and personality measures. The questionnaires were sent again at 3 year intervals in 1987, 1990, 1993 and after a break again in 2004, 2007, and 2010. Thus far more than 2,000 twins have responded to at least one of the seven questionnaire assessments conducted between 1984 and 2010. Additionally there is information about midlife life style factors from the Swedish Twin Registry that were collected about twenty years before SATSA started. In the second component a subsample of 861 individuals have participated in at least one wave of in-person testing (IPT). The first IPT started in 1986 and since then eight IPTs have been collected and the last wave will be collected during 2012-2013. The IPT includes a health examination, structured interviews, tests of functional capacity, and memory and thinking abilities. To date, over 76% of the sample has participated in 3 or more measurement waves. At IPT9 a third component was added to SATSA, a measure of day-to-day fluctuations in memory and thinking abilities, and emotions. Information about social interactions is also collected. After the visit by the research nurses the twins fill out the day-to-day booklet during the next five days. This procedure will be repeated in IPT10. This will add information about small and short-term changes and more changes are supposed to indicate the beginning of poor health. Data from SATSA can be used to study various aspects of aging. For example, the relative importance of genetic and environmental factors for individual differences in aging especially in cognitive and physical domains has been studied. A further main focus is to study changes within and across domains and which genetic and life style factors predict these changes. Given the wide spectrum of data from measured genes to social relationships collected over more than two decades they dare to say that SATSA is a unique study, with the possibility to answer many questions within gerontology and geriatrics. Types of samples * Serum * DNA Number of sample donors: 674 (June 2010) | gene, environment, health, disease, longitudinal, questionnaire, life style, interview, functional capacity, memory, thinking, emotion, social interaction, cognitive, physical, behavior, relationship, personality, health |
uses: Swedish Twin Registry is listed by: One Mind Biospecimen Bank Listing is related to: KI Biobank - HARMONY has parent organization: Karolisnka Biobank |
Aging, Twin, Control, (reared apart vs. reared together) | MacArthur Foundation Research Network on Successful Aging ; NIA AG04563; NIA AG10175; NIA AG08724; Swedish Research Council 825-2007-7460; Swedish Research Council 825-2009-6141; Swedish Research Council 825-3011-6182; Swedish Council for Working Life and Social Research 97:0147:1B 2009-0795 |
nlx_151325 | http://ki.se/forskning/ki-biobank, http://ki.se/ki/jsp/polopoly.jsp?d=29354&a=24035&l=en | SCR_005966 | Swedish Adoption / Twin Study of Aging, KI Biobank - Swedish Adoption/Twin Study of Aging, SATSA - The Swedish Adoption/Twin Study of Aging, Swedish Adoption/Twin Study of Aging | 2026-08-01 12:10:49 | 1 | |||||
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KI Biobank - HARMONY Resource Report Resource Website 1+ mentions |
KI Biobank - HARMONY (RRID:SCR_008884) | HARMONY | biomaterial supply resource, material resource | A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) | interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry is related to: KI Biobank - SATSA has parent organization: Karolisnka Biobank |
Dementia, Alzheimer''''s disease, Discordant twin, Aging | NIH | nlx_151298 | http://ki.se/en/meb/dementia-in-swedish-twins-harmony | SCR_008884 | Dementia in Swedish Twins (HARMONY) | 2026-08-01 12:10:42 | 2 | |||||
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KI Biobank - EXT Resource Report Resource Website |
KI Biobank - EXT (RRID:SCR_008875) | KI Biobank - EXT | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. The aim of EXT (extinction) is to investigate the relation between specific genetic variations and cognitive control process in fear. Blood samples will be collected from about 300 healthy, young individuals (age 18-35). | genetic variation, cognitive control, fear, healthy, early adult, gene |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Healthy, Aging | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_149601 | SCR_008875 | KI Biobank - Extinction | 2026-08-01 12:10:42 | 0 | ||||||
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SHEEP - Stockholm Heart Epidemiology Program Resource Report Resource Website 1+ mentions |
SHEEP - Stockholm Heart Epidemiology Program (RRID:SCR_008905) | KI Biobank - SHEEP | biomaterial supply resource, material resource | DNA from a population-based case-control study designed to investigate causes of myocardial infarction. The study population comprised all Swedish citizens living in the county of Stockholm who were 45 to 70 years of age and free of previously clinically diagnosed MI. Sample types: * DNA Number of sample donors: 2831 (sample collection completed) | heart, epidemiology, cardiac disease, middle adult human, late adult human, aging |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Myocardial infarction, Normal, Aging | nlx_151444 | http://ki.se/ki/jsp/polopoly.jsp?d=29346&a=31574&l=en | SCR_008905 | Stockholm Heart Epidemiology Program | 2026-08-01 12:10:54 | 2 | ||||||
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National Long Term Care Survey Resource Report Resource Website |
National Long Term Care Survey (RRID:SCR_008943) | NLTCS | biomaterial supply resource, material resource | A data set of a longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). It also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for caregiving. The survey began in 1982, and follow-up surveys were conducted in 1984, 1989, 1994, 1999, and 2004. The surveys are of the entire Medicare-enrolled aged population with a particular emphasis on the functionally impaired. As sample persons are followed through the Medicare record system, virtually 100% of cases can be longitudinally tracked so that declines, as well as increases, in disability may be identified as well as exact dates of death. NLTCS sample persons are followed until death and are permanently and continuously linked to the Medicare record system from which they are drawn. Linkage to the Medicare Part A and B service use records extends from 1982 to 2004, so that detailed Medicare expenditures and types of service use may be studied. Through the careful application of methods to reduce non-sampling error, the surveys provide nationally representative data on: * The prevalence and patterns of functional limitations, both physical and cognitive; * Longitudinal and cohort patterns of change in functional limitation and mortality over 22 years; * Medical conditions and recent medical problems; * Health care services used; * The kind and amount of formal and informal services received by impaired individuals and how it is paid for; * Demographic and economic characteristics like age, race, sex, marital status, education, and income and assets; * Out-of-pocket expenditures for health care services and other sources of payment; * Housing and neighborhood characteristics. In each of the six surveys, large samples (N~20,000) of the oldest-old population (i.e., those 85 and over) are obtained. The survey data (i.e., detailed community and institutional interviews. The linkage to Medicare enrollment files between 1982 and 2004 was 100%, i.e., there was complete follow-up of all cases (including survey non-respondents) for Medicare eligibility (and for most years, detailed Part A and B use), mortality, and date of death. Medicare mortality records (and dates of death) are available for 1982 to 2005. The number of deaths (i.e., about 32,000 from 1982 to 2005) is large enough that detailed mortality analyses can be done. Over the 22 years spanned by the six surveys, a total of 49,242 distinct individuals were followed from and linked to Medicare records. Data Availability: The data are available through ICPSR as Study No. 9681. The data are available only on CD-ROM and only upon completion of a signed Data Use Agreement. Continuously linked Medicare data (1982 through 2004) for the National Long Term Care Surveys are only available from CMS. * Dates of Study: 1982-2004 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1982: 20,485 ** 1984: 25,401 ** 1989: 17,565 ** 1994: 19,171 ** 1999: 19,907 ** 2004: 20,474 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09681 | longitudinal, survey, late adult human, interview, medicare, questionnaire, disabled, non-disabled, community, institution, disability, medical condition, education, income, blood, buccal wash, activity, caregiver, diet, family relations, health care service, health services utilization, health status, life satisfaction, live expectancy, living arrangement, marriage, perception, quality of life, apoe, sod2, physical, cognitive, functional limitation, mortality, demographic, economic, race, marital status, asset, payment, housing, neighborhood |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Duke University; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, Functionally impaired, Late adult human, Non-disabled | NIA N2 U01 AG0007198 | Public, Data use agreement required. | nlx_151860 | http://dx.doi.org/10.3886/ICPSR09681.v5 | SCR_008943 | NLTCS: National Long-Term Care Survey, National Long Term Care Survey (NLTCS), National Long-Term Care Survey | 2026-08-01 12:10:54 | 0 | ||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | biomaterial supply resource, material resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-08-01 12:10:54 | 0 | |||||
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Iowa 65+ Rural Health Study Resource Report Resource Website 1+ mentions |
Iowa 65+ Rural Health Study (RRID:SCR_008937) | Iowa 65+ Rural Health Study | biomaterial supply resource, material resource | A data set and sister study to the Established Populations for Epidemiologic Study of the Elderly (EPESE). It complements the findings of the three other EPESE sites (East Boston, MA; New Haven, CT; and north-central North Carolina) and has common items and methods in many domains. The target population was all persons 65 years and older in two rural counties in east central Iowa: Iowa and Washington counties. In 1981 a census of older persons in the target area was conducted by the investigators, creating an ascertainment list having 99% of the persons identified in the previous year by the US Decennial Census. The baseline survey was conducted between December 1991 and August 1992. Overall, 3,673 persons, or 80% of the target population were interviewed: 65-69 (N = 986), 70-74 (N = 988), 75-79 (N = 815), 80-84 (N = 523), and 85+ (N = 361). The population is virtually entirely Caucasian. Subsequently, personal follow-up surveys were conducted 3, 6, and 10 years after the baseline survey. Telephone surveys were conducted 1, 2, 4, 5, and 7 years after the baseline survey. Data collected from respondents included information about demographics, major health conditions, health care utilization, hearing and vision, weight and height, elements of nutrition, sleep problems, depressive and anxiety symptoms, alcohol and tobacco use, cognitive performance and dementia screening, incontinence measures, life satisfaction index, social networks and support, worries, medication use, activities of daily living, dental problems, satisfaction with medical care, life events, brief economic status, automobile driving habits, multiple measures of physical and disability status, and blood pressure. At follow-up #6, there were a series of physical function performance tests, the so-called NIA-MacArthur Battery, and blood was drawn for biochemical tests and potentially other determinations. In addition, some datasets were linked to the EPESE dataset under appropriate restrictions, including Iowa state driving records and clinical diagnoses and medical care utilization from the Centers for Medicare and Medicaid Services. Data Availability: The dataset has been shared with several investigative teams under special arrangement with the Principal Investigator. Early surveys are available from ICPSR. A small storage of blood is available for exploratory analyses. * Dates of Study: 1991-2001 * Study Features: Longitudinal, Anthropometric Measures, Biomarkers * Sample Size: 1991-2: 3,673 (baseline) Link: EPESE 1981-93 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09915 | blood, mortality, hospitalization, chronic disease, late adult human, longitudinal, anthropometry, biomarker, survey, caucasian, demographics, health, health care, hearing, vision, weight, height, nutrition, sleep, depression, anxiety, alcohol use, tobacco use, cognition, dementia, incontinence, social, medication use, activity, dental, satisfaction, medical care, economic status, driving, physical, disability, blood pressure, interview |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Established Populations for Epidemiologic Studies of the Elderly |
Aging | NIA | Public | nlx_151838 | SCR_008937 | Iowa 65 and over Rural Health Study, Iowa 65 Plus Rural Health Study | 2026-08-01 12:10:52 | 3 |
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