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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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HipSci Resource Report Resource Website 100+ mentions |
HipSci (RRID:SCR_003909) | HipSci | material resource, biomaterial supply resource | A UK national induced pluripotent stem (iPS) cell resource that will create and characterize more than 1000 human iPSCs from healthy and diseased tissue for use in cellular genetic studies. Between 2013 and 2016 they aim to generate iPS cells from over 500 healthy individuals and 500 individuals with genetic disease. They will then use these cells to discover how genomic variation impacts on cellular phenotype and identify new disease mechanisms. Strong links with NHS investigators will ensure that studies on the disease-associated cell lines will be linked to extensive clinical information. Further key features of the project are an open access model of data sharing; engagement of the wider clinical genetics community in selecting patient samples; and provision of dedicated laboratory space for collaborative cell phenotyping and differentiation. | stem cell, genomic variation, cellular phenotype, disease mechanism, phenotype, disease, clinical data, clinical, genetics, male, female, cell line, induced pluripotent stem cell |
is listed by: One Mind Biospecimen Bank Listing has parent organization: European Bioinformatics Institute |
Healthy, Genetic disease | Wellcome Trust ; MRC |
Acknowledgement required, Free, Public | nlx_158252 | SCR_003909 | Human Induced Pluripotent Stem Cells Initiative | 2026-08-13 09:27:04 | 131 | |||||
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Medtronic Resource Report Resource Website 1000+ mentions |
Medtronic (RRID:SCR_003988) | MDT | commercial organization | Medical technology company that develops and manufactures devices and therapies to treat more than 30 chronic diseases, including heart failure, Parkinson's disease, urinary incontinence, Down syndrome, obesity, chronic pain, spinal disorders, and diabetes. A Commercial healthcare organization for both patients and healthcare professionals. For professionals, it provides products, therapy and procedure solutions, and services. | medical device, cardiac, vascular, restorative therapy, neuromodulation, spine, heart, aorta, coronary, surgical technology | is related to: Kidney Health Initiative | Cardiac disease, Vascular disease, Diabetes, Neurological condition, Musculoskeletal condition, Heart failure, Parkinson's disease, Urinary incontinence, Down's syndrome, Obesity, Chronic pain, Spinal disorder | grid.481699.b, nlx_158399, Wikidata: Q30343856, SCR_010517, nlx_17750, grid.487289.8 | https://ror.org/04fhmmg24, https://ror.org/01y0zfy93 | SCR_003988 | Medtronic Inc. | 2026-08-13 09:26:57 | 2841 | ||||||
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National Biobank of Finland Resource Report Resource Website 1+ mentions |
National Biobank of Finland (RRID:SCR_004679) | National Biobank of Finland | material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023.To guarantee the top level of expertise in modern genetic and biological analyses, we have built an infrastructure that facilitates the collection of genome-wide information on the genetic background of diseases as well as functional information on the molecules that are critical in the disease process. Furthermore we have established the necessary storage, database and computational resources for the expert analyses of the massive amount of collected biological information. Our scientific expertise, technology platforms and large nationwide sample collections facilitate a highly competitive environment for research and education in molecular medicine of the 21st century. The biobanking wet lab effort is concentrated to KTL/Biomedicum Large scale DNA extraction and storage facility. The facility presently houses DNA from more than 200 000 individuals and is co-ordinated by National Public Health Institute. It is equipped with state of the art bar coding system for sample tracking, an automated Gentra DNA extraction equipment, liquid handling robots, storage facilities, and tailor made data management tools for optimal confidentiality and quality control. | dna | is listed by: One Mind Biospecimen Bank Listing | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_67744 | SCR_004679 | 2026-08-13 09:27:12 | 3 | ||||||||
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Source BioScience LifeSciences Resource Report Resource Website 50+ mentions |
Source BioScience LifeSciences (RRID:SCR_003344) | RZPD | material resource, biomaterial supply resource | Source BioScience LifeSciences are European leaders in DNA sequencing, genomic services, bioinformatic analyses and offers a comprehensive portfolio of genomic reagents and antibodies. Source BioScience LifeScience is a CPA, GLP/GCP accredited and Illumina NGS CSPro certified genomic service provider and distributes a comprehensive range of biological products to companies and institutions worldwide. Source BioScience is proud to announce that Source BioScience imaGenes has joined it's LifeSciences group. This will enable us to bring our customers one unified website with our complete range of Products, Clones and Services. We have merged our clone libraries together so that can now offer you over 20 million clones! Add to this our excellent sequencing service and our range of over 100,000 antibodies and Source BioScience LifeSciences is your ideal outsourcing partner. | clones, libraries, microarray, dna sequencing, rna interference, next generation sequencing, proteomics | is listed by: One Mind Biospecimen Bank Listing | Free, Freely available | nif-0000-31984 | https://sourcebioscience.com/ | SCR_003344 | imaGenes, Source BioScience imaGenes | 2026-08-13 09:26:54 | 72 | ||||||
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NEALS Sample Repository Resource Report Resource Website 1+ mentions |
NEALS Sample Repository (RRID:SCR_004271) | NEALS Sample Repository | material resource, biomaterial supply resource | Repository of serum, plasma, cerebrospinal fluid (CSF), whole blood, extracted DNA, and urine samples from NEALS and Massachusetts General Hospital Neurology Clinical Trials Unit (NCTU) research studies of amyotrophic lateral sclerosis (ALS). Samples from this repository are available to researchers for the purpose of furthering the understanding of ALS or developing disease biomarkers. Applications will be accepted at any time, but the committee meets bi-monthly to review applications. The application requires a brief description and scientific justification for the use of the samples. Priority will be given to members of NEALS and investigators from sites that participated in the collection of samples. Investigators must provide IRB approval from their institution. Applications may be submitted to: mghneuroclinicaltrialsunit (at) partners.org (please cc: tlincoln (at) partners.org) NEALS collects an administrative fee of $1,000 at the time of application submission to offset processing costs. If an application for samples is denied, 80% of the administrative fee will be returned. The administrative fee is waived for NEALS members. Checks may be made payable to: The Northeast ALS Consortium. | amyotrophic lateral sclerosis, serum, plasma, cerebral spinal fluid, urine, dna, whole blood, blood |
is listed by: One Mind Biospecimen Bank Listing has parent organization: NEALS: The Northeast ALS Consortium |
Amyotrophic Lateral Sclerosis, Motor neuron disease, Healthy | ALS Association | Public, Application, Fee, Acknowledgement required | nlx_143662 | http://www.nealsconsortium.org/news.html | SCR_004271 | Northeast ALS Consortium Sample Repository, NEALS Biofluid Repository, ALS Biofluid Repository | 2026-08-13 09:27:08 | 1 | ||||
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COBALT: Constraint-based Multiple Alignment Tool Resource Report Resource Website 10+ mentions |
COBALT: Constraint-based Multiple Alignment Tool (RRID:SCR_004152) | software resource, computation service resource | COBALT is a multiple sequence alignment tool that finds a collection of pairwise constraints derived from conserved domain database, protein motif database, and sequence similarity, using RPS-BLAST, BLASTP, and PHI-BLAST. Pairwise constraints are then incorporated into a progressive multiple alignment. A Linux executable for COBALT, and CDD and PROSITE data used is available at ftp://ftp.ncbi.nlm.nih.gov/pub/agarwala/cobalt/ COBALT has reasonable runtime performance and alignment accuracy comparable to or exceeding that of other tools for a broad range of problems. | gold standard | has parent organization: NCBI | PMID:17332019 | nlx_17358 | SCR_004152 | NCBI COBALT, NCBI Constraint-based Multiple Alignment Tool, Constraint-based Multiple Alignment Tool | 2026-08-13 09:27:08 | 10 | ||||||||
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Estonian Genome Center Resource Report Resource Website 1+ mentions |
Estonian Genome Center (RRID:SCR_004467) | EGCUT, EGC | material resource, biomaterial supply resource |
The Estonian Biobank is the population-based biobank of the EGCUT. The project is conducted in accordance with the Estonian Genes Research Act and all participants have signed a broad informed consent form (www.biobank.ee |
biomedicine, population-based studies, population-based study, biobanking, genotyping, sequencing, data analysis, wbc, gene, environmental factor, disease, genomics, epidemiology, clinical data, dna, white blood cell, plasma, blood, lifestyle, demographic, genetic |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Tartu; Tartu; Estonia |
General population | PMID:24518929 PMID:27256120 |
Public: The anonymous data (and biological materials) of the gene donors are available for research projects. Before an application can be accepted for review, The research project has to obtain an approval from the Ethics Review Committee on Human Research of the University of Tartu. The applicant will be asked to submit the results of the research project that were obtained using the data of the gene donors, To the EGCUT by the time specified in the contract. These results will complement the EGCUT database. | nlx_45748 | http://www.geenivaramu.ee/ | http://www.geenivaramu.ee/index.php?lang=eng | SCR_004467 | Estonian Genome Center University of Tartu, Estonian Biobank | 2026-08-13 09:27:07 | 8 | |||
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onCore UK Resource Report Resource Website 1+ mentions |
onCore UK (RRID:SCR_004348) | onCore UK | material resource, biomaterial supply resource | No longer functioning as an independent charity, onCore UK is a national cancer biobanking organization. Our mission is to serve as an action team that informs, coordinates and develops cancer biobanking to enable research towards the discovery and development of new interventions against cancer. We also offer advice to researchers who need to collect and store samples for their own specific projects. Our main strategic objectives are: * To empower research using human biosamples to find new and effective means of preventing, detecting or treating cancer. * To improve access by researchers to the human biosamples they require for their work. * To facilitate an environment in which patients, the public, health professionals, researchers, funders of research, policy makers and regulators can work together to support cancer biobanking and the research it underpins. * To provide practical information, coordination and development for current and future people and organizations involved in cancer biobanking to ensure that they are not unnecessarily hindered in their work. * To provide an accurate and regularly updated picture of the cancer biobanking provision in the UK that will inform future decisions by funders supporting research using donated human biosamples. * To distribute the human biosamples that onCore UK has in its custody. onCore UK conducts its business within the overall scope of the National Cancer Research Institute (NCRI) and for the benefit of cancer research. In the past we have also worked with selected NHS hospitals in different parts of the country to collect biosamples and relevant clinical data donated by cancer patients. These biosamples are stored in a secure repository and researchers can apply to use them. We make anonymized biosamples and data available for scientifically and ethically approved research on a cost-recovery basis. onCore UK works with other cancer biobanks in the UK via the NCRI Confederation of Cancer Biobanks (CCB), and with other biobanks internationally, to improve access for researchers to larger numbers of high quality biosamples, to harmonize how biobanks work and to share expertise for the benefit of all involved. |
is listed by: One Mind Biospecimen Bank Listing has parent organization: National Cancer Research Institute is parent organization of: Confederation of Cancer Banks |
MRC ; Department of Health England ; Cancer Research UK |
nlx_36545 | SCR_004348 | 2026-08-13 09:27:09 | 1 | |||||||||
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Biobanking and Biomolecular Resources Research Infrastructure (BBMRI) Resource Report Resource Website 10+ mentions |
Biobanking and Biomolecular Resources Research Infrastructure (BBMRI) (RRID:SCR_004226) | BBMRI | material resource, biomaterial supply resource | BBMRI is a pan-European and internationally broadly accessible research infrastructure and a network of existing and de novo biobanks and biomolecular resources. The infrastructure will include samples from patients and healthy persons, representing different European populations (with links to epidemiological and health care information), molecular genomic resources and biocomputational tools to optimally exploit this resource for global biomedical research. During the past 3 years BBMRI has grown into a 53-member consortium with over 280 associated organizations (largely biobanks) from over 30 countries, making it the largest research infrastructure project in Europe. During the preparatory phase the concept of a functional pan-European biobank was formulated and has now been presented to Member States of the European Union and for associated states for approval and funding. BBMRI will form an interface between specimens and data (from patients and European populations) and top-level biological and medical research. This can only be achieved through a distributed research infrastructure with operational units in all participating Member States. BBMRI will be implemented under the ERIC (European Research Infrastructure Consortium) legal entity. BBMRI-ERIC foresees headquarters (central coordination) in Graz, Austria, responsible for coordination of the activities of National Nodes established in participating countries. BBMRI is in the process of submitting its application to the European Commission for a legal status under the ERIC regulation, with an expected start date at the end of 2011. Major synergism, gain of statistical power and economy of scale will be achieved by interlinking, standardizing and harmonizing - sometimes even just cross-referencing - a large variety of well-qualified, up-to date, existing and de novo national resources. The network should cover (1) major European biobanks with blood, serum, tissue or other biological samples, (2) molecular methods resource centers for human and model organisms of biomedical relevance, (3) and biocomputing centers to ensure that databases of samples in the repositories are dynamically linked to existing databases and to scientific literature as well as to statistical expertise. Catalog of European Biobanks www.bbmriportal.eu Username: guest / Password: catalogue The catalogue is intended to be used as a reference for scientists seeking information about biological samples and data suitable for their research. The BBMRI catalogue of European Biobanks provides a high-level description of Europe''s biobanks characteristics using a portal solution managing metadata and aggregate data of biobanks. The catalogue can be queried by country, by biobank, by ICD-groups, by specimen types, by specific strengths, by funding and more. A search function is available for all data. | blood, serum, tissue, dna, cdna, rna, plasma, cell line, bodily fluid, urine, blood cell isolate, buffy coat, patient, healthy, normal, cryopreserved, paraffin embedded, clinical data |
is listed by: One Mind Biospecimen Bank Listing is related to: BioResource Impact Factor is related to: German Biobank Registry is related to: BioMedBridges is related to: Biological Resource Centre - National Institute for Cancer Research has parent organization: Medical University of Graz; Graz; Austria is parent organization of: BBMRI Wiki |
All, Patient, Healthy, Normal | European Union | Public: The catalogue is intended to be used as a reference for scientists seeking information about biological samples and data suitable for their research. | nlx_24389 | http://www.bbmri.eu/index.php | SCR_004226 | Biobanking and Biomolecular Resources Research Infrastructure, BBMRI: Biobanking Biomolecular Resources Research Infrastructure, Biobanking Biomolecular Resources Research Infrastructure, BBMRI: Biobanking and Biomolecular Resources Research Infrastructure, Biobanking Biomolecular Resources Research Infrastructure (BBMRI) | 2026-08-13 09:26:55 | 33 | ||||
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Google Code Resource Report Resource Website 100+ mentions |
Google Code (RRID:SCR_005786) | Google Code | software resource, software repository | Developer tools, APIs and resources. Search developers.google.com and code.google.com. | code, developer |
lists: Emotion Ontology lists: Porifera Ontology lists: Information Artifact Ontology lists: Mental Functioning Ontology lists: Beta Cell Genomics Ontology lists: Biological Collections Ontology lists: Chemical Methods Ontology lists: Chemical Information Ontology lists: Ontology for Genetic Interval lists: Ontology for Parasite LifeCycle lists: Ontology of Medically Related Social Entities lists: Population and Community Ontology lists: RNA Ontology lists: Vertebrate Taxonomy Ontology lists: Adverse Event Reporting Ontology lists: Neurobehavior Ontology lists: Ontology for General Medical Science lists: GHOSTM lists: nFuse lists: PD5 is parent organization of: GUARDD is parent organization of: APSampler is parent organization of: Cbrowse is parent organization of: SNAVI is parent organization of: TAPS is parent organization of: PyroHMMsnp is parent organization of: d2-tools is parent organization of: msbwt is parent organization of: DySC is parent organization of: BAMseek is parent organization of: GlycoWorkbench is parent organization of: Google Project Hosting is parent organization of: jmzIdentML API is parent organization of: jmzML is parent organization of: GenomicTools is parent organization of: tbrowse is parent organization of: PyroHMMvar is parent organization of: FR-HIT is parent organization of: PeptideShaker is parent organization of: ms lims is parent organization of: Gel2DE is parent organization of: ProRata is parent organization of: MoSDi is parent organization of: Gutentag is parent organization of: SASqPCR is parent organization of: MPprimer is parent organization of: BioCaster Ontology is parent organization of: PoPoolation2 is parent organization of: BMIQ is parent organization of: FadE is parent organization of: Bpipe is parent organization of: Snakemake is parent organization of: SNAPE-pooled is parent organization of: jmzTab is parent organization of: PoPoolation is parent organization of: PerM is parent organization of: tree editor is parent organization of: deStruct is parent organization of: PoPoolation TE is parent organization of: methylKit is parent organization of: SNPdat is parent organization of: CLEVER Toolkit is parent organization of: Clippers is parent organization of: Hydra is parent organization of: MiRPara is parent organization of: phantompeakqualtools is parent organization of: Knime4Bio is parent organization of: Bisulfighter is parent organization of: MOSAIK is parent organization of: SeqTrace is parent organization of: jMHC is parent organization of: BSMAP is parent organization of: PePr is parent organization of: SAAP-RRBS is parent organization of: SoftSearch is parent organization of: Autopack is parent organization of: CROP is parent organization of: eDMR is parent organization of: swDMR is parent organization of: peakrots is parent organization of: AmpliconNoise is parent organization of: HighSSR is parent organization of: ComB is parent organization of: Diplotyper is parent organization of: draw-sneakpeek is parent organization of: MutFinder is parent organization of: reseqtools is parent organization of: breseq is parent organization of: CNValidator is parent organization of: RRBSMAP is parent organization of: B-SOLANA is parent organization of: BatMeth is parent organization of: balony is parent organization of: ngs.plot is parent organization of: discovering-cse is parent organization of: SeqPipe is parent organization of: RseqFlow is parent organization of: orthAgogue is parent organization of: Gene ARMADA is parent organization of: MetExtract is parent organization of: jmzReader is parent organization of: PRIDE Converter 2 is parent organization of: Pride-asap is parent organization of: thermo-msf-parser is parent organization of: SearchGUI is parent organization of: XTandem Parser is parent organization of: Bpredictor is parent organization of: MOABS is parent organization of: CAMPways is parent organization of: compomics-utilities is parent organization of: DeNovoGUI is parent organization of: ProteoCloud is parent organization of: kruX is parent organization of: SlideSort-BPR is parent organization of: SPINAL is parent organization of: PSimScan is parent organization of: NetCoffee is parent organization of: CONDEX is parent organization of: ChiBE is parent organization of: Allim is parent organization of: Cell motility is parent organization of: GlycReSoft is parent organization of: GlycanBuilder is parent organization of: npstat is parent organization of: PoolHap is parent organization of: REDItools is parent organization of: iceLogo is parent organization of: AMS is parent organization of: MP-EST is parent organization of: HLAforest is parent organization of: LocalAli is parent organization of: genCAT is parent organization of: ECO is parent organization of: SobekCM is parent organization of: SimRare is parent organization of: PhenoMan is parent organization of: DistMap is parent organization of: PIPE-CLIP is parent organization of: CD-HIT is parent organization of: eagle-i research resource ontology is parent organization of: Neuropsychological testing ontology is parent organization of: Neurological disease ontology hosts: GenomeSmasher |
nlx_149265 | SCR_005786 | 2026-08-13 09:27:32 | 452 | |||||||||
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US Biomax Resource Report Resource Website 50+ mentions |
US Biomax (RRID:SCR_004295) | US Biomax | material resource, biomaterial supply resource | Our robust searchable Tissue Bank database at US Biomax contains normal, non-cancerous disease and cancer samples, just a fraction of total paraffin tissue bank. Use advanced search function to define your search. Some of them have H&E images. Our tissue repository, tissue bank has huge paraffin tissue blocks, a large selection of histology tissue section slides of human cancer, normal tissue, rhesus and cynomolgus normal fresh frozen tissue as well as paraffin blocks and slides. It has also normal human organs in paraffin embedded tissue blocks as well as rhesus and cynomolgus monkey normal organ tissues. Snap frozen (fresh frozen) tissue of rhesus/cynomolgus monkey are also available. We also provide tissue array, custom tissue microarray (with samples you provided or from our tissue bank) as well as OEM services. Other products/services available include tissue microarray, paraffin tissue sections, histology services and quantitative telomerase detection kit. | FASEB list | is listed by: One Mind Biospecimen Bank Listing | nlx_31395 | SCR_004295 | US Biomax Inc. | 2026-08-13 09:26:56 | 93 | ||||||||
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Mount Sinai Biobank Resource Report Resource Website 1+ mentions |
Mount Sinai Biobank (RRID:SCR_004845) | Mount Sinai Biobank | material resource, biomaterial supply resource | The Mount Sinai Biobank is a large collection of DNA and plasma samples that are stored in a way that protects patients'' privacy while allowing research to be performed on de-identified clinical information from Mount Sinai''s data warehouse system. The Biobank''s goal is to acquire samples from a total of 100,000 donors over a period of several years. Mount Sinai is one of only a handful of places nationwide establishing biobanks on such a large scale. Funded by the Charles R. Bronfman Institute for Personalized Medicine, the Biobank project is a research project that is approved by the Mount Sinai Institutional Review Board and is continuously reviewed. Biobank Facts: * 17947 donors between 18 and 89 years of age have already participated in Biobank. * 194111 aliquots of DNA and * 212005 aliquots of plasma are available for future research. | dna, plasma, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Icahn School of Medicine at Mount Sinai; New York; USA |
Charles R. Bronfman Institute for Personalized Medicine | nlx_82806 | http://www.mssm.edu/research/institutes/institute-for-personalized-medicine/ipm-research/biobank | SCR_004845 | Mount Sinai School of Medicine Biobank | 2026-08-13 09:27:14 | 2 | ||||||
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eyeGENE Resource Report Resource Website 10+ mentions |
eyeGENE (RRID:SCR_004523) | eyeGENE | material resource, biomaterial supply resource | National network of research laboratories for genetic testing of eye disease. They offer testing for affected individuals coupled to registry of clinical information available through patient registry. Large data set for investigators to identify additional genetic risk factors and to explore relationship between genetic disease (genotype) and its clinical manifestation (phenotype). | familial exudative vitreal retinopathy, fzd4, foxc1, abca4, aniridia, pax6, axenfeld - rieger syndrome, pitx2, best's disease, vmd2, bietti's crystalline corneal-retinal dystrophy, cyp4v2, c1qtnf5/ ctrp5, ca4, choroideremia, chm, cnga1, cone rod dystrophy, abca4, congenital cranial dysinnervation disease, kif21a, congenital stationary night blindness, nyx, corneal anterior stromal dystrophy, bigh3, crb1, doyne honeycomb dystrophy, efemp1, glaucoma, cyp1b1, hoxa1, impdh1, juvenile x-linked retinoschisis, xlrs1, krt12, lrp5, meesmann's epithelial dystrophy, krt3, mertk, myoc, ndp, optic atrophy, opa1, optn, pantothenate kinase-associated neuropathy, pank2, pattern dystrophy, rds, pde6a, pde6b, phox2a, prpf31, retinitis pigmentosa, retinal degeneration, abca4, rgr, rho, rlbp1, robo3, rp1, rp2, rpe65, rpgr, sall4, sorsby fundus dystrophy, timp3, stargardt disease, elovl4, tulp1, genotype, phenotype, diagnostic, genotyping, clinical trial, genetic eye disease, blood, dna, cell line, genetic testing, treatment, genetics, ophthalmic disease, eye |
is recommended by: National Library of Medicine is listed by: One Mind Biospecimen Bank Listing has parent organization: National Eye Institute (NEI) Commons |
Genetic eye disease, Family member | NEI | PMID:22847030 | Restricted | nif-0000-00229 | https://eyegene.nih.gov/node/38, https://eyegene.nih.gov/node/36 | SCR_004523 | eyeGENE, National Ophthalmic Disease Genotyping Network (eyeGENE), National Ophthalmic Disease Genotyping Network (eyeGENETM), National Ophthalmic Disease Genotyping Network | 2026-08-13 09:27:09 | 17 | |||
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Autism Genetic Resource Exchange Resource Report Resource Website 1+ mentions |
Autism Genetic Resource Exchange (RRID:SCR_004403) | AGRE | material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A private repository of clinical and genetic information on families with autism. Genetic and clinical data are obtained from families that have more than one family member diagnosed with an Autism Spectrum Disorder. The biological samples, along with the accompanying clinical data, are made available to AGRE-approved researchers worldwide. As they become available, additional family pedigrees will be posted in the online catalog. Cell lines have been established for the majority of families in this collection and serum/plasma is available on a subset of the subjects until stocks are depleted. The diagnosis of autism has been made using the standard Autism Diagnostic Interview-Revised (ADI-R) algorithm and the Autism Diagnostic Observation Scale (ADOS-G). Detailed birth and medical histories (including basic dysmorphology assessments) on children as well as family and medical information for parents and unaffected siblings, are available for nearly all families. DNA, cell lines, serum, plasma and clinical information are made available to AGRE-approved researchers for analysis. | family registry, gene bank, genetics, autism diagnostic, interview, autism diagnostic observational scale, autism spectrum disorder, birth, clinical data, genome scan, genotypic data, medical history, pedigree, phenotypic data, dna, cell line, serum, plasma, biorepository, biospecimen, pervasive development disorder |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Autism Speaks |
Autism, Autism spectrum disorder, Pervasive Development Disorder | NIMH 1U24MH081810 | PMID:20955925 | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00226 | SCR_004403 | 2026-08-13 09:26:58 | 1 | |||||
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Indonesia Family Life Survey Resource Report Resource Website 10+ mentions |
Indonesia Family Life Survey (RRID:SCR_005695) | IFLS | material resource, biomaterial supply resource | A dataset of an on-going multi-level longitudinal survey in Indonesia that collects extensive information on socio-economic and demographic characteristics of respondents, as well as extremely comprehensive interviews with local leaders about community services and facilities. The survey is ideally suited for research on topics related to important dynamic aging processes such as the transition from self-sufficiency to dependency, the decline from robust health to frailty, labor force and earning dynamics, wealth accumulation and decumulation, living arrangements and intergenerational transfers. The first wave of IFLS was fielded in 1993 and collected information on over 30,000 individuals living in 7,200 households. The sample covers 321 communities in 13 provinces in Indonesia and is representative of about 83% of the population. These households were revisited in 1997 (IFLS2), 2000 (IFLS3), and 2007-8 (IFLS4). A 25% sub-sample of households was re-interviewed in 1998 (IFLS2+). Special attention is paid to the measurement of health, including the measurement of anthropometry, blood pressure, lung capacity, a mobility test and collection of dry blood spots by a nurse or doctor. In addition to comprehensive life history data on education, work, migration, marriage and child bearing, the survey collects very detailed information on economic status of individuals and households. Links with non co-resident family members are spelled out in conjunction with information on borrowing and transfers. Information is gathered on participation in community activities and in public assistance programs. Measurement of health is a major focus of the survey. In addition to detailed information about use of private and public health services along with insurance status, respondents provide a self-reported assessment of health status. Detailed information on the local economy and prices of goods and services are also collected. These data may be matched with the individual and household-level data. Considerable attention has been placed on minimizing attrition in IFLS. In each re-survey, about 95% of households have been re-contacted. Around 10-15% of respondents have moved from the location in which they were interviewed in the previous wave. In addition, individuals who split-off from the original households have been followed. They have added around 1,000 households to the sample in 1997 and about 3,000 households in 2000. Data Availability: IFLS1 data are available through ICPSR as study number 6706. Data from subsequent waves of the IFLS can be accessed from the RAND project Website. * Dates of Study: 1993-2008 * Study Features: Longitudinal, International, Anthropometric Measures, Biomarkers * Sample Size: ** 1993: 22,000 (IFLS1) ** 1997: 33,000 (IFLS2) ** 1998: 10,000 (IFLS2+) ** 2000: 37,000 (IFLS3) ** 2008: 44,103 (IFLS4) Links: * IFLS1 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06706 * IFLS ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00184 | interview, income, education, adult, child, contraceptive, survey, consumption, asset, individual, household, anthropometry, blood pressure, lung capacity, mobility, dry blood, work, migration, marriage, child bearing, economic status, health, health service, insurance, longitudinal, international, biomarker, blood | is listed by: Inter-university Consortium for Political and Social Research (ICPSR) | Aging | NIA ; NICHD ; USAID ; Ford Foundation ; World Health Organization ; World Bank |
Public | nlx_151836 | SCR_005695 | Indonesian Family Life Survey (IFLS), Indonesian Family Life Survey, Indonesia Family Life Survey (IFLS) | 2026-08-13 09:27:16 | 43 | |||||
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NINDS Repository Resource Report Resource Website 1+ mentions |
NINDS Repository (RRID:SCR_004520) | material resource, biomaterial supply resource | Open resource of biological samples (DNA, cell lines, and other biospecimens) and corresponding phenotypic data to promote neurological research. Samples from more than 34,000 unique individuals with cerebrovascular disease, dystonia, epilepsy, Huntington's Disease, motor neuron disease, Parkinsonism, and Tourette Syndrome, as well as controls (population control and unaffected relatives) have been collected. The mission of the NINDS Repository is to provide 1) genetics support for scientists investigating pathogenesis in the central and peripheral nervous systems through submissions and distribution; 2) information support for patients, families, and advocates concerned with the living-side of neurological disease and stroke. | nervous system disorder, neurogenetics, genetic, clinical data, cerebrovascular disease, epilepsy, motor neuron disease, parkinson's disease, parkinsonism, tourette's disorder, normal control, stroke, amyotrophic lateral sclerosis, huntington's disease, dystonia, dementia, neurologically normal, blood, dna, biomarker, plasma, urine, cell line, induced pluripotent stem cell, fibroblast, stem cell, frozen, lymphoblast, biospecimen banking, biospecimen processing, biospecimen distribution, biospecimen, genetics, phenotype, neurological disease |
is listed by: One Mind Biospecimen Bank Listing is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: PD-DOC is related to: Parkinson’s Disease Biomarkers Program Data Management Resource (PDBP DMR) has parent organization: Coriell Cell Repositories |
Cerebrovascular disease, Epilepsy, Motor neuron disease, Parkinson's disease, Tourette's Disorder, Normal control, Stroke, Amyotrophic Lateral Sclerosis, Huntington's disease, Dystonia, Dementia, Neurologically normal, Neurological disorder | NINDS ; NIH Blueprint for Neuroscience Research |
Public | nlx_143800 | SCR_004520 | NINDS Human Genetics DNA Cell Line Repository, NINDS Human Genetics DNA and Cell Line Repository, The NINDS Repository, The NINDS Human Genetics Resource Center, The NINDS Human Genetics DNA and Cell Line Repository | 2026-08-13 09:27:00 | 3 | ||||||
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KORA-gen Resource Report Resource Website 1+ mentions |
KORA-gen (RRID:SCR_004510) | KORA-gen | material resource, biomaterial supply resource | KORA-gen is infrastructure to provide phenotypes, genotypes and biosamples for collaborative genetic epidemiological research. From all four surveys that have been conducted so far, the following biological material is on hand: genomic DNA, blood serum, blood plasma and EBV immortalized cell lines (form KORA S4 only). These have been extracted from blood samples and are stored in nitrogen tanks and -80 degrees C refrigerators. Genomic DNA from more than 18.000 adult subjects from Augsburg and the surrounding counties is available at present. So far, EBV immortalized cell lines from 1.600 participants are cultivated. To meet the manifold demands of researchers with genetic and molecular questions KORA-gen fulfills the following prerequisites for successful genetic-epidemiological research: * representative samples from the general population, * well characterized disease phenotypes and intermediate phenotypes, * information on environmental factors, * availability of genomic DNA, serum, plasma and urine, as well as EBV immortalized cell lines. In total, four population based health surveys have been conducted between 1984 and 2000 with 18000 participants in the age range of 25 to 74 years, and a biological specimen bank was established in order to enable scientists to perform epidemiologic research with respect to molecular and genetic questions. The KORA study center conducts regular follow-up investigations and has collected a wealth of information on sociodemography, general medical history, environmental factors, smoking, nutrition, alcohol consumption, and various laboratory parameters. This unique resource will be increased further by follow-up studies of the cohort. The assessment of statistical questions covers the definition of the study design and the calculation of statistical power. Furthermore, we offer assistance in data analysis. Kora-gen can be used by external partners. Interested parties can inform themselves interactively via internet about the available data and rules of access. The genotypic data base is a common resource to all partners. | gene, genetic, epidemiology, dna, serum, plasma, urine, cell line, epstein-barr virus immortalized cell line, blood, frozen, nitrogen, disease phenotype, adult human, survey, population study, genotype, phenotype |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Helmholtz Center Munich Institute of Epidemiology |
General population, Well characterized disease phenotype, Well characterized disease intermediate phenotype | Collaborators: Kora-gen can be used by external partners. Interested parties can inform themselves interactively via internet about the available data and rules of access. The genotypic data base is a common resource to all partners. | nlx_49266 | SCR_004510 | Cooperative Health Research in the Region of Augsburg-gen | 2026-08-13 09:27:00 | 8 | ||||||
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Vanderbilt BioVU Resource Report Resource Website 100+ mentions |
Vanderbilt BioVU (RRID:SCR_004632) | BioVU | material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. BioVU is a research resource providing a View into biology at the level of DNA and other important macromolecules. BioVU has two major components. The first is a repository of DNA samples (extracted from discarded blood samples) that are coded solely by a Research Unique Identifier (RUI) derived from the Medical Record Number (MRN) using a one-way hash function. This is a computer algorithm that creates a transformation of each MRN such that the resulting RUI (which is in this instance is a 512 byte identifier) is unique, and has the property that it is not possible to infer or compute the MRN that generated it. As of early 2009, over 50,000 DNA samples were in the biobank, with new samples being added at the rate of approximately 700 per week. The second component of the resource is the creation of a database known as the Synthetic Derivative which is a collection of de-identified information extracted from VUMC''s electronic clinical information systems, indexed by the same one-way RUI used to track samples, and with content changed by deletion or permutation of all identifiers contained within each record. The Synthetic Derivative search interface is available to Vanderbilt researchers via the StarBRITE research portal created and maintained by the Vanderbilt Institute for Clinical and Translational Research. This user interface enables investigators meeting protocol approval criteria and other user agreement requirements to receive protocol-specific sets of data derived from DNA samples and from the Synthetic Derivative., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | dna, blood, clinical, FASEB list |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Vanderbilt University; Tennessee; USA |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_63125 | SCR_004632 | BioVU: Vanderbilts DNA Databank, BioVU: Vanderbilt''s DNA Databank, BioVU DNA Databank | 2026-08-13 09:27:02 | 112 | |||||||
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SpecimenCentral.com Resource Report Resource Website 1+ mentions |
SpecimenCentral.com (RRID:SCR_003536) | SpecimenCentral.com | material resource, biomaterial supply resource | World's open biospecimen research database where biobanks and biomedical researchers meet to exchange human biospecimen needs and supply: whole blood, serum, plasma, solid tissue samples and more. The connection is accelerated so researchers save valuable time and money and tissue banks utilize inventory. The pace of specimen procurement remains unacceptably slow to the biomedical research community. Specimen Central is the foremost global resource to aid biomedical researchers in expediting their search for high quality human biospecimens, tissues, samples and specimens. They facilitate your search for blood, whole blood, buccal swab, DNA, RNA, protein, cell lines, plasma, serum, RBC, white cells, buffy coat, fluid, marrow, urine, stem cells, and solid tissue such as tumor, tumor and biopsy materials spanning all manner of common and rare pathologies and indications including Alzheimer's, basal cell carcinoma, bladder cancer, bone cancer, brain cancer, breast cancer, cerebrospinal fluid, amniotic fluid, colorectal cancer, colon cancer, hodgkins and non-hodgkins lymphoma, kidney/renal cancer, leukemia, liver cancer, lung cancer, melanoma, multiple sclerosis, myeloma neuroblastoma, neurodegenerative diseases, ovarian cancer, pancreatic cancer, prostate cancer, urinary cancer. This includes adult and pediatric indications. Specimen Central users specify a number of variables in their Specimen Requests, including preparation, preservation and handling requirements such as cryo-preserved, FFPE (Formalin-fixed paraffin-embedded), formalin, frozen, refrigerated, OCT, snap frozen, paraffin block, fresh, prospective, autopsy or cadaveric, etc. Many users require clinically annotated date associated with their specimens, as well as documentation of IRB or ethics committee approval and informed consents. For Researchers Most specimen databases require researchers to waste time and effort entering lengthy registrations and search queries that yield poor results, if anything. Specimen Central solves this problem by having tissue banks search for you. From years to months, months to weeks, and weeks to days, Specimen Central seeks to reduce delays and costs in the research & development life cycle by expediting connections between demand and supply. For Biobanks The capital costs of maintaining a biobank infrastructure are substantial and growing. Biobanks use Specimen Central as a marketing tool to augment their business development efforts. By routinely checking Specimen Central's Specimen Requests, biobanks can uncover market demand for their inventories and develop new connections and revenue streams to defray costs. Specimen Central supplements - not displaces - the efforts of your sales representatives, agents, brokers and commercial partners. | blood, tissue, cell, dna, rna, protein, body fluid, whole blood, buccal swab, cell line, plasma, serum, red blood cell, white cell, buffy coat, marrow, urine, stem cell, solid tissue, tumor, adult, pediatric, biopsy material, child, clinically annotated, clinical, annotated, tissue | is listed by: One Mind Biospecimen Bank Listing | All | The community can contribute to this resource | nlx_10317 | SCR_003536 | Specimen Central, SpecimenCentral | 2026-08-13 09:26:51 | 1 | ||||||
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Central Biomaterial Bank - German Heart Failure Network Resource Report Resource Website 1+ mentions |
Central Biomaterial Bank - German Heart Failure Network (RRID:SCR_004667) | CNHF Central Biomaterial Bank | material resource, biomaterial supply resource | The goal of this project is the creation of an extensive biomaterials bank. Materials (blood, serum, plasma, DNA) from all patients who participate in studies in the network will be collected for this purpose. The objective is a consistently high quality standard for the processing, storage and management of all samples. The biomaterials bank is an investment in the future by the network. It enables the competence network and the research community in general to acquire new scientific knowledge about the development, progression and prognosis of the different forms of heart failure. Each time a patient is documented in a study in the competence network, blood (EDTA whole blood and serum) is drawn from the patient, sent by post to the central biomaterials bank and processed there in the central incoming sample laboratory according to specified standards. In the first two subsidization periods, a total of 100,000 samples from approximately 10,000 patients was documented and processed (aliquoting, DNA extraction). These samples are stored in climate-controlled rooms used especially for this purpose at the biomaterial bank of the Experimental and Clinical Research Center (ECRC) in Berlin-Buch at temperatures between -20 and -80 degrees C. As the central infrastructure project for all samples, the biomaterials bank is deeply involved in the networking. There are also intensive collaborations with other competence networks (e.g. the Competence Network for Congenital Heart Defects) and biobanks. The biomaterial bank of the Heart Failure Competence Network also participates in domestic and European pilot projects for networking biomaterial banks (BBMRI, ESFRI, etc.). The goal of these projects is to develop uniform methods for sample processing and use. | blood, serum, plasma, dna, frozen, heart failure, cardiology |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Competence Network Heart Failure |
Heart failure | German Federal Ministry of Research and Education | Collaborators (within a variety of Networks): As the central infrastructure project for all samples, The biomaterials bank is deeply involved in the networking. There are also intensive collaborations with other competence networks (e.g. the Competence Network for Congenital Heart Defects) and biobanks. The biomaterial bank of the Heart Failure Competence Network also participates in domestic and European pilot projects for networking biomaterial banks (BBMRI, ESFRI, Etc.). The goal of these projects is to develop uniform methods for sample processing and use. | nlx_69537 | http://www.knhi.de/en/Research/SP03/index.jsp | SCR_004667 | Heart Failure Competence Network Central biomaterial bank, Competence Network Heart Failure Central biomaterial bank | 2026-08-13 09:27:12 | 6 |
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